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HPN Awareness Week, October 15–19, 2018

New dates correspond with International HAN [Home Artificial Nutrition] Awareness Day (October 15).

 

What can you do to increase awareness?

  • Make a fashion statement and raise awareness. Buy your “I feed through my heart” super-power t-shirt and order your FREE buttons at www.oley.org/store.
  • Be in the movies! Send us your photo for a cameo appearance in an Oley video, or star in your own video and share it on the Oley YouTube channel. We’ll kick off HPN Awareness Week with our annual “Alive with HPN” video. Send us a photo of yourself, doing what you like to do (action photos welcome), along with a sentence or two telling everyone what you would like them to know about home parenteral nutrition (HPN).
  • Contact your local newspaper, or radio or TV station. Reach out if you are comfortable sharing your story. Share a noteworthy event in your life (an HPN anniversary, a graduation or wedding, etc.) around which they can build a story. There may be someone in your community who will be encouraged by reading an article about your experiences.
  • Wear your free HPN Awareness pin! Share them with friends, family, your clinicians...and help raise awareness!

Submit photos or videos to Lisa Metzger at metzgel@amc.edu or The Oley Foundation, Albany Medical Center MC-28, 99 Delaware Ave., Delmar, NY 12054, by October 5 (the sooner, the better!). For free pins, go to www.oley.org, e-mail Lisa, or call Oley at (518) 262-5079.

 

Give us a call if you’d like help with a press release.

 

Thanks to Baxter Healthcare for underwriting the pins and promotional materials for HPN Awareness Week 2018.

 

Quick Links

 In 2016, the Baxter team celebrated HPN Awareness Week with an event that included clinicians and consumers speaking about life on HPN.

 

HPN Awareness Week 2017

How did YOU celebrate HPN Awareness Week? Thank you to all of the Oley members who…


• Wore and shared HPN Awareness Week pins and t-shirts (we distributed  over 575 pins!) 


• Participated in webinars and consumer calls, sponsored by Oley and individual infusion companies (and thank you to those infusion companies!)


• Talked to friends and family members about things that are important to them, in relation to HPN


• Submitted press releases to their local media


• Shared photos for the “Alive with HPN” video


• Watched and shared the “Alive with HPN” videos on Oley’s YouTube channel or Facebook page, (visit www.youtube.com/TheOleyFoundation); the video was viewed over 1,000 times!


• Participated in discussions through the Oley forum, or Facebook or Twitter


• Donated to Oley, in honor of HPN Awareness Week

               

 Our thanks to Jasmine for sharing her creativity and t-shirt design! We are so excited to share this unique and clever design with you. Order yours now, in V-neck and crew neck, adult and child sizes. Proceeds will benefit the Oley Foundation.

 Many, many thanks to Baxter for sponsoring HPN Awareness Week. This is the fifth year we have had Baxter support for this event.


 

What HPN Means

Past HPN Awareness Weeks have raised discussions about the term "HPN" and what it means, both to you as individuals and in the broad sense. “HPN” stands for “home parenteral nutrition.” It is parenteral nutrition (a nutritional solution delivered intravenously, through the bloodstream) administered at home. Parenteral nutrition is also commonly known as “total parenteral nutrition,” “TPN,” and “hyperal” or “hyperalimentation.”


Why do we use “HPN” instead of “TPN”? We no longer refer to it as “total” parenteral nutrition because the solutions, although life sustaining, do not contain all of the nutrients that are present in our diets. Another reason we do not refer to it as “total” PN is that for many consumers it is not their sole source of nutrition. They may be taking some food by mouth or perhaps supplemental tube feeding.


Further, we want to acknowledge that the situations so many face when they have PN at home, vs. in the hospital, can be very different. We also hope to convey the very important message that people are living their lives at home on PN, and that if PN is a necessary part of your present and future, there are resources available to help you.

 

There are lots of ways to say it besides “HPN,” including “home PN” and “home TPN,” and we appreciate the insights and suggestions members have offered on the terms and how we use them. It’s an important and helpful dialogue.


On the Oley Facebook page, one mom wrote what “HPN” means to her: “To me HPN includes those who rely on IV nutrition for all their needs (TPN) and those who use IV nutrition to meet some of their nutritional needs, but may also eat or do tube feeds...it also implies that this is a way of life at HOME, which is huge for my daughter!”

 

What’s YOUR Alive with HPN story?

“At first I found it difficult to schedule my feedings around any kind of social activity, but now if I have something planned during my normal feeding cycle, I just put on my backpack and go. People hardly ever even notice it.... TPN has saved my life—made it possible to have a quality of life that I wouldn’t have had without it. I am happy to be ‘Alive with HPN.’”

—Candace, Oley-Inspire Forum


Updated 8/14/2018

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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