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<title>News &amp; Press</title>
<link>https://oley.org/news/default.asp</link>
<description><![CDATA[   Read about recent events, essential information and the latest community news.  ]]></description>
<lastBuildDate>Wed, 10 Jun 2026 14:27:19 GMT</lastBuildDate>
<pubDate>Mon, 22 Sep 2025 17:01:00 GMT</pubDate>
<copyright>Copyright &#xA9; 2025 Oley Foundation</copyright>
<atom:link href="https://oley.org/news/news_rss.asp?cat=9196" rel="self" type="application/rss+xml"></atom:link>
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<title>Malnutrition: The Overlooked Patient Safety Risk in Hospitals</title>
<link>https://oley.org/news/news.asp?id=710632</link>
<guid>https://oley.org/news/news.asp?id=710632</guid>
<description><![CDATA[<p style="box-sizing: border-box; margin-bottom: 1rem; color: #212529; font-family: Roboto, sans-serif; font-size: 13.5px;"><span style="box-sizing: border-box; font-weight: bolder;">Pharmacy Practice News<br /></span><span style="font-weight: bolder;">September 12, 2025</span></p><p style="box-sizing: border-box; margin-bottom: 1rem; color: #212529; font-family: Roboto, sans-serif; font-size: 13.5px;"><span style="box-sizing: border-box; font-weight: bolder;">By Gina Shaw</span><br style="box-sizing: border-box;" /><a href="https://www.pharmacypracticenews.com/Tag/malnutrition/6351" target="_blank" style="box-sizing: border-box; transition: color 0.4s; color: #0d6efd !important; text-decoration-line: underline !important;">Malnutrition</a>&nbsp;remains one of the most underrecognized patient&nbsp;<a href="https://www.pharmacypracticenews.com/Tag/safety/16069" target="_blank" style="box-sizing: border-box; transition: color 0.4s; color: #0d6efd !important; text-decoration-line: underline !important;">safety</a>&nbsp;threats in U.S. hospitals, yet its impact rivals other high-profile complications.</p><p style="box-sizing: border-box; margin-bottom: 1rem; color: #212529; font-family: Roboto, sans-serif; font-size: 13.5px;">At ASPEN Malnutrition Awareness Week 2025, experts warned that nearly 9% of patients discharged from hospitals in 2018 had a discharge code for malnutrition (<a href="https://www.jandonline.org/article/S2212-2672(22)00387-2/fulltext" target="_blank" style="box-sizing: border-box; transition: color 0.4s; color: #0d6efd !important; text-decoration-line: underline !important;"><em style="box-sizing: border-box;">J Acad Nutr Diet</em>&nbsp;2022;122[10 suppl]:S28-S33</a>), a condition linked to prolonged hospital stays, higher readmission rates, elevated care costs and a more than twofold increase in mortality risk. Safety lapses in enteral and parenteral nutrition, combined with systemic screening and staffing gaps, continue to fuel preventable harm but also offer opportunities for improvement through earlier interventions and stronger multidisciplinary accountability, speakers noted.</p><p style="box-sizing: border-box; margin-bottom: 1rem; color: #212529; font-family: Roboto, sans-serif; font-size: 13.5px;"><a href="https://www.pharmacypracticenews.com/Clinical/Article/09-25/Malnutrition-Threat-Hospitals-SEO/78244" target="_blank">&gt;&gt;read more&lt;&lt;&nbsp;</a></p>]]></description>
<pubDate>Mon, 22 Sep 2025 18:01:00 GMT</pubDate>
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<title>Fact Sheet: HHS Continues Taking Action to Increase Access and Supply of IV Fluids Following Hurrica</title>
<link>https://oley.org/news/news.asp?id=684857</link>
<guid>https://oley.org/news/news.asp?id=684857</guid>
<description><![CDATA[<p>&nbsp;</p><p>&nbsp;</p><p><a href="https://www.hhs.gov/about/news/2024/10/18/fact-sheet-hhs-continues-action-increase-access-supply-iv-fluids-hurricane-helene.html">Fact Sheet: HHS Continues Taking Action to Increase Access and Supply of IV Fluids Following Hurricane Helene | HHS.gov</a></p><p>&nbsp;</p><p>https://www.hhs.gov/about/news/2024/10/18/fact-sheet-hhs-continues-action-increase-access-supply-iv-fluids-hurricane-helene.html&nbsp;</p>]]></description>
<pubDate>Fri, 18 Oct 2024 19:34:00 GMT</pubDate>
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<title>Helene &amp; CVS Land Double Whammy for 25,000 Patients Who Survive on IV Nutrition</title>
<link>https://oley.org/news/news.asp?id=684849</link>
<guid>https://oley.org/news/news.asp?id=684849</guid>
<description><![CDATA[<p>Helene &amp; CVS Land Double Whammy for 25,000 Patients Who Survive on IV Nutrition</p><p>&nbsp;</p><p>&nbsp;</p><p><a href="https://kffhealthnews.org/news/article/hurricane-helene-cvs-coram-parenteral-iv-fluids/">Helene and CVS Land Double Whammy for 25,000 Patients Who Survive on IV Nutrition - KFF Health News</a><br /></p>]]></description>
<pubDate>Fri, 18 Oct 2024 18:47:00 GMT</pubDate>
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<title>ASPEN Resource link for IV Fluid Shortages</title>
<link>https://oley.org/news/news.asp?id=684249</link>
<guid>https://oley.org/news/news.asp?id=684249</guid>
<description><![CDATA[<a href="https://www.nutritioncare.org/IVFluidShortageResources/">ASPEN | Resources for IV Fluid Shortages (nutritioncare.org)</a>]]></description>
<pubDate>Thu, 10 Oct 2024 16:08:00 GMT</pubDate>
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<title>Access Issues</title>
<link>https://oley.org/news/news.asp?id=679451</link>
<guid>https://oley.org/news/news.asp?id=679451</guid>
<description><![CDATA[<p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">Oley Chief Executive Officer, Beth Gore and long-time member and Ambassador Bettemarie Bond recently contributed to the article “ASPEN survey of parenteral nutrition access issues: How the system fails the patient,” first published July 18, 2024, in the online version of &lt;<em>Nutrition in Clinical Practice.</em>&gt;</span></p>
<p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">&nbsp;</span></p>
    <p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">For this research, 170 home parenteral (IV) nutrition consumers responded to a survey with questions designed to “determine the extent and severity of PN access issues with components, devices, healthcare professionals, and transfers of care.” There were also questions regarding reimbursement, insurance coverage, and healthcare costs. Burdens measured included “impact on disease symptoms and medical outcomes as well as the types and frequency of medical or system errors experienced, adverse events, or resultant nutrition problems.” The conclusion states, “This patient survey provides evidence that access issues can result in the ‘failure of the PN system’ to assure care is consistently safe and effective.”</span></p>
    <p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">&nbsp;</span></p>
        <p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">To view the complete article, visit <a href="https://aspenjournals.onlinelibrary.wiley.com/doi/epdf/10.1002/ncp.11187" target="_blank">doi.org/10.1002/ncp.11187</a>.</span></p>]]></description>
<pubDate>Thu, 8 Aug 2024 21:06:00 GMT</pubDate>
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<title>Malnutrition and Older Adults</title>
<link>https://oley.org/news/news.asp?id=679449</link>
<guid>https://oley.org/news/news.asp?id=679449</guid>
<description><![CDATA[<p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">Oley members Mary Kunz and Katie Marschilok share what they have experienced and seen others experience related to malnutrition in the article, “Often Alone, Not Eating: Older Adults Struggle with Malnutrition,” by Jeanette Beebe, published July 12, 2024, on the website nextavenue.org. Mary and Katie have both had challenges related to GI issues and nutrition support. The article also explores other issues that may lead to malnutrition, particularly in older adults.</span></p><p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">&nbsp;</span></p><p style="color: #000000; font-family: 'Times New Roman'; font-size: medium;"><span style="font-family: sans-serif;">Read the article online at <a href="https://www.nextavenue.org/older-adults-struggle-with-malnutrition/" target="_blank">nextavenue.org/older-adults-struggle-with-malnutrition</a>.</span></p>]]></description>
<pubDate>Thu, 8 Aug 2024 21:04:00 GMT</pubDate>
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<title>Join Oley in DC!</title>
<link>https://oley.org/news/news.asp?id=663811</link>
<guid>https://oley.org/news/news.asp?id=663811</guid>
<description><![CDATA[<p><span style="background: white; padding: 0in; font-size: 11.5pt; border: 1pt none windowtext; line-height: 107%; color: #242424; font-family: Arial;">Join Oley Foundation staff and volunteers at the Digestive Disease National Coalition (DDNC) Spring Public Policy Forum, March 3–4, 2024, at the Hotel Monaco, Washington, DC. </span></p> <p><span style="background: white; padding: 0in; font-size: 11.5pt; border: 1pt none windowtext; line-height: 107%; color: #242424; font-family: Arial;">&nbsp;</span></p> <p><span style="font-family: Arial;"><span style="background: white; padding: 0in; font-size: 11.5pt; border: 1pt none windowtext; line-height: 107%; color: #242424; font-family: Arial;">Oley has been part of DDNC and attending the forum for several years. Here, patient advocates, professionals, researchers, caregivers, and others come together to network, to learn about public policy issues relevant to home IV nutrition, tube feeding and digestive disorders, and to meet with legislative staff on Capitol Hill. DDNC has confirmed an outstanding line up of speakers from NIH, FDA and community organizations for March 3, and is busy setting up meetings for March 4. Register by February 9 to ensure your seat at this fantastic advocacy event and to reserve a room at the discounted event rate. Register and learn more&nbsp;</span><a href="https://urldefense.com/v3/__https:/ddnc.org/public-policy-forum__;!!IxnU!1E6yxj2_isN3gaFCzxEi6sjvEcB5hM_2d_c0YHHhAxgNUGG4sNHbQP5Y66-1KOfFrlYR6vbKHwfkheIb$" target="_blank"><span style="background: white; padding: 0in; font-size: 11.5pt; border: 1pt none windowtext; line-height: 107%; color: #0563c1;">here</span></a><span style="background: white; padding: 0in; font-size: 11.5pt; border: 1pt none windowtext; line-height: 107%; color: #242424;">.</span></span><span style="padding: 0in; font-size: 11.5pt; border: 1pt none windowtext; line-height: 107%; font-family: 'Segoe UI', sans-serif; color: #242424;"></span></p>]]></description>
<pubDate>Wed, 31 Jan 2024 20:02:00 GMT</pubDate>
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<title>Feeding Tube Awareness Week is February 4-10, 2024!</title>
<link>https://oley.org/news/news.asp?id=663806</link>
<guid>https://oley.org/news/news.asp?id=663806</guid>
<description><![CDATA[<h2><span style="color: #002060;">Save the Dates: Feeding Tube Awareness Week, February 4–10, 2024</span></h2><p><span style="color: #002060;"><strong>&nbsp;</strong></span></p><p><span style="color: #002060;"><strong><span style="font-size: 16px;">Webinar Tuesday, February 6, 2024 at 11 a.m. ET<span style="font-family: Arial;">:&nbsp;</span><span style="font-family: Arial;"><em>Myth Busters: Real Tips for Incorporating Real Food to Your Tube Feeding,&nbsp;</em>Sponsored by Real Food Blends.&nbsp;</span></span></strong><span style="font-family: Arial;"><a href="https://www.youtube.com/watch?v=MKUZaKKNR-A&amp;t=6s" target="_blank">View Recorded Presentation</a></span></span></p><p><span style="color: #002060;"><strong><span style="font-family: Arial;">&nbsp;</span></strong></span></p><p><span style="color: #002060;"><strong><span style="font-family: Arial; font-size: 16px;"><strong><span style="font-family: Arial; font-size: 16px;">Community Connections&nbsp;</span></strong>Friday, February 9, 2024 at 6:00 p.m. ET: Virtual discussion all about enteral nutrition.&nbsp;</span></strong><span style="font-family: Arial;">Got a tubie life hack you'd like to share? Have you navigated a tough situation at work or school? Looking to connect with other folks in the community? Bring your tips, tricks, questions, and stories and come chat with us. <a href="https://oley.org/page/SupportGroups" target="_blank">View future dates</a>.&nbsp;</span></span></p><p><span style="color: #002060;"><strong><span style="font-size: 16px;">&nbsp;</span></strong></span></p><p><span style="color: #002060;"><strong><span style="font-size: 16px;">Download the&nbsp;<a href="https://oley.org/resource/resmgr/feeding_tube_awareness/2024_ftaw_materials/feeding_tube_awareness_week_.pdf">2024 Feeding Tube Awareness Toolkit</a>&nbsp;here!&nbsp;</span></strong></span></p><p>Oley created this toolkit to make it easy for you to help raise awareness and normalize the reality of receiving nutrition in different ways.&nbsp;</p><br />]]></description>
<pubDate>Wed, 31 Jan 2024 19:08:00 GMT</pubDate>
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<title>Young Lives Transformed by Groundbreaking Intestinal Transplants</title>
<link>https://oley.org/news/news.asp?id=648702</link>
<guid>https://oley.org/news/news.asp?id=648702</guid>
<description><![CDATA[<span style="color: #1d1c1d; font-family: Slack-Lato, Slack-Fractions, appleLogo, sans-serif; font-size: 15px; font-variant-ligatures: common-ligatures; background-color: #f8f8f8;">A team of doctors at Duke University School of Medicine and the National University of Singapore have successfully performed two groundbreaking intestinal transplants. &gt;<a href="https://medschool.duke.edu/stories/young-lives-transformed-groundbreaking-intestinal-transplants" target="_blank">read&nbsp;</a><a href="https://medschool.duke.edu/stories/young-lives-transformed-groundbreaking-intestinal-transplants" target="_blank">more</a>&lt;&nbsp;</span>]]></description>
<pubDate>Sat, 12 Aug 2023 15:24:00 GMT</pubDate>
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<title>Everything You Need to Know About Total Parenteral Nutrition  </title>
<link>https://oley.org/news/news.asp?id=648701</link>
<guid>https://oley.org/news/news.asp?id=648701</guid>
<description><![CDATA[<div class="eh-widget eh-widget--page-headline" style="box-sizing: border-box; outline: 0px; width: 1190px; margin-bottom: 20px; font-family: 'Open Sans', OpenSans-fallback, sans-serif; font-size: 16px;"><div class="container-fluid" style="box-sizing: border-box; outline: 0px; margin-right: auto; margin-left: auto; padding-left: 24px; padding-right: 24px; max-width: 1200px; position: relative;"><div class="row" style="box-sizing: border-box; outline: 0px; margin-left: -12px; margin-right: -12px;"><div class="col" style="box-sizing: border-box; outline: 0px; padding-right: 12px; padding-left: 12px;"><div data-hypernova-key="evdyconsumercomponentreactpageheadline" data-hypernova-id="89fab983-9b8e-4532-8117-abc8a7f91f5f" style="box-sizing: border-box; outline: 0px;"><section class="eh-pg-headline eh-pg-headline--left" style="box-sizing: border-box; outline: 0px;"><p class="eh-pg-headline__dek" style="box-sizing: border-box; margin-top: 20px; outline: 0px; padding-right: 15px;">TPN, which administers liquid nutrition straight into a person's bloodstream, can be a lifesaver for people who have malnutrition due to inflammatory bowel disease (IBD). <a href="https://www.everydayhealth.com/crohns-disease/everything-you-need-to-know-about-total-parenteral-nutrition/?utm_source=outreach&amp;utm_medium=referral&amp;utm_campaign=oley" target="_blank">Here’s how it can help</a>.&nbsp;</p><p class="eh-pg-headline__dek" style="box-sizing: border-box; margin-top: 20px; outline: 0px; padding-right: 15px;">Published by Everday Health.&nbsp;&nbsp;</p></section></div></div></div></div></div><div class="eh-widget eh-widget--byline" style="box-sizing: border-box; outline: 0px; width: 1190px; margin-top: 20px; margin-bottom: 30px; font-family: 'Open Sans', OpenSans-fallback, sans-serif; font-size: 16px;"><div class="container-fluid" style="box-sizing: border-box; outline: 0px; margin-right: auto; margin-left: auto; padding-left: 24px; padding-right: 24px; max-width: 1200px; position: relative;"><div class="row" style="box-sizing: border-box; outline: 0px; margin-left: -12px; margin-right: -12px;"><div class="col text-center" style="box-sizing: border-box; outline: 0px; text-align: center; padding-right: 12px; padding-left: 12px;"><div data-hypernova-key="evdyconsumercomponentreactbyline" data-hypernova-id="a79709b6-2920-415d-9320-20fde853860b" style="box-sizing: border-box; outline: 0px;"><section class="by-line by-line--default" style="box-sizing: border-box; display: flex; outline: 0px; font-size: 14px; line-height: 1.43; text-align: left; flex-wrap: wrap;"><div class="by-line__profile-icons" style="box-sizing: border-box; outline: 0px; display: flex; -webkit-box-pack: start; justify-content: flex-start; height: 52px; margin-right: 20px; flex-shrink: 0; overflow: hidden;"><div class="by-line__profile-icons-item" style="box-sizing: border-box; outline: 0px; border-radius: 50%; border: 4px solid #ffffff; position: relative; overflow: hidden; width: 50px; height: 50px; z-index: 10;"><picture class="eh-image by-line__profile-image eh-image--nosize eh-image--js" style="box-sizing: border-box; outline: 0px; z-index: 1; max-width: 100%; aspect-ratio: 16 / 9;"><img src="https://images.everydayhealth.com/images/kaitlinsullivan_headshot.jpg?w=48" width="auto" height="auto" alt="Kaitlin Sullivan" class="eh-image__img" style="box-sizing: border-box; vertical-align: middle; outline: 0px; max-width: 100%; height: auto; display: block; width: 42px;" /></picture></div></div><div class="by-line__content" style="box-sizing: border-box; outline: 0px; display: flex; -webkit-box-flex: 1; flex: 1 1 0%; min-height: 50px; -webkit-box-orient: vertical; -webkit-box-direction: normal; flex-direction: column; -webkit-box-pack: center; justify-content: center;"><div class="by-line__info-wrapper" style="box-sizing: border-box; outline: 0px; display: flex; flex-wrap: wrap; margin-bottom: 5px;"><span class="by-line__authors" style="box-sizing: border-box; outline: 0px; display: block; flex-wrap: wrap; margin: 0px 30px 0px 0px;">By&nbsp;<span style="box-sizing: border-box; outline: 0px;"><a class="cr-anchor cr-anchor--mounted" href="https://www.everydayhealth.com/authors/kaitlin-sullivan/" rel="author" target="_self" style="box-sizing: border-box; background-color: transparent; color: #005cb7; outline: 0px;">Kaitlin Sullivan</a></span></span><span class="by-line__reviewed-by" style="box-sizing: border-box; outline: 0px; display: block; flex-wrap: wrap;">Medically Reviewed by&nbsp;<span style="box-sizing: border-box; outline: 0px;"><a class="cr-anchor cr-anchor--mounted" href="https://www.everydayhealth.com/authors/ira-daniel-breite/" rel="author" target="_self" style="box-sizing: border-box; background-color: transparent; color: #005cb7; outline: 0px;">Ira Daniel Breite, MD</a></span></span></div><div class="by-line__last-updated" style="box-sizing: border-box; outline: 0px;"><span class="by-line__last-updated-title" style="box-sizing: border-box; outline: 0px;">Reviewed:&nbsp;</span><time class="by-line__last-updated-date" datetime="2023-08-02" style="box-sizing: border-box; outline: 0px; color: #666666;">August 2, 2023</time></div></div></section></div></div></div></div></div>]]></description>
<pubDate>Sat, 12 Aug 2023 15:18:00 GMT</pubDate>
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<title>New center supports patients with unique nutritional needs</title>
<link>https://oley.org/news/news.asp?id=642282</link>
<guid>https://oley.org/news/news.asp?id=642282</guid>
<description><![CDATA[<p class="sc-bczRLJ dist__HeadingBase-sc-1fnzlkn-5 gsVvLO headline" style="box-sizing: border-box; font-size: 3rem; margin-top: 0px; margin-bottom: 0px; line-height: 1; color: #0f172a;"><span style="font-size: 16px;">Lynn Wolfson and Dr. Andrew Ukleja discuss unique nutritional needs&nbsp; &gt;&gt;&gt; <a href="https://www.local10.com/health/2023/06/02/new-center-supports-patients-with-unique-nutritional-needs/" target="_blank">more&nbsp;</a></span></p>]]></description>
<pubDate>Sat, 3 Jun 2023 18:40:00 GMT</pubDate>
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<title>Parenteral Nutrition Micronutrient Considerations featuring Shelby Yaceczko, MS, RDN-AP, CNSC, CSSD</title>
<link>https://oley.org/news/news.asp?id=621807</link>
<guid>https://oley.org/news/news.asp?id=621807</guid>
<description><![CDATA[<span style="box-sizing: border-box; -webkit-tap-highlight-color: transparent; font-weight: bolder; color: #000000; font-family: Ember, Helvetica, Arial, 'sans-serif'; font-size: medium;">This podcast (9/26/22) is made possible through an educational grant from Baxter Healthcare.&nbsp;</span><span style="color: #ffffff; font-family: Ember, Helvetica, Arial, 'sans-serif'; font-size: medium;"><span style="color: #000000;">In this episode, we discuss parenteral nutrition micronutrient considerations with nutrition support clinician&nbsp;<span style="font-family: Ember, Helvetica, Arial, 'sans-serif'; font-size: medium;">and advanced practice registered dietitian nutritionist Shelby Yaceczko, MS, RDN-AP, CNSC, CSSD.&nbsp; &lt;<a href="https://music.amazon.co.uk/podcasts/e352fc76-9756-44c5-8aa4-fb56ce8246ab/episodes/edc97a73-3d9e-4cb5-95f2-3118835ebd1a/dietitians-in-nutrition-support-dns-podcast-parenteral-nutrition-micronutrient-considerations-featuring-shelby-yaceczko-ms-rdn-ap-cnsc-cssd" target="_blank">Listen to Podcast</a>&gt;</span></span><span style="box-sizing: border-box; -webkit-tap-highlight-color: transparent; font-weight: bolder; color: #ffffff; font-family: Ember, Helvetica, Arial, 'sans-serif'; font-size: medium;">ible through an educational grant from Baxter Healthcare.&nbsp;</span><span style="color: #ffffff; font-family: Ember, Helvetica, Arial, 'sans-serif'; font-size: medium;">In this episode, we discuss parenteral nutrition micronutrient considerations with nutrition support clinician and advanced practice registered dietitian nutritionist Shelby Yaceczko, MS, RDN-AP, CNSC, CSSD.&nbsp;</span> advanced practice registered dietitian nutritionist Shelby Yaceczko, MS, RDN-AP, CNSC, CSSD.&nbsp;</span>]]></description>
<pubDate>Tue, 1 Nov 2022 16:29:00 GMT</pubDate>
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<title>MEMOIRA complete stranger saved my life. Fifteen years later, another one saved my son</title>
<link>https://oley.org/news/news.asp?id=617713</link>
<guid>https://oley.org/news/news.asp?id=617713</guid>
<description><![CDATA[<p><span style="color: #737373; font-size: 14px; font-family: Arial, sans-serif;">Toronto Life</span></p> <p style="line-height: 13.5pt;"><span style="color: #252525; font-size: 14px; font-family: Arial, sans-serif;">With<span class="apple-converted-space">&nbsp;</span><b>TPN</b>, I was able to have something resembling a normal childhood. I was physically capable of doing the same things as most children. &lt;<a href="https://torontolife.com/memoir/a-complete-stranger-saved-my-life-fifteen-years-later-another-one-saved-my-son/" target="_blank">read more</a>&gt;</span></p>]]></description>
<pubDate>Tue, 27 Sep 2022 14:13:00 GMT</pubDate>
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<title>Home for Our Patients Earlier allows parents of premature babies to leave hospital sooner</title>
<link>https://oley.org/news/news.asp?id=617711</link>
<guid>https://oley.org/news/news.asp?id=617711</guid>
<description><![CDATA[<p><span style="color: #737373; font-size: 14px; font-family: Arial, sans-serif;">ABC</span></p> <p><span style="color: #252525; font-size: 14px; font-family: Arial, sans-serif;">The program teaches parents how to use<span class="apple-converted-space">&nbsp;</span><b>feeding tubes</b><span class="apple-converted-space">&nbsp;</span>at home, ... via a gastric<span class="apple-converted-space">&nbsp;</span><b>tube</b><span class="apple-converted-space">&nbsp;</span>while they are working towards taking all of their<span class="apple-converted-space">&nbsp;</span><b>feeds</b><span class="apple-converted-space">&nbsp;</span>from&nbsp;...&lt;<a href="https://www.abc.net.au/news/2022-09-09/qld-new-parents-learn-to-care-for-sick-premature-babies-hospital/101417924" target="_blank">read more</a>&gt;</span></p>]]></description>
<pubDate>Tue, 27 Sep 2022 14:10:00 GMT</pubDate>
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<title>Young people living with disability share experiences and create communities through social media</title>
<link>https://oley.org/news/news.asp?id=617710</link>
<guid>https://oley.org/news/news.asp?id=617710</guid>
<description><![CDATA[<p class="MsoNormal"><span style="font-size:9.0pt;font-family:'Arial',sans-serif;
color:#737373;">ABC</span></p>

<p class="MsoNormal"><span style="font-size:9.0pt;font-family:'Arial',sans-serif;
color:#252525;">A person stands in a kitchen holding her<span class="apple-converted-space">&nbsp;</span><b>feeding tubes</b>.... shares
glimpses of their life with a<span class="apple-converted-space">&nbsp;</span><b>feeding
tube&nbsp;</b>and Ehlers-Danlos Syndrome (EDS).&nbsp; &lt;<a href="https://www.abc.net.au/news/2022-08-28/disability-community-social-media/101376272" target="_blank">read more</a>&lt;&nbsp;</span></p>]]></description>
<pubDate>Tue, 27 Sep 2022 14:08:00 GMT</pubDate>
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<title>Down to 76 pounds, N.J. woman’s condition is ‘ultra rare.’ But her spirit remains unbroken.</title>
<link>https://oley.org/news/news.asp?id=617709</link>
<guid>https://oley.org/news/news.asp?id=617709</guid>
<description><![CDATA[<p><span style="color: #737373; font-size: 9pt; font-family: Arial, sans-serif;">NJ.com</span></p> <p style="line-height: 13.5pt;"><span style="color: #252525; font-size: 9pt; font-family: Arial, sans-serif;">Friday, August 12, 2022 - Christopher DeAngelis opens cartons of<span class="apple-converted-space"></span><b>total parenteral nutrition</b><span class="apple-converted-space">&nbsp;</span>(<b>TPN</b>) to put into the refrigerator. &lt;<a href="https://www.nj.com/mercer/2022/09/down-to-76-pounds-nj-womans-condition-is-ultra-rare-but-her-spirit-remains-unbroken.html" target="_blank">read more</a>&gt;.&nbsp;</span></p>]]></description>
<pubDate>Tue, 27 Sep 2022 14:05:00 GMT</pubDate>
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<title>New Braunfels HS senior coping with long-term COVID-19 effects</title>
<link>https://oley.org/news/news.asp?id=614669</link>
<guid>https://oley.org/news/news.asp?id=614669</guid>
<description><![CDATA[<p class="MsoNormal"><span style="font-size: 14px; font-family: sans-serif; color: #252525;">The teen was placed on a liquid<span class="apple-converted-space">&nbsp;</span><b>diet</b>, and was monitored by her ... Olmos has survived with help from a&nbsp;<span class="apple-converted-space"></span><b>feeding
tube</b><span class="apple-converted-space">&nbsp;</span>since April — a device she&nbsp;...
    &lt;<a href="https://herald-zeitung.com/community_alert/new-braunfels-hs-senior-coping-with-long-term-covid-19-effects/article_a47176f2-2035-11ed-b4c7-77be48c204d5.html" target="_blank">read more</a>&gt;&nbsp;</span>
</p>]]></description>
<pubDate>Mon, 22 Aug 2022 15:17:00 GMT</pubDate>
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<title>New Braunfels HS senior coping with long-term COVID-19 effects</title>
<link>https://oley.org/news/news.asp?id=614670</link>
<guid>https://oley.org/news/news.asp?id=614670</guid>
<description><![CDATA[<p class="MsoNormal"><span style="font-size: 14px; font-family: sans-serif; color: #252525;">The teen was placed on a liquid<span class="apple-converted-space">&nbsp;</span><b>diet</b>, and was monitored by her
... Olmos has survived with help from a<span class="apple-converted-space"></span><b>feeding
tube</b><span class="apple-converted-space">&nbsp;</span>since April — a device
she&nbsp;... &lt;<a href="https://herald-zeitung.com/community_alert/new-braunfels-hs-senior-coping-with-long-term-covid-19-effects/article_a47176f2-2035-11ed-b4c7-77be48c204d5.html" target="_blank">read more</a>&gt;&nbsp;</span></p>]]></description>
<pubDate>Mon, 22 Aug 2022 15:17:00 GMT</pubDate>
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<title>	 Gastroparesis diagnosis changed life for Crystal Beach woman</title>
<link>https://oley.org/news/news.asp?id=614032</link>
<guid>https://oley.org/news/news.asp?id=614032</guid>
<description><![CDATA[<span style="color: #666666; font-family: sans-serif; font-size: 16px;">Bethany D’Amico was a healthy young woman, fit and doing everything she could to live her best life. &lt;</span><span style="color: #666666; font-family: sans-serif; font-size: 16px;"><a href="https://www.niagarathisweek.com/community-story/10688758-gastroparesis-diagnosis-changed-life-for-crystal-beach-woman/" target="_blank">read more</a></span><span style="color: #666666; font-family: sans-serif; font-size: 16px;">&gt;&nbsp;</span>]]></description>
<pubDate>Mon, 15 Aug 2022 00:34:00 GMT</pubDate>
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<title>Veteran hopes for intestinal transplant through partnership between UPMC and VA Pittsburgh</title>
<link>https://oley.org/news/news.asp?id=610906</link>
<guid>https://oley.org/news/news.asp?id=610906</guid>
<description><![CDATA[Every morning before breakfast, Diana Young takes her dog, Snowball, for a walk in Point State Park. It’s one of the only carefree moments in her daily routine. &lt;<a href="https://www.post-gazette.com/news/health/2022/07/09/upmc-veterans-transplants-diana-young-ruy-cruz/stories/202207050086" target="_blank">read more</a>&gt;&nbsp;<br />]]></description>
<pubDate>Mon, 11 Jul 2022 14:41:00 GMT</pubDate>
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<title>Teen has to wear feeding tube after being diagnosed with 4 chronic illnesses at 17</title>
<link>https://oley.org/news/news.asp?id=610347</link>
<guid>https://oley.org/news/news.asp?id=610347</guid>
<description><![CDATA[Teen has to wear feeding tube after being diagnosed with 4 chronic illnesses at 17...&lt;<a href="https://stomp.straitstimes.com/singapore-seen/teen-finds-solace-in-sharing-on-tiktok-her-medical-condition-where-she-has-to-wear" target="_blank">read more</a>&gt;&nbsp;]]></description>
<pubDate>Tue, 5 Jul 2022 15:38:00 GMT</pubDate>
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<title>When Your Chronic Illness Doesn’t Allow You to Digest Food</title>
<link>https://oley.org/news/news.asp?id=610125</link>
<guid>https://oley.org/news/news.asp?id=610125</guid>
<description><![CDATA[<span style="color: #252525; font-size: 14px; font-family: sans-serif;">In 2019, I had a feeding tube inserted into my upper intestines and was... &lt;<a href="https://www.msn.com/en-us/health/nutrition/when-your-chronic-illness-doesn-t-allow-you-to-digest-food/ar-AAZ1zeS?li=BBnba9O" target="_blank">read more</a>&gt;</span>]]></description>
<pubDate>Thu, 30 Jun 2022 17:54:00 GMT</pubDate>
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<title>Patient turned medical student 17 years after life saving surgery</title>
<link>https://oley.org/news/news.asp?id=610075</link>
<guid>https://oley.org/news/news.asp?id=610075</guid>
<description><![CDATA[<span style="font-family: sans-serif; font-size: 14px;">A life-threatening diagnosis at age 5 and compassionate care throughout childhood inspired Blake Hardin to pursue medicine. &lt;<a href="https://healthblog.uofmhealth.org/childrens-health/patient-turned-medical-student-17-years-after-lifesaving-surgery" target="_blank">read more</a>&gt;&nbsp;</span>]]></description>
<pubDate>Thu, 30 Jun 2022 13:59:00 GMT</pubDate>
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<title>Helping Karon Live His Best Life, With Top-Notch GI Care - Atrium Health </title>
<link>https://oley.org/news/news.asp?id=608638</link>
<guid>https://oley.org/news/news.asp?id=608638</guid>
<description><![CDATA[<span style="color: #666666; font-family: sans-serif; font-size: 14px;">Karon was born with short bowel syndrome and has spent more of his childhood in a hospital than most people do in a lifetime. But...<a href="https://atriumhealth.org/dailydose/2022/06/14/helping-karon-live-his-best-life-with-top-notch-gi-care" target="_blank">&lt;read more&gt;</a></span>]]></description>
<pubDate>Wed, 15 Jun 2022 21:52:00 GMT</pubDate>
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<title>ABBOTT TO RELEASE ELECARE® AMINO ACID-BASED FORMULAS TO HELP MEET CRITICAL PATIENT NEED</title>
<link>https://oley.org/news/news.asp?id=606665</link>
<guid>https://oley.org/news/news.asp?id=606665</guid>
<description><![CDATA[<span style="font-size: 16px;"></span><div class="wd_assets_container" style="box-sizing: border-box; margin-top: 15px; padding-bottom: 14px; border: 0px none; vertical-align: baseline; background-image: url('../img/assets_shadow_full.png'); background-position: center bottom; background-size: initial; background-repeat: no-repeat; background-attachment: initial; background-origin: initial; background-clip: initial; clear: both; font-family: Georgia; font-size: 16px;"><div id="wd_assets_closer" style="box-sizing: border-box; border-width: 1px; border-style: solid; border-color: #ffffff #e1e1e1 #e1e1e1; border-image: initial; vertical-align: baseline; position: relative; overflow: hidden; height: 0px;"><div class="assets_close_link" style="box-sizing: border-box; border: 0px; vertical-align: baseline; text-align: right; position: absolute; bottom: 0px; right: 0px;"><a href="https://abbott.mediaroom.com/2022-05-24-Abbott-to-Release-EleCare-R-Amino-Acid-based-Formulas-to-Help-Meet-Critical-Patient-Need#Closed" class="assets_close_button" style="box-sizing: border-box; color: #009cde; margin: 0px; padding: 4px 12px 2px 40px; border: 1px solid #dedede; vertical-align: baseline; cursor: pointer; font-family: georgia; font-size: 12px; word-break: break-all; background-image: url('../img/assets_up_arrow.gif'); background-position: left center; background-size: initial; background-repeat: no-repeat; background-attachment: initial; background-origin: initial; background-clip: initial; height: 22px; outline: 0px !important;">CLOSE</a></div></div></div><div class="wd_body wd_news_body" wd_resize="formatNews" wd_print_url="https://abbott.mediaroom.com/2022-05-24-Abbott-to-Release-EleCare-R-Amino-Acid-based-Formulas-to-Help-Meet-Critical-Patient-Need?printable=1" style="box-sizing: border-box; border: 0px; vertical-align: baseline; font-family: Georgia; font-size: 16px;"><ul style="box-sizing: border-box; margin: 0px 0px 10px 30px; padding: 0px; border: 0px; vertical-align: baseline; list-style: disc;"><li style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">Abbott to release limited quantities of EleCare<sup style="box-sizing: border-box; position: relative; font-size: 10.4px; line-height: 0; vertical-align: super;">®</sup>&nbsp;branded specialty formulas</li><li style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">Product will be released immediately free of charge to children in need</li><li style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">Parents and caregivers in urgent need should contact their healthcare professionals or Abbott at +1-800-881-0876 for additional information</li><li style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">Abbott plans to restart production at the&nbsp;<span class="xn-location" style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">Sturgis</span>&nbsp;facility on&nbsp;<span class="xn-chron" style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">June 4</span>&nbsp;and will prioritize EleCare production, with initial EleCare product release to consumers beginning on or about&nbsp;<span class="xn-chron" style="box-sizing: border-box; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline;">June 20</span></li></ul></div><span style="font-size: 16px;">&nbsp; &nbsp; &nbsp; &gt;<a href="https://abbott.mediaroom.com/2022-05-24-Abbott-to-Release-EleCare-R-Amino-Acid-based-Formulas-to-Help-Meet-Critical-Patient-Need" target="_blank">read more</a>&lt;</span>]]></description>
<pubDate>Wed, 25 May 2022 20:40:00 GMT</pubDate>
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