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This little boy has a disease so rare, it doesn't even have a name

Thursday, August 15, 2019   (0 Comments)
Posted by: Andrea Guidi
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By: Nicole Pelletiere

www.goodmorningamerica.com, 8/13/19

 

Cohen Bramlee has been hospitalized most of his life.

Due to issues with his digestive tract, the 6-year-old cannot consume food the normal way and receives nutrition through a tube.

It's a disorder so rare, it's undiagnosed.

"It was this journey of trying to figure out, 'Why is he sick? Why is this happening?'" mom Carrie Bramlee, of Ohio, told "Good Morning America." "It was scary, it was frustrating and it was frightening."

Cohen has experienced these health issues since he was 4 months old. According to Bramlee, her child is ahead of science, and had been referred to the Undiagnosed Diseases Network at Duke University.

 

Click here to read more about Cohen's story.


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This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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