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Oley Foundation PRIVACY POLICY

The Oley Foundation is committed to protecting the privacy of its members and website visitors. In general, the foundation only collects and stores the information that members and website visitors knowingly supply. Personal information will not be sold or shared with any company or organization for any reason. For safe keeping the database is stored and protected within a secure firewall.

 

The Oley Foundation is very protective of members’ right to privacy. All member information is held in the strictest of confidence.

 

The landscape changes when a member submits his/her name to a company or another organization for any reason. When an Oley Foundation member chooses to share contact information by, for example, responding to a non-Oley or a promotional mailing, raffle, or survey, or filling out information at a company’s exhibit at an Oley event, the member is, often unknowingly, giving the company “permission” to contact them again. The member may also be giving permission for companies to contact them by signing up for (non-Oley) newsletters or applying for (non-Oley) scholarships or grants.

 

The Oley Foundation may share a member’s name and contacting information with other members or nutrition support consumers/caregivers for networking purposes, but only after getting permission from the member first.

 

Nutrition support consumers and caregivers who have shared their stories and provided their names and contacting information on this website should not be contacted by third parties for solicitation, marketing, or research purposes.

 

Third Parties

Mailing labels are prepared in-house and sent to the Oley Foundation’s mailing service for the purpose of sending the newsletter and other Oley mailings only. Oley’s mailing service has agreed to respect members’ right to privacy and will not sell or share member’s name or information. Promotional emails, when sent by the Oley Foundation on behalf of Oley sponsors, are sent directly by Oley.

 

OLEY FOUNDATION TERMS OF USE

The Oley Foundation provides information through its website as a service to the home parenteral and/or enteral nutrition community, in keeping with its mission. The website is not intended to provide medical advice or recommend a course of treatment. Oley Foundation members and website visitors should discuss all issues, ideas, suggestions, etc., with their healthcare provider prior to use. The Foundation does not guarantee the accuracy of the information presented and is not liable if information is incorrect or incomplete. Users who do not agree with these Terms of Use and Privacy Policy, should refrain from using the services, or visiting the Website.

s all issues, ideas, suggestions, etc. with your

Membership

The Oley Foundation encourages visitors to join the Foundation, at no charge, to receive future emails and/or mailings, but a visitor does not have to become a member to use the website. Membership data is provided voluntarily. It is used to help the Oley Foundation improve the services it offers, and to help advocate for the home parenteral and/or enteral community. The Oley Foundation reserves the right to share general data related to membership, for example, the number of Oley members who are on home tube feeding, or the number of members who are registered dietitians. Members may access and edit their information at any time by signing in and selecting “Edit My Profile” on Oley.org. This can also be done by contacting the Oley Foundation directly. The Oley Foundation periodically sends members emails regarding items of interest. Members may select the types of emails they would like to receive and/or “opt out” or unsubscribe to those they do not. Members may opt-out of receiving future mailings by sending an e-mail to oleyfoundation@gmail.com or sending a letter to the Foundation at:

 

The Oley Foundation

Albany Medical Center MC28

43 New Scotland Ave. .

Albany, NY12208

 

Members do not have access to other members’ profiles or data. We do not allow member-to-member messaging or blog posts. Oley does not share member’s information without obtaining permission from that member first.

 

Find a Healthcare Professional

Professionals who register for the Find a Healthcare Professional directory agree to allow the Oley Foundation to publicly share the information they give when registering. See more at oley.org.

Order Forms

Through oley.org members can request information, register for events, access the Oley store, make donations, etc. Through these forms Oley may collect contact information (such as e-mail address) and/or financial information (like account or credit card numbers). The information obtained is used to fulfill requests or process payments/donations. It may also be used to send information about Oley, or to get in touch with members when necessary.

Contact information for members who use the Equipment Supply Exchange will be shared with others using the program to donate or obtain supplies, as deemed appropriate by Oley Foundation staff and/or volunteers, and as outlined in the program description. See oley.org/Equipment_Exchange for more information about this program.

Credit Card Information 
The Oley Foundation does not disclose or save credit card account information provided by its members, website visitors, and donors. When members choose to pay using their credit cards, Oley submits only the information needed to obtain payment. Credit card information is not saved or maintained in any Oley database.

 

Links

Please note that the Oley Foundation is not responsible for the content or privacy practices of
non-Oley websites to which this site may link.

 

Use of Cookies

The Oley Foundation uses cookies to store small amounts of information about visits to oley.org. This information is stored on the user’s computer, and helps to improve their experience the next time they visit the Oley website. Cookies used on oley.org help the website work better, keep track of user’s shopping cart, and may save their password so users don’t have to re-enter it each time they are required to log in.

 

Analytics

Google Analytics cookies may be used on oley.org. These cookies are used to collect information about how visitors use this site. The cookies collect information in an anonymous form, including the number of visitors to the site, where visitors come to the site from, browsing patterns on this site, and the pages they visited.

 

Policy Updates

This privacy policy may be updated at any time without notice. It is the user’s responsibility to review it regularly. Continued use of the website after posted updates to the Privacy Policy constitute acceptance of the modified terms of use. People who have objections to the privacy policy, should discontinue use of the site.

 

Social Plugins

This website may use social plugins (for example, Facebook or Twitter button) to allow users to share information. When a user visits oley.org, the operator of the social plugin may be able to place a cookie on their browser, to recognize users who have previously visited the Oley website. If a user has logged into the associated social media website before visiting oley.org, the social plugin allows that site to receive information about the user’s visit. The plugin may collect this information for any users who have logged into social networks, whether or not they interact with the plugin on the Oley website (for example, by clicking “Like” or “Share”). The social plugin may also allow the social media website to share information about the user’s activities on oley.org with other users of their website. For more information visit the social media website’s privacy policies and terms of use.

GDPR 
For more information on the EU General Data Protection Regulation (GDPR), please visit eugdpr.org

 

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2/2/2025 » 2/8/2025
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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information (except for videos and conference presentations); however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.


Oley members share their stories on our website for the benefit of others in similar circumstances. Please do not contact them for solicitation, marketing, or research purposes.

 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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