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Oley Annual Conference
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2019 Oley Foundation & University of Illinois at Chicago Conference

The Essentials of Home Parenteral and Enteral Nutrition: What Clinicians and Consumers Need to Know

June 21–24, 2019

Marriott Resort Lincolnshire (just outside Chicago)


Registration Packet (pdf) Click for a printable packet, registration will open next week!

Save the Dates Flyer

Support for Conference Travel

Walkathon Form

Exhibit/Sponsorship Information



Registration includes access to all educational sessions and the ability to claim CE credits. Registrants are responsible for their own hotel and transportation arrangements.

  • Consumers/families: registration is free of charge.
  • Professionals/members of industry: registration is $250 before 6/17; $300 June 17 or later.  

Conference Headquarters & Housing

Marriott Resort Lincolnshire

    or call 800.228.9290 and mention you are with the Oley/UIC conference.


The room rate is $131/night for single/double, is open through May 30, and will be honored three days pre and post conference, based on availability. No resort fee, and complimentary parking. Shuttle service offered within 5 mile radius. Beautiful grounds. Refrigerators are available. Book early; we’ve sold out in past years.




 Friday, June 21    
 12:00 pm–5:00 pm          Early Registration
 1:00 pm–4:00 pm    Ambassador Workshop/Volunteer Info Session
 6:00 pm–7:00 pm    First-Time Conference Attendee Orientation
 7:30 pm–9:30 pm    Welcome Reception/Awards Ceremony
Saturday, June 22
 7:00 am    Continental Breakfast/Exhibit/Registration
 8:00 am–8:10 am    Welcome, Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF; Joan Bishop
 8:10 am–8:30 am    Getting the Patient Ready for a Life of Home Parenteral Nutrition, Ann Michalek, MD
 8:30 am–8:50 am    Managing Electrolytes, Metals, and Minerals in Parenteral Nutrition, Manpreet Mundi, MD
 8:50 am–9:10 am    Tapering Home Parenteral Nutrition to Never When Possible, Doug Seidner, MD, AGAF, FACG, CNSC
 9:10 am–9:25 am    Panel Discussion (Q&A)
 9:25 am–10:10 am    Hot Topics: HPN Research Prize Recipient Presentations
 10:10 am–10:25 am    Break 
 10:25 am–10:45 am    Catheter-Related Complications: Identification and Treatment of Occlusions, Robert Carroll, MD
 10:45 am–11:05 am    Catheter-Related Complications: Risk Factors, Prevention, and Management of Infections, Valeria Cohran, MD
 11:05 am–11:20 am    Panel Discussion (Q&A)
 11:20 am–11:40 am    Dietary and Medical Management of Short Bowel Syndrome:  The Long and the Short of It, Kelly Tappenden, PhD, RD
 11:40 am–12:00 pm    Identification and Management of Intestinal Failure-Associated Liver Disease (IFALD), Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF
 12:00 pm–12:15 pm    Panel Discussion (Q&A)
 12:15 pm–1:50 pm    Lunch/Exhibits
 1:50 pm–2:10 pm    Indications for Bowel Lengthening/Tapering Procedure, Mario Spaggiari, MD
 2:10 pm–2:30 pm    Indications for Intestinal Transplant and When to Refer, Enrico Benedetti, MD, FACS
 2:30 pm–2:45 pm    Panel Discussion (Q&A)
 2:45 pm–3:05 pm    Recognizing and Treating Dehydration with Rehydration, Jane Balint, MD
 3:05 pm–3:25 pm    Special Issues in Home Parenteral and Enteral Nutrition for Special Patients: Our Kids, Timothy Sentongo, MD
 3:25 pm–3:45 pm    
 Psychosocial Issues Related to Intestinal Failure, TBA
 3:45 pm–4:00 pm    Panel Discussion (Q&A)
 4:00 pm    Closing remarks
 4:15 pm–5:15 pm    Wine and Cheese (faculty and attendees)
 5:15 pm–7:30 pm    Dinner on your own
 7:30 pm    Oley Foundation Silent Auction
 Sunday, June 23    
 7:30 am    Continental Breakfast/Exhibits/Registration
 8:30 am–8:40 am    Welcome back, Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF; Joan Bishop
 8:40 am–9:00 am    Quality of Life Issues, TBA
 9:00 am–9:20 am   Stomal Care: Problems and Solutions, Jessica Salgado, RN, BSN, CWOCN 
 9:20 am–9:40 am    LIFT-ECHO, Kelly Tappenden, PhD, RD
 9:40 am–10:00 am    Panel Discussion (Q&A)
 10:00 am–10:20 am    Choosing the Right Tube for the Right Spot, Mark Delegge, MD
 10:20 am–10:40 am    Choosing the Right Enteral Formula, Carol Braunschweig, PhD, RD
 10:40 am–11:00 am    Panel Discussion (Q&A)
 11:00 am–12:00 pm    The Ultimate Goal—Living Well on HPEN, Joan Bishop, moderator
 12:00 pm–2:30 pm    Lunch/Exhibits
 2:30 pm–3:15 pm    Breakout Sessions (see topics below)
 3:25 pm–4:10 pm    Breakout Sessions (see topics below)
 4:20 pm–5:05 pm    Breakout Sessions (see topics below)
     Topics will include:
  • Skin and Wound Care
  • Fluid and Electrolyte Management
  • Minimizing Catheter Complications
  • Hot Topics
  • Intestinal Lengthening Surgeries and Transplant
  • Enteral Feeding Tubes
  • Enteral Formulas
  • Managing Pediatric HPEN
  • Navigating Relationships While on HPEN
  • Writing Home Parenteral Nutrition Prescriptions
  • Tapering Parenteral Nutrition
  • Growth Factors  
  • Minimizing Diarrhea
  • Living Well on HPEN
  • Home Blending Tube Feeding Formula
  • Intestinal Failure-Associated Liver Disease
  • Minimizing Enteral Tube Complications        
  • Reimbursement Issues
 8:00 pm–10:00 pm    Jammin’ Jammies
Monday, June 24
 10:00 am–12:00 pm    Oley’s Mixed Bag
 12:15 pm–1:00 pm    Walkathon
 1:00 pm–4:00 pm    Oley picnic



Medical Support—Keeping Consumers Safe!

Local hospitals will be notified that HPEN consumers are in town. Let your homecare company know you are traveling. If your homecare company is unable to assist you in the case of an infusion emergency during the conference (if you forget something, have a bag break, etc.), emergency infusion backup support and telephonic nursing/pharmacy support will be available courtesy of Coram/CVS specialty infusion services.

Shipping HPEN Supplies

Separate items that need refrigeration and mark these boxes accordingly. All deliveries should be labeled as shown below. Storage is limited, so please arrange to have your supplies arrive no earlier than three days prior to your arrival. Hotel handling fees have been waived for guests’ medical supplies.

Marriott Resort Lincolnshire
Attn: Your Name, Guest
         Hold for Arrival 6/___/19 
10 Marriott Drive
Lincolnshire, IL 60069

Re: Personal Medical Supplies, Oley Conference
      Needs Refrigeration (if applicable)
      Box ___ of ___ 

Kidz Klub

Kidz Klub is designed to provide supervised entertainment for kids while parents attend educational sessions. Age-appropriate activities will be offered. Kids must be registered online by June 14 to participate.
Note that we cannot provide medical care; hook up, disconnect, or troubleshoot infusions or tube feeding; change ostomy bags; administer medications; and so on.

Ambassador Workshop/Volunteer Info Session

Planned for “official” Oley volunteers, but open to any consumer or caregiver interested in serving Oley. Learn how to share your time and talents to advance our mission. Contact Lisa at metzgel@amc.edu with questions.

Silent Auction Items Needed

Let’s make this event the best ever! Popular items include: small electronics; jewelry; handmade pieces; games/toys; gift certificates. Bring contributions with you or email marywootten.oley@gmail.com to make shipping arrangements.

Jammin’ Jammies

A chaperoned activity is planned for children ages 7+ Sunday evening! A Dog’s Way Home (PG) will be shown, and kids can create fun memories with friends in our photo booth! Parents are welcome.

Walkathon Raises Funds, Awareness

Click here for a walkathon registration sheet. T-shirts will be provided to walkers with a suggested minimum donation of $20. Start getting pledges today! Funds raised help support all Oley programs. 

Market Research

Share your experience with tube feeding and/or IV nutrition to help improve the next generation of products. Be sure your membership profile on www.oley.org is up-to-date! We issue invitations based on the information you’ve provided. Contact Cathy at (518) 262-5079 or harrinc@amc.edu if you have questions about updating your profile. Opportunities are available to qualified participants on a first-come, first-served basis.

Getting to the Marriott Resort Lincolnshire

  • Chicago O’Hare International Airport (ORD) is 18.4 miles away.
    Taxi fares typically range $56–$86; Uber $32 and up
  • Midway International Airoport (MDW) is 40 miles away.
    Taxi fares typically range $130–$160; Uber $59 and up

Travel Grants for Conference Attendees!

Thanks to generous donors there are a limited number of $600 travel scholarships available for consumers or family members who care for them (one per family). Priority will be given to applicants who will be attending the Oley annual conference for the first time, and Oley Ambassadors.

To apply, please send Cathy (harrinc@amc.edu or The Oley Foundation, Albany Medical Center MC-28, 99 Delaware Avenue, Delmar, NY 12054) two paragraphs describing how you believe attending the conference will affect your life and how you plan to share information learned at the conference back home.

If there are still grants available, after May 20 we will consider applications from consumers and caregivers who have attended a conference before. To be placed on this waiting list, submit your paragraphs as outlined above and indicate (in the subject line, if sent by email), that you’d like to be placed on the list.

Applicants should not be receiving any other financial assistance for travel and/or lodging expenses related to attending the conference. Travel grants are limited to one per family/household. Travel must be completed and receipts received by Oley before reimbursement can be made.

Other ideas to help with travel, and details on travel grants are available at www.oley.org/SupportForConfTravel or email harrinc@amc.edu.


Course Directors

  • Joan Bishop, Executive Director, Oley Foundation
  • Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF, Professor of Clinical Surgery, Medical Director, Intestinal Rehabilitation and Transplant Center, University of Illinois at Chicago

UI Health/UIC Faculty

  • Enrico Benedetti, MD, FACS, Professor of Surgery, Warren H. Cole Chair of Surgery
  • Carol Braunschweig, PhD, RD, Professor, Department of Kinesiology and Nutrition
  • Robert Carroll, MD, Professor of Medicine, Medical Director, Intestinal Transplant Program
  • Jessica Salgado, RN, BSN, CWOCN, Ostomy Care Nurse
  • Mario Spaggiari, MD, Assistant Professor of Surgery
  • Kelly Tappenden, PhD, RD, Professor and Chair, Department of Kinesiology and Nutrition

Outside Faculty

  • Jane Balint, MD, Former Associate Professor of Pediatrics, Nationwide Children’s Hospital, Ohio State University
  • Valeria Cohran, MD, Associate Professor of Pediatrics, Medical Director, Intestinal Rehabilitation and Transplant Center, Lurie Children’s Hospital
  • Mark Delegge, MD, Professor of Medicine, Medical University of South Carolina
  • Lisa Epp, RDN, LD, Clinical Dietitian and Instructor in Nutrition, Mayo Clinic Rochester
  • Celia Fairbanks, HPEN Consumer
  • Hannah Jordan, HEN Consumer
  • Swapna Kakani, HPEN Consumer
  • Darlene Kelly, MD, PhD, Science and Medicine Advisor, The Oley Foundation
  • John Mahalchak, HPEN Consumer, Oley Ambassador
  • Ann Michalek, MD, Associate Clinical Professor, Albany Medical College
  • Manpreet Mundi, MD, Associate Professor of Medicine, Mayo Clinic Rochester
  • Emily Parks, HPEN Consumer, Oley Ambassador
  • Doug Seidner, MD, AGAF, FACG, CNSC, Associate Professor of Medicine, Director of the Center for Human Nutrition, Vanderbilt University
  • Timothy Sentongo, MD, Associate Professor of Pediatrics, University of Chicago
  • Amy Stone, BSN, RN, CRNI, IgCN, VA-BC, Director At Large, Board of Directors, Association for Vascular Access

CE Details—For Clinicians

Target Audience
This activity is designed for clinicians that care for patients that require home parenteral or enteral nutrition
Learning Objectives
At the end of this activity, learners should be able to:
• Describe the care of the patient that requires home parenteral nutrition (HPN).
• Identify complications that develop in the patient that receives HPN and their treatment.
• Explain the role of non-transplant and transplant surgery in the patient that requires HPN.
• Describe the care of the patient that requires home enteral nutrition (HEN).
• List the types of feeding tubes and their indications for the patient that requires HEN.
• Describe the various feeding formulas used for HEN and their indications.
Activity Goal
This activity is designed to address the following core and team competencies: Patient Care, Medical Knowledge, Professionalism, and Employ Evidence-based Practices.
In support of improving patient care, this activity has been planned and implemented by Ciné-Med and The Oley Foundation. Ciné-Med is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Physicians: Ciné-Med designates this live activity for a maximum of 12.25 AMA PRA Category I Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Nurses: This educational activity is approved for 12.25 contact hours for nurses.
Pharmacists: This activity has been accredited for 1.225 CEU (12.25 credit hours) of continuing education credit.
Dietitians: Ciné-Med is a Continuing Professional Education (CPE) Accredited Provider with the Commission on Dietetic Registration (CDR). Registered dietitians (RDs) and dietetic technicians, registered (DTRs) will receive 12.25 continuing professional education units (CPEUs) for completion of this program (146662).


Can’t Make the Meeting?

Main Sessions will be streamed live and qualify for CEs. Registration required. Recordings will be available.

2018 Oley Conference/Clinician Conference

The Peabody Hotel - (Virtual Tour)

Memphis, Tennessee

June 24-27, 2018


2017 Oley Consumer/Clinician Conference 

Hyatt Regency

Old Greenwich, Connecticut

July 5-8, 2017






2016 Oley Consumer/Clinician Conference 

Newport Beach Marriott Hotel & Spa

Newport Beach, California

July 5-July 9, 2016 


Thanks for joining us for a terrific meeting with 496 attendees!



2015 Oley Annual Conference

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Saratoga Springs, New York
June 29–July 3, 2015



2014 Oley Annual Conference

Renaissance Orlando at SeaWorld

Orlando, Florida
June 2327, 2014 


2013 Oley Annual Conference


Cape Codder Resort & Spa

Hyannis, Massachusetts
June 26–29, 2013 

2012 Oley Annual Conference

Crowne Plaza

Redondo Beach, California
June 25–29, 2012

Past Conference Highlights

What people say about the conference (Testimonials / Inspirational Conference Stories)

Updated 4/25/2019


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6/21/2019 » 6/24/2019
2019 Oley/UI Health Combined Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.


Updated in 2015 with a generous grant from Shire, Inc. 


This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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