Home   |   Donate   |   Industry   |   Print Page   |   Your Cart   |   Sign In   |   Join Now
Keyword Search
News & Press
Filter news by category:

Read about recent events, essential information and the latest community news.

Displaying page 1 of 4
1  |  2  |  3  |  4

Latest News
Thursday, February 21, 2019   (0 Comments - view/add)
Thousands marching against rare diseases; Still time to join Racefor7 2019 »
The Racefor7 Rare Disease Day run on Sunday, the 24th February is approaching the starting mark. Will you be joining them?...
Thursday, February 21, 2019   (0 Comments - view/add)
Education Amid Tragedy »
By Susan Burns, UOAA President   It’s heartbreaking. So many of us are torn apart by the recent news that a t...
Tuesday, January 22, 2019   (0 Comments - view/add)
Ailing federal worker says she'll get back lapsed insurance »
By: Andrew Selsky, Associated Press Updated 1/18/19   SALEM, Ore. (AP) - An ailing U.S. Fish and Wildl...
Tuesday, January 22, 2019   (0 Comments - view/add)
Ailing federal worker: Government needs to reactivate insurance »
By: Andrew Selsky KREM.com, 1/17/19   SALEM, Ore. — An ailing U.S. Fish and Wildlife Service worker in...
Tuesday, January 8, 2019   (0 Comments - view/add)
Living Well with a Feeding Tube »
By: Lisa Esposito US News and World Report, 1/04/19    NEARLY 450,000 Americans with swallowi...
Friday, December 14, 2018   (0 Comments - view/add)
Why I take pictures of babies with severe illnesses' »
Angela Forker photographs babies with disabilities and terminal illnesses, placing them in fantasy scenes.   C...
Wednesday, December 12, 2018   (0 Comments - view/add)
Monash Children's Hospital: Tiny battlers get chance to go home healthy »
By: Grant McArthur www.hearldsun.com.au, 12/08/18   They may have had a tough start to life, but...
Wednesday, December 12, 2018   (0 Comments - view/add)
Santa spreads Christmas cheer with special photo »
By: Michael Kuhn www.wane.com, 12/11/18   FORT WAYNE, Ind. (WANE) - A Kendallville mom is thanking...
Wednesday, November 21, 2018   (0 Comments - view/add)
Now That I can Only Eat With A Feeding Tube, Thanksgiving Has A New Meaning For Me »
By: Tracey Brittis www.huffingtonpost.com, 11/20/18   For most of my life, the idea of healthy eating...
Wednesday, November 21, 2018   (0 Comments - view/add)
Pecatonica woman with rare genetic disorder refuses to let condition rule her life »
By: Kathleen Cohen www.mystateline.com, 11/16/18   ECATONICA, Ill. - Her limbs tend to pop in and out...
Wednesday, November 21, 2018   (0 Comments - view/add)
How Do Wishes Granted To Very Sick Kids Affect their Health? »
By: Tara Haelle www.npr.org, 11/20/18   Tiffany Rowe, a 46-year-old life coach in the San Francisco...
Tuesday, November 20, 2018   (0 Comments - view/add)
More than 12K people in Arkansas have lost Medicaid coverage »
By: Nathaniel Weixel thehill.com, 11/15/18   More than 12,000 Medicaid beneficiaries in Arkansas have...
Thursday, November 1, 2018   (0 Comments - view/add)
7 images of a gastric peg tube used to save a baby pangolin »
www.news24.com Ryan Truscott, 10/30/18   In a world first, wildlife vets in Johannesburg have managed...
Friday, October 12, 2018   (0 Comments - view/add)
Living on an IV bag, Minneapolis runner won't let Crohn's disease slow her down »
By John Reinan Star Tribune October 5, 2018 — 6:04pm   If you think long-distance running is tough,...
Wednesday, October 3, 2018   (0 Comments - view/add)
Halloween is Just Around the Corner! »
Halloween Is Just Around the Corner! Support kids who cannot eat the usual candy treats by participating in...
Thursday, September 27, 2018   (0 Comments - view/add)
KGMU doctors use rarely used technique to fix a rare disorder »
By: Express News Service, 9/27/18   Six years ago, a day-old boy was brought to Prof S N Kureel, a pediatric...
Tuesday, September 11, 2018   (0 Comments - view/add)
PINNT's Medical Tag Patient Resource Wins Product of the Year at the 2018 CN Awards »
7 September 2018   NEWS RELEASE   PINNT’S MEDICAL TAG PATIENT RESOURCE WINS PROD...
Tuesday, September 11, 2018   (0 Comments - view/add)
U.S. FDA Writes a Letter to Healthcare Providers Encouraging the Use of Enteral Connectors... »
U.S. FDA Writes a Letter to Healthcare Providers Encouraging the Use of Enteral Connectors that Meet the ISO 80369-3 Stand...
Friday, September 7, 2018   (0 Comments - view/add)
Gov. Abbott honor's Beeville girl's request »
By: Taylor Alanis www.kiiitv.com, 8/30/18   Beeville (KIII News) — 1.5 million Americans currently suf...
Tuesday, August 14, 2018   (0 Comments - view/add)
Omegaven Receives FDA Approval »
Kathleen Gura, PharmD, and Mark Puder, MD, PhD Prior to 2004, children with parenteral nutrition associated liver...
Tuesday, July 31, 2018   (0 Comments - view/add)
Fundraiser planned for Cranston boy with small bowel syndrome »
By: Meri R. Kennedy cranstononline.com, 7/25/18   A Family Day Fundraiser to benefit SBSNE Inc. Nutrit...
Wednesday, July 11, 2018   (0 Comments - view/add)
Conference looks for solution to nationwide IV shortage »
  WMC Action News 5, Memphis, TN June 26, 2018   Something you take for granted when you're in the h...
Monday, May 7, 2018   (0 Comments - view/add)
Patients with a rare stomach disorder express alarm as TV news promotes nerve...... »
Patients with gastroparesis -- which can be caused by damage to the vagus nerve -- expressed alarm about news coverage of...
Thursday, May 3, 2018   (0 Comments - view/add)
ASPEN Releases Videos on Placement of NG Tubes »
Videos for caregivers and health-care providers on placing and verifying placement of NG tubes now available as part of Ne...
Thursday, April 26, 2018   (0 Comments - view/add)
ATLAS Launch: What more can we do to support chronic intestinal failure patients? »
ATLAS Launch: What more can we do to support chronic intestinal failure patients? A discussion on rare diseases, European...
Wednesday, April 25, 2018   (0 Comments - view/add)
Could an IV vitamin drip be fatal? »
Experts warn the health kick inspired by stars including Kelly Osbourne and Andrea Mclean can have serious side effects -...
Tuesday, April 24, 2018   (0 Comments - view/add)
Boy, 5, becomes violently ill every single time he eats »
By: Harley Tamplin metro.co.uk, 4/24/18   A five-year-old boy suffers from a mystery illness that mean...
Wednesday, April 18, 2018   (0 Comments - view/add)
The missing link: Why disabled people can't afford to #DeleteFacebook »
By: Frances Ryan www.theguardian.com, April 4, 2018   Revelations about internet companies being negli...
Wednesday, February 21, 2018   (0 Comments - view/add)
Congressman Brian Fitzpatrick Recognizes A. Brooks Construction Kanga Roofs Holiday Roof Giveaway »
www.digitaljournal.com, 2/21/18   This press release was orginally distributed by SBWire Bristol, PA --...
Tuesday, January 23, 2018   (0 Comments - view/add)
IV bag shortage leads MGH to use Gatorade to hydrate patients »
By: Jadiann Thompson whah.com, 1/18/18   BOSTON (WHDH) — The United States is dealing with an IV bag s...
Tuesday, January 23, 2018   (0 Comments - view/add)
Home Care Agencies Often Wrongly Deny Medicare Help To The Chronically Ill »
By: Susan Jaffe www.npr.org, 1/17/18     Colin Campbell needs help dressing, bathing and movin...
Thursday, December 28, 2017   (0 Comments - view/add)
Have bowel problems? New York now requires businesses to let you use the bathroom »
  Have bowel problems? New York now requires businesses to let you use the bathroom By Marnie Eisenstadt ...
Thursday, November 30, 2017   (0 Comments - view/add)
Two Councils Say: Vote House Bill Down, Start Over »
National Council of Nonprofits   Two Councils Say: Vote House Bill Down, Start Over The National Council of...
Thursday, November 30, 2017   (0 Comments - view/add)
News stories - Children's Miracle Network Hospital Hero: Madelyn »
By Brittany Lake WXOW.com, 11/24/17   Heroes come in all shapes and sizes. But what they all have...
Wednesday, November 29, 2017   (0 Comments - view/add)
This Rockport trio has holiday spirit despite sad circumstances »
Tom Whitehurst Jr. Corpus Christi Caller-Times, 11/22/17   ROCKPORT - The facts would add up to a sad...

Displaying page 1 of 4
1  |  2  |  3  |  4

more Calendar

5/11/2019
Oley Regional Conference - Santa Monica, California

6/21/2019 » 6/24/2019
2019 Oley/UI Health Combined Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
Membership Management Software Powered by YourMembership  ::  Legal