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Mom has to stay at school with kindergartener...

Tuesday, October 16, 2018   (0 Comments)
Posted by: Andrea Guidi
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Mom has to stay at school with kindergartener because CPS hasn't provided nurse

By: Lauren FitzPatrick

Chicago Sun Times, 10/12/18

 

In June, Liam Miller’s mom thought she already had taken care of the most important thing to get him ready for kindergarten.

Because of an intestinal condition, her youngest needs a feeding tube in his belly 18 hours a day. At school, that means a nurse needs to constantly keep an eye on him and disconnect the tube before lunchtime so he can go play with the other kids.

 

So Krystal Miller took all of the necessary paperwork to school before summer break even began. A school nurse, a special education teacher, a caseworker and others from the Chicago Public Schools had helped determine in May that Liam would need a nurse for the first half of each school day — while he was connected to his tube. And they confirmed that one would be there.

Liam couldn’t wait to follow his older brother and sister to Oriole Park Elementary School on the Far Northwest Side. But when the little boy arrived for his first day of school — ever — there was no nurse.

Not the next day, either. Nor the day after that.

So each of those mornings, after sending his two older siblings in to class, his mother went to kindergarten with him. Most days since, she has had to stay.

 

Click here to read more about Krystal and Liam's story.


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Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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