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The Oley Foundation Privacy Policy


The Oley Foundation is very protective of members’ right to privacy. All consumer/patient information is held in the strictest of confidence. Consumer names, addresses, telephone numbers and other personal information will not be sold or shared with any company or organization for any reason. For safe-keeping the database is stored and protected within a computer firewall.

Conference registration information and market research participation is always confidential and also stored behind this firewall.

 

Mailing labels are prepared in-house and sent to our mailing service for the purpose of sending the newsletter and other Oley mailings only. We have been assured that this mailing service is also respectful of our members right to privacy.  Promotional emails are sent directly by Oley.

 

The landscape changes when you submit your name to a company or another organization for any reason. When an Oley member chooses to share contact information by, for example, responding to a (non-Oley or promotional) mailing, raffle, or survey, or filling out information at a company’s exhibit, you are, often unknowingly, giving them “permission” to contact you again. You may also be giving permission for companies to contact you by signing up for (non-Oley) newsletters or applying for (non-Oley) scholarships or grants. We should all be aware of what we are agreeing to when we sign up for anything!

 

The Oley Foundation will share a consumer’s name and contacting information with other consumers for networking purposes, but only after getting permission from the consumer first.

 

Consumers/caregivers who have provided their names and contacting information on this web site should not be contacted for solicitation, marketing or research purposes.

 

If you have any questions or concerns, please contact us at anytime (518) 262-5079 or bishopj@amc.edu.

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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