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“I really want to thank Oley for the
webinars I have attended this year.
As a mom caregiver, it has helped
with perspective and understanding
of my son’s [diagnosis]."
—Bonnie F.
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Oley Webinars
- Great opportunity to learn without leaving your home
- Free of charge (we do not offer CEU's at this time)
- Recorded for future viewing
- Watch for updates
Upcoming Webinars
October 8, 2019 | 1:00pm-2:00pm
"You Need Self-Care!": What Can I Do to Cope with Being a Caregiver to a Loved One on HPEN?
Tiffany Taft, PsyD, MIS
Research Assistant Professor, Director of Psychogastroenterology Research
Division of Gastroenterology & Hepatology; Northwestern University Feinberg School of Medicine
REGISTER
Previous Presentations
"You Should Totally Meditate!": Realistic, Effective Strategies to Cope with Day-to-Day Life with HPEN
Tiffany Taft, PsyD, MIS
Research Assistant Professor, Director of Psychogastroenterology Research
Division of Gastroenterology & Hepatology; Northwestern University Feinberg School of Medicine
Click here to view recorded webinar.
Click here to view the slides.
Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to clinicians
Kishore Iyer, MBBS, FRCS (Eng), FACS
Kelly Tappenden, PhD, RD
Click here to view recorded webinar.
Intestinal failure (IF) is a rare, chronic, debilitating disease defined as the reduction of intestinal function below the minimum necessary for the absorption of nutrients and water. Management of IF often involves parenteral nutrition (PN). Although considered a life-saving therapy, PN may be associated with life-threatening complications of liver disease or recurrent central-line associated bloodstream infections. Intestinal rehabilitation programs offer multidisciplinary management of IF with the goal of restoring enteral autonomy and reducing the need for PN support, and, sometimes, liver and/or intestinal transplantation or referral for such transplant. Access to specialized intestinal care and expert PN management may be challenging for patients who do not live close to intestinal rehabilitation programs. Novel approaches to provide specialized care for IF are necessary. The Expanding Community Healthcare Outcomes (ECHO®) model may be an innovative way to expand and support such expertise.
Dr Kelly Tappenden, Head of the Department of Nutrition at Univ of Illinois in Chicago spoke on the challenges in care for patients with IF and the resulting disparities in care. Dr. Kishore Iyer, Director of the Intestinal Rehabilitation and Transplant Program at Mount Sinai Hospital (New York, New York), is organizing the LIFT-ECHO (“Learn Intestinal Failure Tele-ECHO”). This intestinal failure ECHO is a collaboration among experts in nutrition, gastroenterology, surgery/transplant, patient advocacy, and insurers as well as the ECHO Institute (University of New Mexico, Albuquerque); with the American Society for Parenteral and Enteral Nutrition (ASPEN) as a continuing medical education (CME) provider.
By participating in LIFT-ECHO, clinicians may receive expert consultation and continuing education that may benefit the clinicians themselves, but it will also benefit individual patient care. The establishment of a LIFT-ECHO network, based on the ECHO® model of care to share “right knowledge at the right place and right time,” is expected to improve management of complex IF in the United States.
Join the movement! Be a part of the ECHO!!
Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to clinicians
Kishore Iyer, MBBS, FRCS (Eng), FACS
Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO webinar series
Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to consumers
Kishore Iyer, MBBS, FRCS (Eng), FACS
Click here to view recorded webinar.
Click here to view the slides.
Click here to LIFT-ECHO brochure.
Intestinal failure (IF) is a rare, chronic, debilitating disease defined as the reduction of intestinal function below the minimum necessary for the absorption of nutrients and water. Management of IF often involves parenteral nutrition (PN). Although considered a life-saving therapy, PN may be associated with life-threatening complications of liver disease or recurrent central-line associated bloodstream infections. Intestinal rehabilitation programs offer multidisciplinary management of IF with the goal of restoring enteral autonomy and reducing the need for PN support, and, sometimes, liver and/or intestinal transplantation or referral for such transplant. Access to specialized intestinal care and expert PN management may be challenging for patients who do not live close to intestinal rehabilitation programs. Novel approaches to provide specialized care for IF are necessary. The Expanding Community Healthcare Outcomes (ECHO®) model may be an innovative way to expand and support such expertise.
Dr. Kishore Iyer, Director of the Intestinal Rehabilitation and Transplant Program at Mount Sinai Hospital (New York, New York), is organizing the LIFT-ECHO (“Learn Intestinal Failure Tele-ECHO”). This intestinal failure ECHO is a collaboration among experts in nutrition, gastroenterology, surgery/transplant, patient advocacy, and insurers as well as the ECHO Institute (University of New Mexico, Albuquerque); with the American Society for Parenteral and Enteral Nutrition (ASPEN) as a continuing medical education (CME) provider.
Even though LIFT-ECHO is a confidential academic setting and not open to patients, learn how you can get involved and have your clinician participate in the LIFT-ECHO Clinic and even get direct feedback on your case from a team of experts.
Practical Management of Home Tube Feeding
Cynthia Reddick, RD, CNSC
Click here to view the recorded webinar.
Click here to view the slides.
Click here to view Q&A Not Covered on the webinar.
Sometimes home tube feeding presents challenges that can interfere with a consumers relationship with their tube and tube feeding experience. This engaging presentation will review several common complications with tube feeding and tube site care that can be addressed with simple strategies and appropriate clinical guidance. Cynthia will illustrate best practice solutions in the form of case studies that review symptoms, possible causes, recommended solutions and strategies for prevention.
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Sponsored by
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Complications of Home Parenteral Nutrition: What to Do & How to Minimize
Darlene Kelly, MD, PhD
Ann Michalek, MD
Click here to view the recorded webinar.
Click here to view the slides.
While HPN is a life-sustaining therapy for patients with severe gastrointestinal disorders, it brings with it a host of potential complications. Because home parenteral nutrition (HPN) patients are living at home, management of acute complications is initiated by the patient and their caregiver. This webinar will discuss symptoms and signs, causes, immediate actions to be taken, prevention, and specific important points of the major complications that can occur with HPN.
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Sponsored by
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Drug Shortages: Focus on Parenteral Nutrition
Kathleen M. Gura, Pharm.D., BCNSP, FASHP, FPPAG, FASPEN
Click here to view the recorded webinar.
Pediatric Transition to Adult Care
Tom Jaksic, MD
Click here to view the recorded webinar.
Sponsored by
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Blenderized Tube Feeding
Lisa Epp, RDN, LD, CNSC
Click here to view the recorded webinar.
Click here to view the slides.
Click here to view Q&A Not Covered on the Video.
Blenderized tube feeding (BTF) is becoming a more popular option for tube fed patients, both adults and pediatrics. Lisa discusses prevalence of the use of BTF, as well as tools needed to blend at home and how to create homemade recipes. The premade whole food formulas (for both adults and pediatrics) are reviewed.
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Recent Advances in Vascular Access
Robert Lookstein, MD, RSIR, FAHA
Click here to view the recorded webinar.
Click here to view the slides.
Click here to view Q&A Not Covered on the Video.
| Sponsored by |
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Coping with the Holidays...and All That Eating!
Emma Tillman, Pharm.D., Ph.D., BCNSP, HPN Consumer
Click here to view the recorded webinar.
Click here to view the slides.
Click here to view Q&A Not Covered on the Video.
Dr. Tillman has been a HPN consumer for the past six years and has struggled with social eating in a food-centered world. During this webinar, she will share tips for navigating social situations around the holidays that involve food.
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Treatment Options for Gastroparesis
Thomas L. Abell, MD
Dr. Abell will share his 35 years of experience with gastroparesis patients, and the perspective gained from 100 patient focus groups. He will discuss the published work on the NIH Gastroparesis consortium, as well as current thoughts on the pathophysiology of gastroparesis and the gastroparesis like syndrome. He will conclude his presentation with a review of therapeutic options for these disorders.
Click here to view the recorded webinar.
Click here to view the slides.
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Traveling with IV Nutrition or Tube Feeding
Barbara Klinger (experienced traveler with IV nutrition)
Rick Davis (experienced traveler with tube feeding)
Susan Buckland, TSA
Click here to view the recorded webinar.
Click here to view the Tube Feeding Traveling Tips handout.
Click here to view the slides on IV Nutrition Traveling Tips.
Click here to view the slides with Advice from the Transportation Security Administration (TSA)
Click here to view Q&A Not Covered on the Video.
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Short Bowel Syndrome—Diet, Hydration, and Treatment
Laura Matarese, PhD, RDN, LDN, CNSC, FADA, FASPEN, FAND
Doug Seidner, MD, AGAF, FACG, FASPEN, CNSC
Short bowel syndrome can have severe effects on absorption, overall health and quality of life. But many of the symptoms can be minimized with the use of diet modification, hydration techniques as well as medical and surgical treatments. This webinar will cover the etiology of short bowel syndrome, metabolic effects and methods to treat.
Click here to view the recorded webinar.
Click here for a copy of Dr. Matarese's slides, and Dr. Seidner's slides.
Click here to read the Questions & Answers
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Coping Skills: Tools to Help You Live More Fully
Donna Yadrich, MPA, CCRP
Mariah Abercrombie, MSW
Develop the skill set you need to successfully navigate the ups and downs, and unpredictable nature of chronic illness and nutrition therapy.
Click here to view the recorded webinar.
Additional information mentioned in the webinar: People First Language, Family Voices, Coping Resources, Traveling with HPN/HEN
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Notes from a Plumber’s Helper— Clogs I Have Known (in Feeding Tubes)
Mark Klang, MS, RPh, BCNSP, PhD
Learn about: Nature of the beast, Sticky messes, Slow movers and more!
Click here to view a recording of the presentation and here to view the Supplemental ENFit Q&A session.
Click here for a copy of the slides to print.
Additional information on administering medications in a feeding tube.
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Harnessing the Power of Social Media
Jeff Fairbanks
Learn how to share your stories, safely and effectively, from social media guru and Oley member, Jeff Fairbanks. He will also provide advice on avoiding pitfalls and protecting your privacy. You can use this knowledge to help Oley spread awareness during Feeding Tube Awareness Week (February 6 to 10, 2017) and HPN Awareness Week (August 7 to 11, 2017).
Click here to view the recorded webinar.
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Updated 9/17/18
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