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To enrich the lives of those living with home IV nutrition or tube feeding through advocacy, education, community and innovation.
To enrich the lives of those living with home IV nutrition or tube feeding through advocacy, education, community and innovation.
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Oley supports patients and caregivers who rely on home parenteral and enteral nutrition (HPEN). Oley provides the patient voice and offers a bridge between the clinical community and those living with long-term nutrition support, helping to enhance patient care.
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Resources and Tools for Clinicians The Oley Tube Feeding Troubleshooting Guide, last updated in 2022, is a patient friendly resource for patients. You can check out the online version and also learn how to receive printed copies.
Dr. Winkler and team developed a tool in 2021 about Patient Reported Outcomes for HPN. This tool is designed to facilitate discussions between patients and their team about patient goals for HPN. (Reprinted with permission of publisher). Click the link to access the tool. Home Parenteral Nutrition Patient Reported Outcome Questionnaire (HPN-PROQ)
Led by Dr. Iyer, he and a team have developed the LiFT-ECHO didactic and case study deep dive into intestinal failure. While started in 2019, it is still successfully running and expanding in 2024. To learn more about the beginnings of this project, check out this link: ECHO IF Network: Introducing an Innovative Model for Education and Patient Care
Check out this vascular access preservation tool created by the Association for Vascular Access (AVA) to help reduce venous depletion, especially with central line use, based on guidelines. There's also a patient friendly version. Check out this link. Presenting a 2019 article written by Oley Staff, published in the Gastroenterology Clinics of North America Journal. It highlights the importance of community and support within the community.
Historic Perspective Articles
In 2013, Brenda Gray, PharmD, wrote the following article about posted with permission from NHIA's Infusion
magazine. It highlights parts of her journey from PharmD to nutrition support patient. (article posted with permission of the publisher)
Have you ever wanted to know what life was like for someone on nutrition support in the late 1990's, over 25 years ago? Check out these LifeLine Articles about living with long-term nutrition support. Home Parenteral Nutrition: The Consumer’s Perspective (1998) Living with Home Enteral Nutrition: An Exploration of the Physical & Psycho-Social Issues (1997)
Older Resources
Updated 9/26/24
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