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Doing everything possible for Gabby: A team approach to short bowel syndrome

Wednesday, August 26, 2020   (0 Comments)
Posted by: Andrea Guidi
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 | Patient Stories, 8/25/20

 

Gabriel “Gabby” Lopez loves everything hot and spicy. “He will eat a ghost pepper without hesitation,” says his mother, Mayra. “He eats more spicy food than a grown man.” It’s an impressive feat, not only because Gabby is just 3 years old, but also because he has spent the majority of his life receiving his nutrition through a central line and G-tube.

Born prematurely at 26 weeks, Gabby weighed just over 2 pounds. When he was 2 weeks old, he developed necrotizing enterocolitis, a serious illness that leads to the death of a baby’s intestinal tissues. As a result, he lost about 80 percent of his intestines and developed short bowel syndrome. In this condition, the body can’t absorb the nutrients to grow and thrive, and many children must receive nutrition intravenously through a central line (total parenteral nutrition, or TPN) or through a feeding tube.

“It’s scary to be told your child only has 20 percent of his intestine left,” remembers Mayra. “I could tell from the look on his doctors’ faces that they didn’t think he would be okay.”

 

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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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