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Why Sia’s Reveal of Chronic Pain from Ehlers-Danlos Is So Important

Tuesday, October 8, 2019   (1 Comments)
Posted by: Andrea Guidi
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By Julia Ries
www.healthline.com, 10/07/19

 

Australian singer Sia has revealed that she has a rare condition known as Ehlers-Danlos syndrome, which causes her chronic pain.

“Hey, I’m suffering with chronic pain, a neurological disease, ehlers danlos and I just wanted to say to those of you suffering from pain, whether physical or emotional, I love you, keep going,” the singer, 43, wrote on Twitter.

The syndrome, which causes genetic defects in connective tissue, is very rare, affecting at least 1 in 5,000 people around the world — Sia being one of them.

By opening up about her condition, Sia has put a spotlight on this rare disease that may spark a conversation and educate people about the rare and painful genetic condition.

Many people with the condition can go months or even years with symptoms before getting a diagnosis.

Many people with the condition experience hypermobile joints, loose, stretchy skin, and ongoing fatigue, which makes them more prone to injury and chronic pain.

While the condition has been recognized for centuries, experts say there’s still a lot to learn about it in order to improve the diagnosis, treatment methods, and outlook of this painful disorder.

 

Click here to read more on Sia's story.

Comments...

Kristy Poindexter says...
Posted Monday, October 14, 2019
WOW! I know so many battling EDS and other painful diseases. It's really great knowing that someone famous like Sia is facing her own chronic health issues and talking about them. I wish more people who are in the spotlight would do the same.

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This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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