Regional Volunteers (Printable list)
Regional Coordinators are an integral part of the Oley Foundation’s outreach efforts. To date, the following patients/caregivers have accepted these volunteer positions. If you need someone to speak with, or are interested in a get-together, contact the volunteer nearest you (even if he or she is not in your region). We encourage you to contact any or all of the others as they have an assortment of knowledge and experience to share. To make speaking with fellow lifeliners more affordable, Oley also circulates two toll-free numbers to experienced HPEN consumers on a monthly basis. A schedule of the toll-free numbers is printed in the Lifeline Letter. The toll-free schedule, and updated RC list, are also posted on our webpage at www.oley.org and are available at the Oley office (800) 776-6539. Please call or email Bishopj@mail.amc.edu if you are interested in becoming a Regional Coordinator or learning more about what is involved. Regional Coordinators volunteer to provide peer support for HPEN patients and family members. They should not be contacted for solicitation, marketing or research purposes.
 Anna Cyr |
Anna Cyr (parent), HPN 195 Line Rd,. Leeds, ME 04263 207 933-1051 annahcyr@yahoo.com |
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Carol Pelissier, HEN 280 Elgin Ave. Manchester, NH 03104 (603) 625-2362 capunique@comcast.net |
 Jane Golden |
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Joseph Rogers
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Joseph Rogers, HEN 935 Rockdale Ave New Bedford, MA 02740 (508) 999-7363 JMR12667@aol.com |
 Joan Medwar |
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Melissa Fedell, HPEN 504 Sky view Dr. Rocky Hill, CT 06067 (860) 436-6628 1aprn4kids@att.net
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 Bettmarie Bond |
Betty (parent) & Bettemarie Bond, HPN 56 Rustleaf Lane Levittown, PA 19055-1421 (215) 946-0898 bbond23@aol.com(mom) bettemarie@aol.com |
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Sue Koprucki (parent), HPEN 5288 Vista Ave. Williamsville, NY 14221 (716) 688-4411 ma2mje@yahoo.com |
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LeeAnne Bye* (parent), HPEN 532 Ridgewood Dr. Northfield, NJ 08225 (609) 641-9087 allenleeannebye@aol.com |
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Bobbie Groeber (spouse), FC 810 Westfield Dr. Cinnaminson, NJ 08077 (856) 829-6649 |
 Bobbie Greober |
Malisa Matheny, HPEN Philadelphia, PA malilibear@aol.com |
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Kay Oldenburg (spouse), FC 204 Baker Blvd. Syracuse, NY 13209 (315) 635-9775 KFOldenburg@verizon.net |
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Judi Smith, HPN 10 Cindy Dr. Drums, PA 18222 570-328-5206 Judi@ptd.net |
 Alicia Hoelle |
Rose (parent) & Alicia Hoelle, HPEN 1449 Memorial Ave. Gibbstown, NJ 08027 (856) 423-4885 Rosiebowah@comcast.net (mom) suitepixie@yahoo.com |
 Rose Hoelle |
Pat McKenney, HPN RD 2 Sunset Dr. N. Salem, NY 10560 (914) 277-3275 |
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Sanford Schimel,
HEN |
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Cherie Dickerson, HEN 1021 German School Rd. Apt. 117 Richmond, VA 23225 (804) 231-4372 |
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Chuck Lindley, FC 1618 Finnsbury Dr. Burlington, NC 27217 (336) 229-9346 clindley@wfubmc.edu |
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Diane Cumberledge, HPN
18 Peyton Ave. St. Albans, WV 25177 (304) 727-8441 bcumberledge@juno.com |
 Diane Cumberledge |
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Davria
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Steve Cohen, HPN 1544 Eversham Pl. Crofton, MD 21114 (410) 721-3399 cohennet@verizon.net |
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Aliza Chana Zaleon, HEN 106 Spencer Ct. Chapel Hill, NC 27614 (919) 537-9588 azaleon@gmail.com |
 Aliza Chana Zaleon |
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June Bodden* , HPN 3259 Marigold Dr. Clearwater, FL 33761 (727) 784-9659 holycow4@webtv.net |
 June Bodden |
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Lynda Heasley, HPN 1242 Emerald Bay Dr. Destin, FL 32541 (850) 654-9667 Lyeabower@aol.com |
 Laura Krueger (parent), OFF 2680 Dromedary Dr. Memphis, TN 38133 (901) 795-4470 sethsmom10@msn.com Seth's Story Laura Krueger |
 Barbara Klingler |
Barbara Klingler, HPN 1290 Farnsworth Ave. Valkaria, FL 32950 (321) 724-4566 lbklingler@att.net |
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Jack Smith (parent), HEN 2624 Bucks Island Rd. Southside, AL 35950 (256) 413-3652 bossybaby@bellsouth.net |
 Jack Smith |
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Jameson Atkinson, HPN 2941 Mars Hill Rd. Watkinsville, GA 30677 (706) 340-7261 jatkinson952@gmail.com |
 Jameson Atkinson |
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Sonia Alagna (parent,) TR 12626 Houghton Dr. Dewitt, MI 48820 (517) 669-5940 |
James Cowan*, HPN 1472 S. Taylor Rd. Cleveland Hgts., OH 44118 (216) 932-3512 |
 Linda Gold & Kathleen McInnes |
Kathleen McInnes*, HEN Norwood Crossing 6016-20 N. Nina Ave. #482 Chicago, IL 60631 (773) 577-5237 mckathleen@yahoo.com |
Roberta Gelle*, HPN 964 Rosewood Dr. Elyria, OH 44035 (440) 365-0908 bgelle1@windstream.net |
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Tammi & Robert Stillion, HPN 11773 County Road F Wauseon, OH 43567 (419) 349-3907 Tammis705@aol.com Outdoorsman8888@aol.com
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Rosaline Ann Wu, HPN |
 Rosaline Ann Wu |
Elizabeth Tucker, HPN 18654 Kalmar Path Lakeville, MN 55044 (952) 435-0013 evtucker@charter.net |
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Bonnie Sjoberg, OFF 14942 62nd Ave Milaca, MN 56353 (320) 983-2138 centuryfarm92@webtv.net |
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Mary Patnode, HPN 14904 95th Pl. N., Maple Grove, MN 55369 (763) 420-7052 mpathjohn@aol.com |
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Robbyn Kindle, HPN 8409 Stoneybrooke Ct. N. Richland Hills, TX 76180 (817) 577-5432 robbynskindle@sbcglobal.net |
 Robbyn Kindle |
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Beverly Buchanan, OFF 3908 Equestrian Lane Bozeman, MT 59718 (406) 624-0350 Knitter63@gmail.com |
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Emily & Brian Hoopes (parents) HPEN 4213 Barker Rd. Taylorsville, UT 84119 (801) 955-6526 emily.hoopes@gmail.com |
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Bruce & On Braly, (parents) HPN 1239 E. 8th St. Davis, CA 95616 (530) 867-2209 b5bru@cs.com |
 Darla Edwards |
Darla Edwards, HPN 2764 Shearwater Way Fairfield, CA (707) 437-0241 cookie0241@aol.com |
 Judith Peterson |
Judith Peterson, OFF 2825 Chatsworth Blvd. San Diego, CA 92106 (619) 226-2061 catsjp@cox.net. |
 Eleana & Erin Shore |
Eleana Shore
(parent), HEN 6430 Bobbyboyar Ave. West Hills, CA 91307 (818) 888-4302 eleanashore@sbcglobal.net |
 Carla Truman |
Carla Truman (parent).
HPEN 3113 W. Shangri-La Rd. Phoenix, AZ 85029 (602) 547-8952 ctruman6@gmail.com |
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 Patty Woods |
Patty Woods (parent), FC 3626 Cougar Canyon Hemet, CA 92545 (951) 766-5145 pattywoods@mac.com |
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 Tara Smith |
Tara Smith (parent), OFF 11605 W. Hadley St. Avondale, AZ 85323 (760) 922-6710 smith.tarasmith@gmail.com |
 Laurie McBride |
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Don Freeman, HPN 23 Halley St. Nepean, ON K2J 3W5 (613) 825-4341 donfreeman@sympatico.ca www.cpena.ca |
 Don Freeman |
Shannon Curran, HEN 405 Blake St. Barrie, ON L4M 1L1 (705) 728-6123 shannoncurran@rogers.com |
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Carolyn Wheatley, HPN |
 Carolyn Wheatley |
John
Reinhardt McDonald, HPN
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| * = Has info on support meetings HPN = parenteral (IV) Nutrition HEN = enteral (tube-fed) nutrition HPEN = IV & tube-fed nutrition TR = small bowel transplant OFF = not on therapy at this time FC = former caregiver |
Last Updated: September 8, 2010