- Meet Consumers/Patients
|About Oley: Video Descriptions|
Support For Life
"Support For Life” is a brief, educational summation of the Oley Foundation’s mission. In this 15 minute DVD, viewers are introduced to the different kinds of nutrition support, some of the people sustained by this therapy, and the ways in which the Oley Foundation works to improve their quality of life. As an organization, Oley seeks to unite a widely dispersed community of chronically ill patients, empower them through education, and give a unified voice to its members. Like the Foundation’s other work, this video brings the facts together in a concise, easy to understand manner which will improve your understanding of home nutrition therapy.
A Day in the Life of a Child
In this video you are welcomed into the household of the Miller family. The Millers have three children, one of whom is tube fed. Jessica has been dependent on tube-feedings since birth, and her family is prepared to show you just what that means. Through close relationships with doctors, nurses, and dietitians, the Millers ensure that Jessica gets the nutrition she needs to grow. They discuss some of the ways that tube feeding became a routine in their home and the ways that they’ve made it fit in to Jessica’s school and social schedules. They share tips for keeping a sterile environment in a house with three children, and tips for helping Jessica fit in with her peers. Jessica’s mom advises that you "just follow the steps and get into a routine. Once you can do that, everything is pretty easy.” If your child is new to tube feeding, this video is an excellent resource to give you a glimpse of another family just like yours.
Life with Mic-key (Low profile gastrostomy tube)
This 10-minute video serves as an informative and introductory guide for adapting to life with a Mic-key low profile feeding tube. "Low profile” means that the Mic-key tube lies very close to the patient’s body and does not stick out. It’s slim design allows more air to circulate around the stoma site and makes it easy to care for. The Mic-key tube uses a balloon to hold it in place and comes with several important accessories, including two types of extensions sets and an anti-reflux valve.
For a brief time investment, this video can provide you with a comforting introduction into the use of a Mic-key feeding tube. The video covers important topics and some helpful hints for more comfortable feeding. As you’ll learn in the video, "Life with Mic-key is not much different from life before Mic-key.”
"Mealtime Notions — The ‘Get Permission’ Approach to Mealtimes and Oral Motor Treatment.”Marsha Dunn Klein, MEd, OTR/L
The "Get Permission” approach is a feeding method to help children progress in their therapeutic oral motor, and mealtime treatments by minimizing resistance and maximizing cooperation. Marsha Dunn Klein narrates effective ways of encouraging your child to permit enhanced nutrient intake. There are two basic concepts which make this approach successful:
1. The parent sets the goals.
2. The child sets the pace.
This video explores the development of trusting feeding relationships, understanding the child’s pace, and strategies for increasing permissive behavior. Tools discussed in this video include an introduction to the "sensory continuum,” a description of the "around the bowl technique,” and tips for removing the stress from your child’s mealtime.
3/2/2017Riding the Tube
2/9/2017Mums team up for "tubie" support