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2019 Oley Foundation & University of Illinois at Chicago Conference

The Essentials of Home Parenteral and Enteral Nutrition: What Clinicians and Consumers Need to Know

June 21–24, 2019

Marriott Resort Lincolnshire (just outside Chicago)

QUICK LINKS

Presentation Videos NEW!

Evaluation NEW!

Conference Photos Coming soon!

2019 Oley/UI Health Conference App

CE Credit

Registration Packet (pdf)

Tube Feeding Workshop

Conference Program

Save the Dates Flyer

Support for Conference Travel

Walkathon Form

Exhibit/Sponsorships

Thank You!

Thank you for an outstanding annual conference chock full of learning, networking and fun! Check out the videos (links below) and slides are in the conference app (and soon will be on the Oley website). Photos will be posted as soon as we've received permission. Please give us your feedback. We will use it to plan the 2020 meeting.

Presentation Videos

Saturday morning & afternoon session

Sunday morning session

Monday morning session

Session Evalutions

Main sessions (Saturday, Sunday, Monday) and general questions

Tube Feeding Workshop

Breakout sessions (Sunday)

Register

Registration includes access to all educational sessions and the ability to claim CE credits. Registrants are responsible for their own hotel and transportation arrangements.

Adult consumers/family members: registration is free of charge.
Children/youth: registration is free of charge
Clinicians/members of industry: registration is $250 before 6/17; $300 June 17 or later.
Clinicians attending virtually for CE credit (view live streaming only, not attending in person): registration is $250 before 6/17; $300 June 17 or later.

NOTE: Anyone may watch the livestreaming or recorded sessions free of charge, and there is no need to register -- UNLESS you are looking for CE credit.

Conference Headquarters & Housing

Marriott Resort Lincolnshire

Additional rooms have been added to the Oley UI Health Conference General Attendee room block with the deadline for reserving extended until June 7! Rooms will be available on a first come first served basis so don’t delay. They will sell out again. Or call: (800) 228-9290

If you do not succeed in reserving a room, ask to be placed on a waiting list by calling the hotel directly, (847) 634-0100 requesting that the reservation team connect you with Dee Dee Chiang. Be sure to mention the Oley UI Health conference. Good luck.

The room rate was $131/night for single/double. No resort fee, and complimentary parking. Shuttle service offered within 5 mile radius. Beautiful grounds. Refrigerators are available.

Program
Friday, June 21
12:00 pm–5:00 pm		Early Registration
1:00 pm–4:00 pm		Ambassador Workshop/Volunteer Info Session
6:00 pm–7:00 pm		First-Time Conference Attendee Orientation
7:30 pm–9:30 pm		Welcome Reception/Awards Ceremony

Saturday, June 22		Program Streamed Live, 8:15am–12:15pm, 1:50pm–4:15pm (CE Credit available)
7:00 am		Continental Breakfast/Exhibit/Registration
8:00 am–8:10 am		Welcome, Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF; Joan Bishop
8:10 am–8:30 am		Getting the Patient Ready for a Life of Home Parenteral Nutrition, Ann Michalek, MD
8:30 am–8:50 am		Managing Electrolytes, Metals, and Minerals in Parenteral Nutrition, Manpreet Mundi, MD
8:50 am–9:10 am		Tapering Home Parenteral Nutrition to Never When Possible, Doug Seidner, MD, AGAF, FACG, CNSC
9:10 am–9:25 am		Panel Discussion (Q&A)
9:30 am–12:15 pm		*Alternative workshop for tube feeding consumers/caregivers. See description below.*
9:25 am–10:10 am		Hot Topics: HPN Research Prize Recipient Presentations
		• The Association between a Four-Oil Lipid Emulsion and Parenteral Nutrition Associated Liver Disease—Related Laboratory Values in Adult Patients Receiving Home Parenteral Nutrition, Heather Stanner, RD, LDN, CNSC
		• Safety and Effectiveness of Catheter Repair in Home Parenteral Nutrition, Saketh Reddy Velapati, MBBS
		• A New Diagnostic Tool for Rapid Detection of Bloodstream Infections Using Droplet Digital Polymerase Chain Reaction in Patients on Home Parenteral Nutrition, Yannick Wouters, MD
10:10 am–10:25 am		Break
10:25 am–10:45 am		Catheter-Related Complications: Identification and Treatment of Occlusions, Robert Carroll, MD
10:45 am–11:05 am		Catheter-Related Complications: Risk Factors, Prevention, and Management of Infections, Valeria Cohran, MD
11:05 am–11:20 am		Panel Discussion (Q&A)
11:20 am–11:40 am		Dietary and Medical Management of Short Bowel Syndrome: The Long and the Short of It, Kelly Tappenden, PhD, RD
11:40 am–12:00 pm		Identification and Management of Intestinal Failure-Associated Liver Disease (IFALD), Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF
12:00 pm–12:15 pm		Panel Discussion (Q&A)
12:15 pm–1:50 pm		Lunch/Exhibits
1:50 pm–2:10 pm		Indications for Bowel Lengthening/Tapering Procedure, Mario Spaggiari, MD
2:10 pm–2:30 pm		Indications for Intestinal Transplant and When to Refer, Enrico Benedetti, MD, FACS
2:30 pm–2:45 pm		Panel Discussion (Q&A)
2:45 pm–3:05 pm		Recognizing and Treating Dehydration with Rehydration, Ann Michalek, MD
3:05 pm–3:25 pm		Special Issues in Home Parenteral and Enteral Nutrition for Special Patients: Our Kids, Timothy Sentongo, MD
3:25 pm–3:45 pm		TBD
3:45 pm–4:00 pm		Panel Discussion (Q&A)
4:00 pm		Closing remarks
4:15 pm–5:15 pm		Wine, Cheese and Lemonade (faculty and attendees, children welcome)
5:15 pm–7:30 pm		Dinner on your own
7:30 pm		Oley Foundation Silent Auction

Sunday, June 23		Program Streamed Live, 8:30am–12:00pm (CE Credit available)
7:30 am		Continental Breakfast/Exhibits/Registration
8:30 am–8:40 am		Welcome back, Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF; Joan Bishop
8:40 am–9:00 am		Psychosocial Issues Related to Intestinal Failure, Tiffany Taft, PsyD
9:00 am–9:20 am		Stomal Care: Problems and Solutions, Jessica Salgado, RN, BSN, CWOCN
9:20 am–9:40 am		LIFT-ECHO, Kelly Tappenden, PhD, RD
9:40 am–10:00 am		Panel Discussion (Q&A)
10:00 am–10:20 am		Choosing the Right Tube for the Right Spot, Mark DeLegge, MD
10:20 am–10:40 am		Choosing the Right Enteral Formula, Carol Braunschweig, PhD, RD
10:40 am–11:00 am		Panel Discussion (Q&A)
11:00 am–12:00 pm		The Ultimate Goal—Living Well on HPEN, Hannah Jordon, Jack Leibee and Michael Sherels with Joan Bishop moderator
12:00 pm–2:30 pm		Lunch/Exhibits
2:30 pm–3:15 pm		Breakout Sessions (choose one from list below)
		• Skin/Wound Care: Problems and Solutions, Jessica Salgado, RN, BSN, CWOCN
		• Fluid and Electrolyte Management, Manpreet Mundi, MD
		• Minimizing Catheter Complications, Robert Carroll, MD
		• Intestinal Lengthening/Tapering, Mario Spaggiari, MD
		• Navigating Relationships While on HPEN, Swapna Kakani, John Mahalchak, Emily Parks, Celia Fairbanks, and others
		• Home Blended Enteral Formula: What You’ll Need to Know, Lisa Epp, RDN, CNSC, LD
		• Identifying and Managing Intestinal Failure–Related Liver Disease, Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF, Kathleen Gura, PharmD, BCNSP, FASHP, FPPAG
		• Navigating the TSA - Alexis Turner; Maureen Daly
3:25 pm–4:10 pm		Breakout Sessions (choose one from the list below)
		• Skin/Wound Care: Problems and Solutions, Jessica Salgado, RN, BSN, CWOCN
		• Minimizing Catheter Complications, Robert Carroll, MD
		• When to Refer for Intestinal Transplant, Enrico Benedetti, MD, FACS
		• What Tube Is the Right One for You or Your Patient?, Mark DeLegge, MD, Cynthia Reddick, RD, CNSC
		• Managing Pediatric HPEN, Timothy Sentongo, MD
		• Tapering Parenteral Nutrition to Never?, Doug Seidner, MD, AGAF, FACG, CNSC
		• Home Blended Enteral Formula: What You’ll Need to Know, Lisa Epp, RDN, CNSC, LD
		• The Importance of the Patient’s Voice, Alicia Wilson (pt), Amy Stone, RN, BSN, CRNI, VA-BC
		• Coping, for Consumers, Tiffany Taft, PsyD
4:20 pm–5:05 pm		Breakout Sessions (choose one from the list below)
		• Hot Topics: HPN Research Prize Recipient Discussions, Heather Stanner, RD, LDN, CNSC; Saketh Reddy Velapati, MBBS; Yannick Wouters, MD
		• Choosing the Right Enteral Formula, Carol Braunschweig, PhD, RD
		• Navigating Relationships While on HPEN, Swapna Kakani, John Mahalchak, Emily Parks, Celia Fairbanks, and others
		• Tapering Parenteral Nutrition to Never?, Doug Seidner, MD, AGAF, FACG, CNSC
		• Can We Improve Absorption with GLP-2 Growth Factors?, Ann Michalek, MD
		• Reaching Your Ultimate Goal, Jack Leibee, Michael Sherels, Hannah Jordan
		• Coping, for Caregivers, Tiffany Taft, PsyD
		• Minimizing Enteral Tube Complications, Mark DeLegge, MD; Cynthia Reddick, RD, CNSC
8:00 pm–10:00 pm		Jammin’ Jammies

Monday, June 24
		Oley’s Mixed Bag
9:30 am–9:50 am		• Minimizing Diarrhea, Darlene Kelly, MD, PhD
10:00 am–10:20 am		• Expanding Options for the Treatment of Short Bowel Syndrome, Russell Merritt, MD, PhD
10:30 am–10:50 am		• Navigating the Transition to New Enteral Connectors, Beth Lyman, RN, MSN, CNSC
11:00 am–11:45 am		• Have Your Lingering Questions Answered!
11:45 am–Noon		In Loving Memory
12:15 pm–1:00 pm		Walkathon
1:00 pm–4:00 pm		Oley picnic

Tube Feeding Workshop -- NEW!

The Tube Feeding Workshop will be held Saturday morning, June 22, from 9:30 a.m. to 12:15 p.m., in the Great Lakes IV room. Topics to be covered include: avoiding complications, types of tubes, keeping tubes clean, medication administration, and tips for better living. The workshop sessions do not qualify for CE credits, will not be streamed or recorded, and overlaps with the main session.

Medical Support—Keeping Consumers Safe!

Local hospitals will be notified that HPEN consumers are in town. Let your homecare company know you are traveling. If your homecare company is unable to assist you in the case of an infusion emergency during the conference (if you forget something, have a bag break, etc.), emergency infusion backup support and telephonic nursing/pharmacy support will be available courtesy of Coram/CVS specialty infusion services.

Shipping HPEN Supplies

Separate items that need refrigeration and mark these boxes accordingly. All deliveries should be labeled as shown below. Storage is limited, so please arrange to have your supplies arrive no earlier than three days prior to your arrival. Hotel handling fees have been waived for guests’ medical supplies.

Marriott Resort Lincolnshire
Attn: Your Name, Guest
         Hold for Arrival 6/___/19
10 Marriott Drive
Lincolnshire, IL 60069

Re: Personal Medical Supplies, Oley Conference
      Needs Refrigeration (if applicable)
      Box ___ of ___

Kidz Klub

Kidz Klub is designed to provide supervised entertainment for kids while parents attend educational sessions. Age-appropriate activities will be offered. Kids must be registered online by June 14 to participate.
Note that we cannot provide medical care; hook up, disconnect, or troubleshoot infusions or tube feeding; change ostomy bags; administer medications; and so on.

Ambassador Workshop/Volunteer Info Session

Planned for “official” Oley volunteers, but open to any consumer or caregiver interested in serving Oley. Learn how to share your time and talents to advance our mission. Contact Lisa at metzgel@amc.edu with questions.

Silent Auction Items Needed

Let’s make this event the best ever! Popular items include: small electronics; jewelry; handmade pieces; games/toys; gift certificates. Bring contributions with you or email marywootten.oley@gmail.com to make shipping arrangements.

Jammin’ Jammies

A chaperoned activity is planned for children ages 7+ Sunday evening! A Dog’s Way Home (PG) will be shown, and kids can create fun memories with friends in our photo booth! Parents are welcome.

Walkathon Raises Funds, Awareness

Click here for a walkathon registration sheet. T-shirts will be provided to walkers with a suggested minimum donation of $20. Start getting pledges today! Funds raised help support all Oley programs.

Market Research

Share your experience with tube feeding and/or IV nutrition to help improve the next generation of products. Be sure your membership profile on www.oley.org is up-to-date! We issue invitations based on the information you’ve provided. Contact Cathy at (518) 262-5079 or harrinc@amc.edu if you have questions about updating your profile. Opportunities are available to qualified participants on a first-come, first-served basis.

Getting to the Marriott Resort Lincolnshire

Chicago O’Hare International Airport (ORD) is 18.4 miles away.
Taxi fares typically range $56–$86; Uber $32 and up

Midway International Airoport (MDW) is 40 miles away.
Taxi fares typically range $130–$160; Uber $59 and up

Travel Grants for Conference Attendees!

Thanks to generous donors there are a limited number of $600 travel scholarships available for consumers or family members who care for them (one per family). Priority will be given to applicants who will be attending the Oley annual conference for the first time, and Oley Ambassadors.

To apply, please send Cathy (harrinc@amc.edu or The Oley Foundation, Albany Medical Center MC-28, 99 Delaware Avenue, Delmar, NY 12054) two paragraphs describing how you believe attending the conference will affect your life and how you plan to share information learned at the conference back home.

If there are still grants available, after May 20 we will consider applications from consumers and caregivers who have attended a conference before. To be placed on this waiting list, submit your paragraphs as outlined above and indicate (in the subject line, if sent by email), that you’d like to be placed on the list.

Applicants should not be receiving any other financial assistance for travel and/or lodging expenses related to attending the conference. Travel grants are limited to one per family/household. Travel must be completed and receipts received by Oley before reimbursement can be made.

Other ideas to help with travel, and details on travel grants are available at www.oley.org/SupportForConfTravel or email harrinc@amc.edu.

Course Directors

Joan Bishop, Executive Director, Oley Foundation
Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF, Professor of Clinical Surgery, Medical Director, Intestinal Rehabilitation and Transplant Center, University of Illinois at Chicago

UI Health/UIC Faculty (Tentative-updated 5.10.19)

Enrico Benedetti, MD, FACS, Professor of Surgery, Warren H. Cole Chair of Surgery
Carol Braunschweig, PhD, RD, Professor, Department of Kinesiology and Nutrition
Robert Carroll, MD, Professor of Medicine, Medical Director, Intestinal Transplant Program
Jessica Salgado, RN, BSN, CWOCN, Ostomy Care Nurse
Mario Spaggiari, MD, Assistant Professor of Surgery
Tiffany Taft, PsyD, Assistant Research Professor, Northwestern University Feinberg School of Medicine
Kelly Tappenden, PhD, RD, Professor and Chair, Department of Kinesiology and Nutrition

Outside Faculty (Tentative-updated 5.10.19)

Valeria Cohran, MD, Associate Professor of Pediatrics, Medical Director, Intestinal Rehabilitation and Transplant Center, Lurie Children’s Hospital
Mark DeLegge, MD, Professor of Medicine, Medical University of South Carolina
Lisa Epp, RDN, CNSC, LD, Clinical Dietitian and Instructor in Nutrition, Mayo Clinic Rochester
Celia Fairbanks, HPEN Consumer
Kathleen Gura, PharmD, BCNSP, FASHP, FPPAG, Pharmacy Clinical Research Program Manager, Boston Children’s Hospital; Pharmacy Assistant Professor of Pediatrics, Harvard Medical School
Hannah Jordan, HEN Consumer
Swapna Kakani, HPEN Consumer
Darlene Kelly, MD, PhD, Science and Medicine Advisor, The Oley Foundation
Jack Leibee, HPN Consumer
John Mahalchak, HPEN Consumer, Oley Ambassador
Ann Michalek, MD, Associate Clinical Professor, Albany Medical College
Manpreet Mundi, MD, Associate Professor of Medicine, Mayo Clinic Rochester
Emily Parks, HPEN Consumer, Oley Ambassador
Cynthia Reddick, RD, CNSC, National Nutrition Manager for Tube Feeding, Coram CVS/specialty infusion services
Doug Seidner, MD, AGAF, FACG, CNSC, Associate Professor of Medicine, Director of the Center for Human Nutrition, Vanderbilt University
Timothy Sentongo, MD, Associate Professor of Pediatrics, University of Chicago
Michael Sherels, HPN Consumer
Heather Stanner, RD, LDN, CNSC, Corporate Dietitian, Infusion Nutrition Specialist, Coram CVS/specialty infusion services
Amy Stone, BSN, RN, CRNI, IgCN, VA-BC, Director At Large, Board of Directors, Association for Vascular Access
Saketh Reddy Velapati, MBBS, Research Fellow, Department of Endocrinology at Mayo Clinic, Rochester, MN
Yannick Wouters, MD, PhD Student; Radboud University Medical Center, Netherlands

CE Details

Saturday and Sunday morning sessions will be streamed live. Clinicians attending virtually and applying for CE’s must register and pay. This list will be used to communicate instructions for claiming your credits.

Consumers/caregivers intending to apply for CE’s should contact harrinc@amc.edu

Target Audience
This activity is designed for clinicians that care for patients that require home parenteral or enteral nutrition

Learning Objectives
At the end of this activity, learners should be able to:
• Describe the care of the patient that requires home parenteral nutrition (HPN).
• Identify complications that develop in the patient that receives HPN and their treatment.
• Explain the role of non-transplant and transplant surgery in the patient that requires HPN.
• Describe the care of the patient that requires home enteral nutrition (HEN).
• List the types of feeding tubes and their indications for the patient that requires HEN.
• Describe the various feeding formulas used for HEN and their indications.

Activity Goal
This activity is designed to address the following core and team competencies: Patient Care, Medical Knowledge, Professionalism, and Employ Evidence-based Practices.

Accreditation
In support of improving patient care, this activity has been planned and implemented by Ciné-Med and The Oley Foundation. Ciné-Med is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Physicians: Ciné-Med designates this live activity for a maximum of 12.5 AMA PRA Category I Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurses: This educational activity is approved for 12.5 contact hours for nurses.

Pharmacists: This activity has been accredited for 1.25 CEU (12.5 credit hours) of continuing education credit.

Dietitians: Ciné-Med is a Continuing Professional Education (CPE) Accredited Provider with the Commission on Dietetic Registration (CDR). Registered dietitians (RDs) and dietetic technicians, registered (DTRs) will receive 12.5 continuing professional education units (CPEUs) for completion of this program (146662).

All other healthcare professionals will receive a Certificate of Participation. For information on the applicability and acceptance of Certificates of Participation for activities designated for AMA PRA Category 1 Credits™, consult your professional licensing board.

Credit Tracking
Attendees wishing to claim a Certificate of Credit or complete the online Evaluation, please use the following URL: https://cine-med.com/certificates/oley2019

Certificates will be emailed 7–10 business days post-meeting to those submitting a request.

Commercial Support
This activity is being supported in part by educational grants from:
Shire, now a part of Takeda Pharmaceutical
B. Braun Medical