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Fundraiser planned for Cranston boy with small bowel syndrome

Tuesday, July 31, 2018   (0 Comments)
Posted by: Andrea Guidi
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By: Meri R. Kennedy

cranstononline.com, 7/25/18

 

A Family Day Fundraiser to benefit SBSNE Inc. Nutrition Support Program will be held Aug. 11 at Oakland Beach in Warwick. Hosted by Nicole White of Cranston and the President of the Short Bowel Syndrome Foundation for Children of New England, Inc., the event will be held from 3 to 7 p.m. The Fundraiser will include a car show, live band, kids activities, food, vendors, and raffles. Organizers are still actively searching for volunteers and vendors for the event.

 

My goal is to help and advocate for others who live with severe GI conditions, such as Short Bowel Syndrome (aka SBS), like my son Kyrie because I want to help make living their condition easier, by providing various forms of support, said White.

 

Her son Kyrie, who is 6 years old now, lost all but 12cm of his small intestine when he was 6 days old and was then diagnosed with Short Bowel Syndrome. Individuals with this health condition often say they "eat through their veins", meaning they depend on IV nutrition, called Total Parenteral Nutrition (TPN), to survive.

 

Click here to read more about Kyrie's story.


This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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