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ATLAS Launch: What more can we do to support chronic intestinal failure patients?

Thursday, April 26, 2018   (0 Comments)
Posted by: Andrea Guidi
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ATLAS Launch: What more can we do to support chronic intestinal failure patients? A discussion on rare diseases, European Reference Network, EU health policy

www.theparliamentmagazine.eu

 

MEP Cristian Buşoi (EPP, Romania) and the Parliament Magazine are hosting the launch of the ATLAS Programme, aimed to improve standards of care for chronic intestinal failure (chronic IF), on Wednesday, 28 March from 12:30 to 14:30 at the European Parliament Member’s Salon.

The ATLAS Programme is led by a steering group comprised of experts in chronic IF including representation from patients, physicians and policymakers. The group is committed to ensuring that chronic IF care of a high standard is a priority in European healthcare systems. The ATLAS programme, of which this event is a part, was initiated and is facilitated and funded by Shire International GmbH.

The ATLAS launch event, will be a key milestone for the chronic IF community. Drawing upon expert speakers from across the patient journey, the event will introduce policymakers and other stakeholders to the issues faced people with chronic IF and pioneer the course of chronic IF care across Europe.

Chronic IF, a rare organ failure, affects between 5 and 20 individuals per million in Europe1. Whilst rare diseases have increasingly been the focus of research and action, chronic IF remains a neglected area of care, with significant inequalities in the management and outcomes of the condition across the European Union.

 

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Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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