Feeding Tube Awareness Week, February 2-8, 2025

Download the 2025 Feeding Tube Awareness Toolkit 

Oley created this toolkit to make it easy for you to help raise awareness and normalize the reality of receiving nutrition in different ways. 

Event Schedule

We’ll be sharing more details about Feeding Tube Awareness Week soon, so stay tuned! In the meantime, scroll down to

see how you can get involved and help spread the word.

	Virtual Kidz Klub Sponsored by Avanos Medical, Inc.   Monday, February 3, 2025 @ 5:00 pm ET   Kidz Klub is a virtual opportunity for our younger members, ages 4-12 or teen in this developmental age range to get together with the support of their parent/guardian, work on a fun craft or activity, and meet other kids on nutrition support! Kidz Klub will be facilitated by Oley's Youth Program Coordinator, Jade Lusk.   REGISTER HERE
Stacey McSwine  Coverage and Payor Account Manager	Explore Product Coverage and Access Assistance Support with Nutricia Navigator Sponsored by Real Food Blends ®   Tuesday, February 4, 2025 @ 11:00 am ET   Explore Product Coverage and Access Assistance Support with Nutricia Navigator. Discover the key features and benefits of the Nutricia Navigator's assistance program, presented by Stacey McSwine, Coverage and Payor Account Manager. Learn how Nutricia Navigator can support you and gain valuable tips to make the most of this resource, sponsored by Real Food Blends ®.   REGISTER HERE
Jennifer Siedman Director of Community	Anticipatory Grief Discussion for Caregivers   Wednesday, February 5, 2025 @ 1:00 pm ET   Anticipatory grief, ambiguous and secondary losses are not often discussed, so parents don’t always understand what it is that they’re experiencing. Many experience these forms of grief alone, and feel guilty, or confused. Understanding that grief is a natural, and common part of caring for a medically complex child, can help the family go a long way towards finding balance, coping and strength. Join Jennifer Siedman, mother to a medically complex son and Director of Community Engagement at Courageous Parents Network in a discussion about grief, and strategies and tools for reframing.    REGISTER HERE
	Consumer Conversations Video Sponsored by Nestle Health Science   Premiering on Thursday, February 6, 2025 @ 6:00 pm ET   Hear from long-term enteral nutrition (EN) consumers as they share their personal journeys navigating the challenges of home enteral nutrition (HEN). This video provides valuable insights into self-advocacy, building support systems, and discovering ways to lead fulfilling lives despite complex medical needs. Join us as we explore their stories and learn how resilience and community support can transform the HEN experience. Don’t miss these inspiring perspectives!

Graphics for download to help support your message:

Right click on the below graphics and save, so you can share these images and facts to your own personal social networks. By using the hashtag #FeedingTubeAwarenessWeek on social media platforms, we can spread awareness and information about the importance of home enteral nutrition and other forms of nutrition support. Don't forget to tag your favorite feeding tube consumer, care partner, clinician and organization (@Oley) in your posts. 

** Click here to visit Oley's YouTube channel with previous Feeding Tube Awareness Week videos **

Here are some ways you can get involved during Feeding Tube Awareness Week: 

• Get vocal on social media. Share the facts and messaging from our toolkit above, or share your own story and 

  experiences, using the hashtag, #FeedingTubeAwarenessWeek. 

• Debunk misinformation. For example, hold educational discussions (formal or informal) at your school or place of work to share personal experiences and promote a better understanding. 

• Support those with a feeding tube. Feeding tubes provide a chance to get better and healthier but is it not always an easy road. Be compassionate and support their fight. 

• Head to oley.org/patientsprofiles to read about some of Oley's incredible members who are on tube feeding, and other types of nutrition support, and share the stories that you find meaningful! 

We are here to support you! Questions, contact info@oley.org or (518) 262-5079.

FEEDING TUBE AWARENESS WEEK® is a registered trademark of The Oley Foundation and is used here under license.