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Cell Phone Stand Holds Syringe
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 Greyson, showing how he helps with
his gravity feeds.

               Greyson is a 7 1/2-year-old boy, full of life. He has eosinophilic esophagitis, also known as EOE. He was diagnosed when he was 1 1/2 years old. We learned he is allergic to a long list of foods. Until recently, we have been able to manage his EOE with diet and an occasional stint with oral steroids (called a slurry).

 

               As he got older, Greyson remained small for his age, but not too alarming. He would get tired easily and he started going on strike from some of his regular special foods. We tried many different feeding therapists over the years to help him eat other foods, but he just wouldn’t. Eventually he was eating just chips, tapioca bread, waffles that we made from a special mix, and hemp milk.

 

               He stopped growing. His thyroid stopped working and he wasn’t getting the nutrients he needed to grow. Even if he had started eating the foods that he could eat, it wouldn’t be enough to give him the nutrients he needed to grow. He was 7 but had stayed the size of a small 5-year-old for at least two years.

 

               We received a feeding tube in February 2019 and he just got the button [a low-profile feeding tube] last week. He has grown 1.5 inches and has more energy than before. He likes to do everything himself, which makes me nervous and results in lots of spills.

 

               We met a friend in the feeding tube community, David, who told us about the cell phone holder and how helpful it could be. We found one at the store fiVE and Below for just $5 and thought it was worth a try. The holder has allowed me to give Greyson his afternoon gravity feeds while he does his homework, and it allows him to participate in his feeds when he feels the need to be independent. I can see where this would be helpful with much younger kids who can’t sit still and/or when a parent needs a third hand, too.

 

—Staci P.


LifelineLetter, May/June 2019  

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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