Oley Foundation Webinars - Oley Foundation

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Oley Foundation Webinars

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“I really want to thank Oley for the

webinars I have attended this year.

As a mom caregiver, it has helped

with perspective and understanding

of my son’s [diagnosis]."

—Bonnie F.

Oley Webinars

Great opportunity to learn without leaving your home
Free of charge (we do not offer CEU's at this time)
Recorded for future viewing
Watch for updates

Interested in sponsoring a webinar? Click here.

Quick Links

Psychosocial/Coping
HEN (Tube Feeding)
HPN (IV Nutrition)
Intestinal Failure
Pediatric Care/Resources for Parents

Upcoming Webinars

No webinars scheduled at this time.

Psychosocial/Coping

"You Need Self-Care!": What Can I Do to Cope with Being a Caregiver to a Loved One on HPEN?

Tiffany Taft, PsyD, MIS

Research Assistant Professor, Director of Psychogastroenterology Research

Division of Gastroenterology & Hepatology; Northwestern University Feinberg School of Medicine

Click here to view recorded webinar.

Click here to view the slides.

"You Should Totally Meditate!": Realistic, Effective Strategies to Cope with Day-to-Day Life with HPEN

Tiffany Taft, PsyD, MIS

Research Assistant Professor, Director of Psychogastroenterology Research

Division of Gastroenterology & Hepatology; Northwestern University Feinberg School of Medicine

Click here to view recorded webinar.

Click here to view the slides.

Coping with the Holidays...and All That Eating!

Emma Tillman, Pharm.D., Ph.D., BCNSP, HPN Consumer

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the Video.

Dr. Tillman has been a HPN consumer for the past six years and has struggled with social eating in a food-centered world. During this webinar, she will share tips for navigating social situations around the holidays that involve food.

Sponsored by

Coping Skills: Tools to Help You Live More Fully

Donna Yadrich, MPA, CCRP

Mariah Abercrombie, MSW

Develop the skill set you need to successfully navigate the ups and downs, and unpredictable nature of chronic illness and nutrition therapy.

Click here to view the recorded webinar.

Additional information mentioned in the webinar: People First Language, Family Voices, Coping Resources, Traveling with HPN/HEN

Sponsored by

Harnessing the Power of Social Media

Jeff Fairbanks

Learn how to share your stories, safely and effectively, from social media guru and Oley member, Jeff Fairbanks. He will also provide advice on avoiding pitfalls and protecting your privacy. You can use this knowledge to help Oley spread awareness during Feeding Tube Awareness Week (February 6 to 10, 2017) and HPN Awareness Week (August 7 to 11, 2017).

Click here to view the recorded webinar.

Sponsored by

HEN (Tube Feeding)

Practical Management of Home Tube Feeding

Cynthia Reddick, RD, CNSC

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the webinar.

Sometimes home tube feeding presents challenges that can interfere with a consumers relationship with their tube and tube feeding experience. This engaging presentation will review several common complications with tube feeding and tube site care that can be addressed with simple strategies and appropriate clinical guidance. Cynthia will illustrate best practice solutions in the form of case studies that review symptoms, possible causes, recommended solutions and strategies for prevention.

Sponsored by

Blenderized Tube Feeding

Lisa Epp, RDN, LD, CNSC

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the Video.

Blenderized tube feeding (BTF) is becoming a more popular option for tube fed patients, both adults and pediatrics. Lisa discusses prevalence of the use of BTF, as well as tools needed to blend at home and how to create homemade recipes. The premade whole food formulas (for both adults and pediatrics) are reviewed.

Sponsored by

Traveling with IV Nutrition or Tube Feeding

Barbara Klinger (experienced traveler with IV nutrition)

Rick Davis (experienced traveler with tube feeding)

Susan Buckland, TSA

Click here to view the recorded webinar.

Click here to view the Tube Feeding Traveling Tips handout.

Click here to view the slides on IV Nutrition Traveling Tips.

Click here to view the slides with Advice from the Transportation Security Administration (TSA)

Click here to view Q&A Not Covered on the Video.

Sponsored by

Notes from a Plumber’s Helper— Clogs I Have Known (in Feeding Tubes)

Mark Klang, MS, RPh, BCNSP, PhD

Learn about: Nature of the beast, Sticky messes, Slow movers and more!

Click here to view a recording of the presentation and here to view the Supplemental ENFit Q&A session.

Click here for a copy of the slides to print.

Additional information on administering medications in a feeding tube.

Sponsored by

HPN (IV Nutrition)

Complications of Home Parenteral Nutrition: What to Do & How to Minimize

Darlene Kelly, MD, PhD

Ann Michalek, MD

Click here to view the recorded webinar.

Click here to view the slides.

While HPN is a life-sustaining therapy for patients with severe gastrointestinal disorders, it brings with it a host of potential complications. Because home parenteral nutrition (HPN) patients are living at home, management of acute complications is initiated by the patient and their caregiver. This webinar will discuss symptoms and signs, causes, immediate actions to be taken, prevention, and specific important points of the major complications that can occur with HPN.

Sponsored by

Drug Shortages: Focus on Parenteral Nutrition

Kathleen M. Gura, Pharm.D., BCNSP, FASHP, FPPAG, FASPEN

Click here to view the recorded webinar.

Recent Advances in Vascular Access

Robert Lookstein, MD, RSIR, FAHA

Click here to view the recorded webinar.

Click here to view the slides.

Click here to view Q&A Not Covered on the Video.

Sponsored by

Traveling with IV Nutrition or Tube Feeding

Barbara Klinger (experienced traveler with IV nutrition)

Rick Davis (experienced traveler with tube feeding)

Susan Buckland, TSA

Click here to view the recorded webinar.

Click here to view the Tube Feeding Traveling Tips handout.

Click here to view the slides on IV Nutrition Traveling Tips.

Click here to view the slides with Advice from the Transportation Security Administration (TSA)

Click here to view Q&A Not Covered on the Video.

Sponsored by

Intestinal Failure

Short Bowel Syndrome—Diet, Hydration, and Treatment

Laura Matarese, PhD, RDN, LDN, CNSC, FADA, FASPEN, FAND

Doug Seidner, MD, AGAF, FACG, FASPEN, CNSC

Short bowel syndrome can have severe effects on absorption, overall health and quality of life. But many of the symptoms can be minimized with the use of diet modification, hydration techniques as well as medical and surgical treatments. This webinar will cover the etiology of short bowel syndrome, metabolic effects and methods to treat.

Click here to view the recorded webinar.

Click here for a copy of Dr. Matarese's slides, and Dr. Seidner's slides.

Click here to read the Questions & Answers

Sponsored by

Treatment Options for Gastroparesis

Thomas L. Abell, MD

Dr. Abell will share his 35 years of experience with gastroparesis patients, and the perspective gained from 100 patient focus groups. He will discuss the published work on the NIH Gastroparesis consortium, as well as current thoughts on the pathophysiology of gastroparesis and the gastroparesis like syndrome. He will conclude his presentation with a review of therapeutic options for these disorders.

Click here to view the recorded webinar.

Click here to view the slides.

Sponsored by

Introduction to LIFT-ECHO: Learn Intestinal Failure TeleECHO - introduction to clinicians

Kishore Iyer, MBBS, FRCS (Eng), FACS

Kelly Tappenden, PhD, RD

Click here to view recorded webinar.