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Un*whole*y*ness
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un•whole•y•ness


I lie awake in bed at night

Hoping to fall asleep
To dream…to be whole
The soft whir of the pump
ka-chunk ka-chunk
Moving liquid nutrients into my heart
And eventually into what’s left of my gut
How did I become this creature?
This artificial being in body
While still real and whole in mind and soul
How can the body fail so as to betray
the spirit that drives me?
And how do I go on from here
To fulfill my purpose with such distraction?
Tomorrow is another day
To push through the daily rituals
Until the whir of the pump once again
Lulls me to sleep…and I become whole

MaryAnn Neblock

LifelineLetter, July/August 2017

 

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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