“I really want to thank Oley for the webinars I have attended this year.  As a mom caregiver, it has helped with perspective and understanding of my son’s [diagnosis]." —Bonnie F.

Oley Webinars

• Great opportunity to learn without leaving your home
• Free of charge (we do not offer CEU's at this time)
  
• Recorded for future viewing
• Watch for updates

Interested in sponsoring a webinar? Click here.

 

Upcoming Presentations

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Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO webinar series

April 2, 2019 | 1:00pm - 2:00pm

Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to consumers

Kishore Iyer, MBBS, FRCS (Eng), FACS

Joan Bishop

 

REGISTER

 

Intestinal failure (IF) is a rare, chronic, debilitating disease defined as the reduction of intestinal function below the minimum necessary for the absorption of nutrients and water. Management of IF often involves parenteral nutrition (PN). Although considered a life-saving therapy, PN may be associated with life-threatening complications of liver disease or recurrent central-line associated bloodstream infections. Intestinal rehabilitation programs offer multidisciplinary management of IF with the goal of restoring enteral autonomy and reducing the need for PN support, and, sometimes, liver and/or intestinal transplantation or referral for such transplant. Access to specialized intestinal care and expert PN management may be challenging for patients who do not live close to intestinal rehabilitation programs. Novel approaches to provide specialized care for IF are necessary. The Expanding Community Healthcare Outcomes (ECHO®) model may be an innovative way to expand and support such expertise.

In this lively webinar, you can hear from 2 experts in the field of intestinal failure. Joan Bishop, Executive Director of the Oley Foundation will speak to the challenges in care for patients with IF and the resulting disparities in care. Dr. Kishore Iyer, Director of the Intestinal Rehabilitation and Transplant Program at Mount Sinai Hospital (New York, New York), is organizing the LIFT-ECHO (“Learn Intestinal Failure Tele-ECHO”). This intestinal failure ECHO is a collaboration among experts in nutrition, gastroenterology, surgery/transplant, patient advocacy, and insurers as well as the ECHO Institute (University of New Mexico, Albuquerque); with the American Society for Parenteral and Enteral Nutrition (ASPEN) as a continuing medical education (CME) provider.

Even though LIFT-ECHO is a confidential academic setting and not open to patients, learn how you can get involved and have your clinician participate in the LIFT-ECHO Clinic and even get direct feedback on your case from a team of experts.

 

April 9, 2019 | 1:00pm - 2:00pm

Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to clinicians

Kishore Iyer, MBBS, FRCS (Eng), FACS

REGISTER

 

April 23, 2019 | 1:00pm - 2:00pm

Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to clinicians

Kishore Iyer, MBBS, FRCS (Eng), FACS

Kelly Tappenden, PhD, RD

 

REGISTER

 

Intestinal failure (IF) is a rare, chronic, debilitating disease defined as the reduction of intestinal function below the minimum necessary for the absorption of nutrients and water. Management of IF often involves parenteral nutrition (PN). Although considered a life-saving therapy, PN may be associated with life-threatening complications of liver disease or recurrent central-line associated bloodstream infections. Intestinal rehabilitation programs offer multidisciplinary management of IF with the goal of restoring enteral autonomy and reducing the need for PN support, and, sometimes, liver and/or intestinal transplantation or referral for such transplant. Access to specialized intestinal care and expert PN management may be challenging for patients who do not live close to intestinal rehabilitation programs. Novel approaches to provide specialized care for IF are necessary. The Expanding Community Healthcare Outcomes (ECHO®) model may be an innovative way to expand and support such expertise.

In this lively webinar, you can hear from 2 experts in the field of intestinal failure. Dr Kelly Tappenden, Head of the Department of Nutrition at Univ of Illinois in Chicago will speak to the challenges in care for patients with IF and the resulting disparities in care. Dr. Kishore Iyer, Director of the Intestinal Rehabilitation and Transplant Program at Mount Sinai Hospital (New York, New York), is organizing the LIFT-ECHO (“Learn Intestinal Failure Tele-ECHO”). This intestinal failure ECHO is a collaboration among experts in nutrition, gastroenterology, surgery/transplant, patient advocacy, and insurers as well as the ECHO Institute (University of New Mexico, Albuquerque); with the American Society for Parenteral and Enteral Nutrition (ASPEN) as a continuing medical education (CME) provider.

By participating in LIFT-ECHO, clinicians may receive expert consultation and continuing education that may benefit the clinicians themselves, but it will also benefit individual patient care. The establishment of a LIFT-ECHO network, based on the ECHO® model of care to share “right knowledge at the right place and right time,” is expected to improve management of complex IF in the United States.

Join the movement! Be a part of the ECHO!!

 

Previous Presentations

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Practical Management of Home Tube Feeding

Cynthia Reddick, RD, CNSC

 

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the webinar.

 

Sometimes home tube feeding presents challenges that can interfere with a consumers relationship with their tube and tube feeding experience. This engaging presentation will review several common complications with tube feeding and tube site care that can be addressed with simple strategies and appropriate clinical guidance. Cynthia will illustrate best practice solutions in the form of case studies that review symptoms, possible causes, recommended solutions and strategies for prevention.

Sponsored by

  

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Complications of Home Parenteral Nutrition: What to Do & How to Minimize

Darlene Kelly, MD, PhD

Ann Michalek, MD

 

Click here to view the recorded webinar.

Click here to view the slides.

 

While HPN is a life-sustaining therapy for patients with severe gastrointestinal disorders, it brings with it a host of potential complications. Because home parenteral nutrition (HPN) patients are living at home, management of acute complications is initiated by the patient and their caregiver. This webinar will discuss symptoms and signs, causes, immediate actions to be taken, prevention, and specific important points of the major complications that can occur with HPN.

Sponsored by

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Drug Shortages: Focus on Parenteral Nutrition

Kathleen M. Gura, Pharm.D., BCNSP, FASHP, FPPAG, FASPEN

 

Click here to view the recorded webinar.

 

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Pediatric Transition to Adult Care

Tom Jaksic, MD

 

Click here to view the recorded webinar.

Sponsored by

 

 

 

 

 

 

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Blenderized Tube Feeding

Lisa Epp, RDN, LD, CNSC

 

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the Video.

 

Blenderized tube feeding (BTF) is becoming a more popular option for tube fed patients, both adults and pediatrics. Lisa discusses prevalence of the use of BTF, as well as tools needed to blend at home and how to create homemade recipes. The premade whole food formulas (for both adults and pediatrics) are reviewed. 

Sponsored by

 

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Recent Advances in Vascular Access

Robert Lookstein, MD, RSIR, FAHA

 

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the Video.

 

Sponsored by

 

 

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Coping with the Holidays...and All That Eating!

Emma Tillman, Pharm.D., Ph.D., BCNSP, HPN Consumer

 

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the Video.

 

Dr. Tillman has been a HPN consumer for the past six years and has struggled with social eating in a food-centered world. During this webinar, she will share tips for navigating social situations around the holidays that involve food.

Sponsored by

 

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Treatment Options for Gastroparesis

Thomas L. Abell, MD

 

Dr. Abell will share his 35 years of experience with gastroparesis patients, and the perspective gained from 100 patient focus groups. He will discuss the published work on the NIH Gastroparesis consortium, as well as current thoughts on the pathophysiology of gastroparesis and the gastroparesis like syndrome. He will conclude his presentation with a review of therapeutic options for these disorders.

 

Click here to view the recorded webinar.

Click here to view the slides.

Sponsored by

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Traveling with IV Nutrition or Tube Feeding

Barbara Klinger (experienced traveler with IV nutrition)

Rick Davis (experienced traveler with tube feeding)

Susan Buckland, TSA

 

Click here to view the recorded webinar.

Click here to view the Tube Feeding Traveling Tips handout.

Click here to view the slides on IV Nutrition Traveling Tips.

Click here to view the slides with Advice from the Transportation Security Administration (TSA)

Click here to view Q&A Not Covered on the Video.

Sponsored by

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Short Bowel Syndrome—Diet, Hydration, and Treatment

Laura Matarese, PhD, RDN, LDN, CNSC, FADA, FASPEN, FAND

Doug Seidner, MD, AGAF, FACG, FASPEN, CNSC

 

Short bowel syndrome can have severe effects on absorption, overall health and quality of life. But many of the symptoms can be minimized with the use of diet modification, hydration techniques as well as medical and surgical treatments. This webinar will cover the etiology of short bowel syndrome, metabolic effects and methods to treat.

 

Click here to view the recorded webinar.

Click here for a copy of Dr. Matarese's slides, and Dr. Seidner's slides.

Click here to read the Questions & Answers

Sponsored by

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Coping Skills: Tools to Help You Live More Fully

Donna Yadrich, MPA, CCRP

Mariah Abercrombie, MSW

 

Develop the skill set you need to successfully navigate the ups and downs, and unpredictable nature of chronic illness and nutrition therapy.

 

Click here to view the recorded webinar.

Additional information mentioned in the webinar: People First Language, Family Voices, Coping Resources, Traveling with HPN/HEN 

Sponsored by

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Notes from a Plumber’s Helper— Clogs I Have Known (in Feeding Tubes)

Mark Klang, MS, RPh, BCNSP, PhD

 

Learn about: Nature of the beast, Sticky messes, Slow movers and more!

 

Click here to view a recording of the presentation and here to view the Supplemental ENFit Q&A session.

Click here for a copy of the slides to print.

Additional information on administering medications in a feeding tube.

Sponsored by

 

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Harnessing the Power of Social Media

Jeff Fairbanks

 

Learn how to share your stories, safely and effectively, from social media guru and Oley member, Jeff Fairbanks. He will also provide advice on avoiding pitfalls and protecting your privacy. You can use this knowledge to help Oley spread awareness during Feeding Tube Awareness Week (February 6 to 10, 2017) and HPN Awareness Week (August 7 to 11, 2017).

 

Click here to view the recorded webinar.

Sponsored by

 

 

 

 

 

 

Updated 9/17/18