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Florida Ostomy/Nutrition Support Group
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Lynn Wolfson, Oley Ambassador


A newly formed local support group that brings together members of the United Ostomy Associations of America and the Oley Foundation met for the first time in February at Cleveland Clinic Florida in Weston. We shared a meal, and physicians from the colorectal surgery, gastroenterology, and urology departments welcomed us. Approximately forty-five people attended.


 Lynn speaking at the first

meeting.

Our second meeting was held in March, also at Cleveland Clinic Florida in Weston. The topic of this meeting was selecting the right foods at a restaurant. Everyone sat in groups according to whether or not they had an ostomy and the type of ostomy, and whether or not they had home parenteral or enteral nutrition (HPEN). I had collected menus from various types of local restaurants including Italian, Japanese, Venezuelan, and Colombian; one that served all kinds of salads; and a sports bar/restaurant. The groups discussed how they could evaluate which items on the menu would be best for them. Each group was assigned a dietitian to moderate the discussion. Then we voted on which restaurant we felt would offer something for everyone.

Duffy’s, a Florida sports bar/restaurant, won the vote, and in April we met there informally for an ostomate-tubie night out. Two of the dietitians joined us and helped us with deciding the right foods to order. It was nice to have the opportunity to get to know each other and discuss any ostomy or tube-related issues we may have.

The next meeting was in April at Delvecchio’s Pizzeria in Weston Town Center. The topic of this meeting was exercising for the ostomate or tubie. A physical therapist came and spoke about the benefits of exercising and answered questions. The YMCA distributed free five-day passes.

Our May meeting topic was pain management. An acupuncturist, a masseuse, and a chiropractor spoke to the group.

Our thanks to Comfort Medical, Convatec, Edgepark Medical Supplies, and Hollister for sponsoring the food at these meetings.

The Weston Ostomy Association/Tubie Group will meet the third Tuesday of the month from August through May at Delvecchio’s Pizzeria in Weston Town Center from 6:00 p.m. to 8:00 p.m. Please come and join us!


Please contact Lynn Wolfson (954-562-7417) or the Oley office (518-262-5079) for meeting information or with questions.


May/June LifelineLetter, 2018

updated 11/15/2018

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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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