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Latest News
Tuesday, January 8, 2019   (0 Comments - view/add)
Living Well with a Feeding Tube »
By: Lisa Esposito US News and World Report, 1/04/19    NEARLY 450,000 Americans with swallowi...
Friday, December 14, 2018   (0 Comments - view/add)
Why I take pictures of babies with severe illnesses' »
Angela Forker photographs babies with disabilities and terminal illnesses, placing them in fantasy scenes.   C...
Wednesday, December 12, 2018   (0 Comments - view/add)
Monash Children's Hospital: Tiny battlers get chance to go home healthy »
By: Grant McArthur www.hearldsun.com.au, 12/08/18   They may have had a tough start to life, but...
Wednesday, December 12, 2018   (0 Comments - view/add)
Santa spreads Christmas cheer with special photo »
By: Michael Kuhn www.wane.com, 12/11/18   FORT WAYNE, Ind. (WANE) - A Kendallville mom is thanking...
Wednesday, November 21, 2018   (0 Comments - view/add)
Now That I can Only Eat With A Feeding Tube, Thanksgiving Has A New Meaning For Me »
By: Tracey Brittis www.huffingtonpost.com, 11/20/18   For most of my life, the idea of healthy eating...
Wednesday, November 21, 2018   (0 Comments - view/add)
Pecatonica woman with rare genetic disorder refuses to let condition rule her life »
By: Kathleen Cohen www.mystateline.com, 11/16/18   ECATONICA, Ill. - Her limbs tend to pop in and out...
Wednesday, November 21, 2018   (0 Comments - view/add)
How Do Wishes Granted To Very Sick Kids Affect their Health? »
By: Tara Haelle www.npr.org, 11/20/18   Tiffany Rowe, a 46-year-old life coach in the San Francisco...
Tuesday, November 20, 2018   (0 Comments - view/add)
More than 12K people in Arkansas have lost Medicaid coverage »
By: Nathaniel Weixel thehill.com, 11/15/18   More than 12,000 Medicaid beneficiaries in Arkansas have...
Thursday, November 1, 2018   (0 Comments - view/add)
7 images of a gastric peg tube used to save a baby pangolin »
www.news24.com Ryan Truscott, 10/30/18   In a world first, wildlife vets in Johannesburg have managed...
Friday, October 12, 2018   (0 Comments - view/add)
Living on an IV bag, Minneapolis runner won't let Crohn's disease slow her down »
By John Reinan Star Tribune October 5, 2018 — 6:04pm   If you think long-distance running is tough,...
Wednesday, October 3, 2018   (0 Comments - view/add)
Halloween is Just Around the Corner! »
Halloween Is Just Around the Corner! Support kids who cannot eat the usual candy treats by participating in...
Thursday, September 27, 2018   (0 Comments - view/add)
KGMU doctors use rarely used technique to fix a rare disorder »
By: Express News Service, 9/27/18   Six years ago, a day-old boy was brought to Prof S N Kureel, a pediatric...
Tuesday, September 11, 2018   (0 Comments - view/add)
PINNT's Medical Tag Patient Resource Wins Product of the Year at the 2018 CN Awards »
7 September 2018   NEWS RELEASE   PINNT’S MEDICAL TAG PATIENT RESOURCE WINS PROD...
Tuesday, September 11, 2018   (0 Comments - view/add)
U.S. FDA Writes a Letter to Healthcare Providers Encouraging the Use of Enteral Connectors... »
U.S. FDA Writes a Letter to Healthcare Providers Encouraging the Use of Enteral Connectors that Meet the ISO 80369-3 Stand...
Friday, September 7, 2018   (0 Comments - view/add)
Gov. Abbott honor's Beeville girl's request »
By: Taylor Alanis www.kiiitv.com, 8/30/18   Beeville (KIII News) — 1.5 million Americans currently suf...
Tuesday, August 14, 2018   (0 Comments - view/add)
Omegaven Receives FDA Approval »
Kathleen Gura, PharmD, and Mark Puder, MD, PhD Prior to 2004, children with parenteral nutrition associated liver...
Tuesday, July 31, 2018   (0 Comments - view/add)
Fundraiser planned for Cranston boy with small bowel syndrome »
By: Meri R. Kennedy cranstononline.com, 7/25/18   A Family Day Fundraiser to benefit SBSNE Inc. Nutrit...
Wednesday, July 11, 2018   (0 Comments - view/add)
Conference looks for solution to nationwide IV shortage »
  WMC Action News 5, Memphis, TN June 26, 2018   Something you take for granted when you're in the h...
Monday, May 7, 2018   (0 Comments - view/add)
Patients with a rare stomach disorder express alarm as TV news promotes nerve...... »
Patients with gastroparesis -- which can be caused by damage to the vagus nerve -- expressed alarm about news coverage of...
Thursday, May 3, 2018   (0 Comments - view/add)
ASPEN Releases Videos on Placement of NG Tubes »
Videos for caregivers and health-care providers on placing and verifying placement of NG tubes now available as part of Ne...
Thursday, April 26, 2018   (0 Comments - view/add)
ATLAS Launch: What more can we do to support chronic intestinal failure patients? »
ATLAS Launch: What more can we do to support chronic intestinal failure patients? A discussion on rare diseases, European...
Wednesday, April 25, 2018   (0 Comments - view/add)
Could an IV vitamin drip be fatal? »
Experts warn the health kick inspired by stars including Kelly Osbourne and Andrea Mclean can have serious side effects -...
Tuesday, April 24, 2018   (0 Comments - view/add)
Boy, 5, becomes violently ill every single time he eats »
By: Harley Tamplin metro.co.uk, 4/24/18   A five-year-old boy suffers from a mystery illness that mean...
Wednesday, April 18, 2018   (0 Comments - view/add)
The missing link: Why disabled people can't afford to #DeleteFacebook »
By: Frances Ryan www.theguardian.com, April 4, 2018   Revelations about internet companies being negli...
Wednesday, February 21, 2018   (0 Comments - view/add)
Congressman Brian Fitzpatrick Recognizes A. Brooks Construction Kanga Roofs Holiday Roof Giveaway »
www.digitaljournal.com, 2/21/18   This press release was orginally distributed by SBWire Bristol, PA --...
Tuesday, January 23, 2018   (0 Comments - view/add)
IV bag shortage leads MGH to use Gatorade to hydrate patients »
By: Jadiann Thompson whah.com, 1/18/18   BOSTON (WHDH) — The United States is dealing with an IV bag s...
Tuesday, January 23, 2018   (0 Comments - view/add)
Home Care Agencies Often Wrongly Deny Medicare Help To The Chronically Ill »
By: Susan Jaffe www.npr.org, 1/17/18     Colin Campbell needs help dressing, bathing and movin...
Thursday, December 28, 2017   (0 Comments - view/add)
Have bowel problems? New York now requires businesses to let you use the bathroom »
  Have bowel problems? New York now requires businesses to let you use the bathroom By Marnie Eisenstadt ...
Thursday, November 30, 2017   (0 Comments - view/add)
Two Councils Say: Vote House Bill Down, Start Over »
National Council of Nonprofits   Two Councils Say: Vote House Bill Down, Start Over The National Council of...
Thursday, November 30, 2017   (0 Comments - view/add)
News stories - Children's Miracle Network Hospital Hero: Madelyn »
By Brittany Lake WXOW.com, 11/24/17   Heroes come in all shapes and sizes. But what they all have...
Wednesday, November 29, 2017   (0 Comments - view/add)
This Rockport trio has holiday spirit despite sad circumstances »
Tom Whitehurst Jr. Corpus Christi Caller-Times, 11/22/17   ROCKPORT - The facts would add up to a sad...
Wednesday, November 22, 2017   (0 Comments - view/add)
Amino Acids Shortage Update »
ASPEN (American Society for Parenteral and Enteral Nutrition)   ASPEN continues to advocate for our patients...
Wednesday, November 22, 2017   (0 Comments - view/add)
Battling an invisible illness »
By Kimberly LaRussa The Buffalo News, 11/19/17   Every morning Diana Donnarumma of Buffalo wakes up an...
Tuesday, November 14, 2017   (0 Comments - view/add)
Blacktown family finds courage amid complex food allergies »
By: Harrison Vesey Blacktwonsun.com, 11/07/17     Maureen Moloney will never forget the moment...
Tuesday, October 31, 2017   (0 Comments - view/add)
Debilitating disorders prevents toddler eating »
By: Georgia Forrester Stuff.co.nz, 10/29/17     Luca Dalzell has never eaten a full meal in hi...

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more Calendar

2/9/2019
Oley Regional Conference - Dallas, Texas

6/21/2019 » 6/24/2019
2019 Oley/UI Health Combined Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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