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Latest News
Wednesday, October 30, 2019   (0 Comments - view/add)
Faculty, students expand scope of cutting-edge feeding tube studies »
today.troy.edu, 10/25/19   Troy University’s Kinesiology and Health Promotion department has made strides in...
Tuesday, October 22, 2019   (0 Comments - view/add)
Pols seek answers on sick immigrant medical program »
Pols seek answers on sick immigrant medical program Pressley, Markey say Trump administration not following through on...
Wednesday, October 16, 2019   (0 Comments - view/add)
Hannah Jordan Goes from Deathbed to Cycling Star 18-Year-Old’s Amazing Rise Due to Personal Resolve »
By John Zant www.independent.com, 10/16/19   As she approached her ninth birthday, trapped in a listless b...
Wednesday, October 16, 2019   (0 Comments - view/add)
Liquid food safety alert leaves woman with no food for 10 days »
By Selma Chalabi BBC News, 10/16/19   A woman who relies on liquid food after having most of her intestine...
Tuesday, October 8, 2019   (1 Comment - view/add)
Why Sia’s Reveal of Chronic Pain from Ehlers-Danlos Is So Important »
By Julia Ries www.healthline.com, 10/07/19   Australian singer Sia has revealed that she has a rare conditi...
Tuesday, October 8, 2019   (0 Comments - view/add)
Charlene Compher to receive 2019 Norma M. Lang Award for Scholarly Practice & Policy »
University of Pennsylvania School of Nursing www.eurekalert.org, 10/4/19   Charlene Compher, PhD, RD,...
Tuesday, October 8, 2019   (0 Comments - view/add)
Take the time to learn about Zellweger syndrome »
By Jessie Evans www.bendbulletin.com, 10/4/19   On June 7, 2019, on the floor of our living room,...
Tuesday, October 1, 2019   (0 Comments - view/add)
Patients with intestinal failure associated with Short Bowel Syndrome and those suffering... »
Patients with intestinal failure associated with Short Bowel Syndrome and those suffering spasticity in the upper limbs wi...
Wednesday, September 25, 2019   (0 Comments - view/add)
Madisonville Joan Doe still not named after three years »
By: Angeline Hartmann www.corsicanadailysun.com, 9/21/19   At the edge of a pasture off Interstate 45,...
Wednesday, September 4, 2019   (0 Comments - view/add)
NHS faces legal action from ‘abandoned’ IV feed patients »
By: Shaun Lintern29 www.hsj.co.uk, 8/2019   The NHS and the national medical regulator could face legal ac...
Tuesday, August 27, 2019   (0 Comments - view/add)
Toddler faces threat of starvation amid UK shortage in specialist food supplies »
By Latifa Yedroudj, Keane Duncan, Latifa Yedroudj www.mirror.co.uk, 8/22/19   A toddler could face st...
Thursday, August 15, 2019   (0 Comments - view/add)
This little boy has a disease so rare, it doesn't even have a name »
By: Nicole Pelletiere www.goodmorningamerica.com, 8/13/19   Cohen Bramlee has been hospitalized most...
Tuesday, July 23, 2019   (0 Comments - view/add)
Hundreds of patients at risk amid major delays to IV feed supplies (UK AREA) »
Hundreds of patients, including children, dependent on intravenous nutrition to keep them alive are experiencing delays in...
Tuesday, July 23, 2019   (0 Comments - view/add)
2nd Annual Le Bonheur Pediatric Nutrition Symposium »
2nd Annual Le Bonheur Pediatric Nutrition Symposium September 27-28, 2019, Le Bonheur Children’s Hospital, Memphis, TN...
Tuesday, July 23, 2019   (0 Comments - view/add)
Tuesday, July 23, 2019   (0 Comments - view/add)
INTENS - Intestinal Tissue ENgineering Solution »
The overall aim of INTENS is to deliver a functional bowel reconstruction to patients with this rare disease (SBS) through...
Tuesday, July 23, 2019   (0 Comments - view/add)
Hart To Heart: Summer camp for kids with severe special needs »
By: Anne Hart www.savannahnow.com, 6/28/19   Every child deserves a chance to attend summer camp....
Tuesday, April 2, 2019   (0 Comments - view/add)
Women We Love: Edinburg pediatric surgeon believes fate intervend in her career path »
By Colleen DeGuzman themonitor.com, 3/28/19   Dr. Jennifer Garza started working at Edinburg Medi...
Thursday, February 21, 2019   (0 Comments - view/add)
Thousands marching against rare diseases; Still time to join Racefor7 2019 »
The Racefor7 Rare Disease Day run on Sunday, the 24th February is approaching the starting mark. Will you be joining them?...
Thursday, February 21, 2019   (0 Comments - view/add)
Education Amid Tragedy »
By Susan Burns, UOAA President   It’s heartbreaking. So many of us are torn apart by the recent news that a t...
Tuesday, January 22, 2019   (0 Comments - view/add)
Ailing federal worker says she'll get back lapsed insurance »
By: Andrew Selsky, Associated Press Updated 1/18/19   SALEM, Ore. (AP) - An ailing U.S. Fish and Wildl...
Tuesday, January 22, 2019   (0 Comments - view/add)
Ailing federal worker: Government needs to reactivate insurance »
By: Andrew Selsky KREM.com, 1/17/19   SALEM, Ore. — An ailing U.S. Fish and Wildlife Service worker in...
Tuesday, January 8, 2019   (0 Comments - view/add)
Living Well with a Feeding Tube »
By: Lisa Esposito US News and World Report, 1/04/19    NEARLY 450,000 Americans with swallowi...
Friday, December 14, 2018   (0 Comments - view/add)
Why I take pictures of babies with severe illnesses' »
Angela Forker photographs babies with disabilities and terminal illnesses, placing them in fantasy scenes.   C...
Wednesday, December 12, 2018   (0 Comments - view/add)
Monash Children's Hospital: Tiny battlers get chance to go home healthy »
By: Grant McArthur www.hearldsun.com.au, 12/08/18   They may have had a tough start to life, but...
Wednesday, December 12, 2018   (0 Comments - view/add)
Santa spreads Christmas cheer with special photo »
By: Michael Kuhn www.wane.com, 12/11/18   FORT WAYNE, Ind. (WANE) - A Kendallville mom is thanking...
Wednesday, November 21, 2018   (0 Comments - view/add)
Now That I can Only Eat With A Feeding Tube, Thanksgiving Has A New Meaning For Me »
By: Tracey Brittis www.huffingtonpost.com, 11/20/18   For most of my life, the idea of healthy eating...
Wednesday, November 21, 2018   (0 Comments - view/add)
Pecatonica woman with rare genetic disorder refuses to let condition rule her life »
By: Kathleen Cohen www.mystateline.com, 11/16/18   ECATONICA, Ill. - Her limbs tend to pop in and out...
Wednesday, November 21, 2018   (0 Comments - view/add)
How Do Wishes Granted To Very Sick Kids Affect their Health? »
By: Tara Haelle www.npr.org, 11/20/18   Tiffany Rowe, a 46-year-old life coach in the San Francisco...
Tuesday, November 20, 2018   (0 Comments - view/add)
More than 12K people in Arkansas have lost Medicaid coverage »
By: Nathaniel Weixel thehill.com, 11/15/18   More than 12,000 Medicaid beneficiaries in Arkansas have...
Thursday, November 1, 2018   (0 Comments - view/add)
7 images of a gastric peg tube used to save a baby pangolin »
www.news24.com Ryan Truscott, 10/30/18   In a world first, wildlife vets in Johannesburg have managed...
Friday, October 12, 2018   (0 Comments - view/add)
Living on an IV bag, Minneapolis runner won't let Crohn's disease slow her down »
By John Reinan Star Tribune October 5, 2018 — 6:04pm   If you think long-distance running is tough,...
Wednesday, October 3, 2018   (0 Comments - view/add)
Halloween is Just Around the Corner! »
Halloween Is Just Around the Corner! Support kids who cannot eat the usual candy treats by participating in...
Thursday, September 27, 2018   (0 Comments - view/add)
KGMU doctors use rarely used technique to fix a rare disorder »
By: Express News Service, 9/27/18   Six years ago, a day-old boy was brought to Prof S N Kureel, a pediatric...
Tuesday, September 11, 2018   (0 Comments - view/add)
PINNT's Medical Tag Patient Resource Wins Product of the Year at the 2018 CN Awards »
7 September 2018   NEWS RELEASE   PINNT’S MEDICAL TAG PATIENT RESOURCE WINS PROD...

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more Calendar

2/13/2020
Delmar NY Tube Feeding/TPN Support Group for Patients & Caregivers

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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