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Support the Medical Equity Act
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Support the Medical Nutrition Equity Act


The Oley Foundation is part of the Patients & Providers for Medical Nutrition Equity Coalition (see www.medicalnutritionequityfor.us). The coalition has been meeting with members of Congress to ask that they co-sponsor the Medical Nutrition Equity Act (S. 1194/H.R. 2587), which would provide public and private insurance coverage for medically necessary foods (including vitamins) for digestive and inherited metabolic disorders. Medically necessary foods would be covered under Medicaid, CHIP, Medicare, FEHBP, and private insurance if they are prescribed by the patient’s provider.


Insurance coverage for medically necessary food varies widely, and many people do not have coverage. Even if your enteral formula is covered by your insurance, please join us in advocating for passage of this legislation.

What You Can Do

Legislators say they need to hear from constituents before they will co-sponsor this bill. Please contact your members of Congress and ask them to become a co-sponsor before the end of August. Here are some easy steps you can take:

  • Call the DC office of your elected official.* A staff person will answer and ask where you live (to verify you are a constituent) and why you are calling. Tell them you want the Senator or Representative to co-sponsor the Medical Nutrition Equity Act (S. 1194/H.R. 2587).
  • Email your elected official. On the official’s website*, you will find a link to “contact Senator/Congressman X.” There will be a place to give your name and address (to verify you are a constituent) and another for you to write your message. If you are asked for a “message topic,” select “health care” or write in “Medical Nutrition Equity Act.” There will also be a space for you to write a message. Write a few sentences about why this bill is important to you and then make sure you include the “ask”: “Please co-sponsor the Medical Nutrition Equity Act (S. 1194/H.R. 2587).” If the “send a message” page will allow you to send attachments, send them one of the fact sheets from the coalition website** (under “For Policy Makers”).
  • Tweet at your members of Congress. Make sure you include their twitter handle (e.g., @senatorA) and the coalition hashtags: #MedicalNutritionEquityNow and #PPMNE.

Sample tweets include:

Co-sponsor the Medical Nutrition Equity Act today [elected official’s twitter handle–e.g., @senatorA] #MedicalNutritionEquityNow #PPMNE
Dear [elected official’s twitter handle–e.g., @senatorA], we need your support now as a co-sponsor on S. 1194/H.R 2587! #MedicalNutritionEquityNow #PPMNE

  • Submit your story to the coalition website.** It will be used in our efforts to get Congress to move the bill. Once your story is on the coalition’s website, you can print a nicely formatted copy and email or mail it to your congressional offices.
  • If your Senator or Representative is already co-sponsoring the bill (see coalition website, under “For Policy Makers”), contact them to say thank you for their support.
    Keep doing these activities until you see your elected officials listed as a co-sponsor on the coalition website. Ask your friends and family to reach out to their elected officials too. Remember, the squeaky wheel gets the grease!

Please share your efforts and stories with Oley (contact Lisa, metzgel@amc.edu or 518-262-5079). When there is a need in a specific region or an event planned in D.C., it is helpful to know who has been active on or is interested in this issue!


*Find contact information for your elected officials at www.medicalnutritionequityfor.us/join-us/#lookup, or by calling the Congressional switchboard at (202) 224-3121.
**Patients & Providers for Medical Nutrition Equity Coalition, www.medicalnutritionequityfor.us.


July/August LifelineLetter, 2018

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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