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Swapna Kakani wins Lyn Howard Advocacy Award at 2019 ASPEN conference

Tuesday, April 2, 2019   (0 Comments)
Posted by: Andrea Guidi
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Congratulations to Swapna Kakani, winner of the 2019 American Society for Parenteral and Enteral Nutrition’s (ASPEN) Lyn Howard Nutrition Support Consumer Advocacy Award. This award, named for Oley Foundation co-founder Dr. Lyn Howard, is given each year to a home parenteral nutrition (HPN) or home enteral nutrition (HEN) consumer or caregiver who has advocated for other HPN or HEN consumers.



Swapna has spoken to nonprofits, corporations, and medical audiences for the purpose of improving health-care delivery and the rare disease patient experience. She created a Facebook group for pre- and post-intestinal/multivisceral transplant patients and helped to get a joint resolution passed to create the Alabama Rare Disease Advisory Council, which educates state legislators on health policy and initiatives. Further, she hosted a state Rare Disease Day awareness event at the state capitol in 2018, and worked with the governor to name February 28 as Rare Disease Day in Alabama and February as Rare Disease Awareness Month. Read Swapna’s full story at www.oley.org/A_Life_Long_JourneySwapna_Kakani



Swapna encourages fellow consumers not to underestimate the value of their advocating. “When I started advocating,” she recounts, “I wanted to be a valued stakeholder, at the table next to clinicians, by informing myself beyond my own journey and filling the gaps we all share. But that didn’t happen overnight.” She continues, “Being recognized at ASPEN next to top clinicians, including my own home infusion pharmacist, is confirmation that my desire to be a health-care advocate is not crazy. More so, it is validation that the patient’s voice does matter AND can be at the table! Speak up!”



Swapna’s advice echoes the Oley mission, encouraging consumers to live as fully as possible. Swapna is an active Oley member, on the Oley Advisory Council, and a former Oley Ambassador. We couldn’t be more proud of her.

more Calendar

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Regional Conference - Las Vegas, Nevada (Industry)

10/4/2019
Regional Conference - Las Vegas, Nevada (Consumer/Caregiver/Clinician)

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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