- Meet Consumers/Patients
|Friendships Grow at 2015 Oley Conference|
Friendships Grow at 2015 Oley Conference
Lynn Wolfson, Oley Ambassador
The knowledge, friendships, and support I received by attending the Oley annual conference was absolutely wonderful! I traveled to the meeting in Saratoga Springs, New York, with my nurse and service dog, Zev, from Fort Lauderdale, Florida.
At the conference, I met Rose Wu, a woman with whom I have spoken on the phone and have been Facebook friends with for years, but had never met. We both have the same disease and found much comfort and excitement in finally getting to meet each other.
In addition, I met another woman on enteral feeding from Atlanta, Georgia, who I continue to keep in touch with and to see a few times a year through lobbying together for digestive diseases in Washington, D.C.
The conference sessions were very informative. I learned how to better take care of myself and how to advocate better. In addition, there were roundtable sessions where we were able to share instances with other patients who have also encountered similar situations. It was so nice to find other people who truly understand what it is like not to be able to eat.
The social activities were very enjoyable. They provided another opportunity to meet other people from around the country with chronic illnesses and to discuss our successes.
These friendships have helped me become the strong and confident woman I am today. I no longer feel victimized as a patient. I have friends who truly understand the difficulties of having a chronic disease and not to be able to eat. We are able to support each other in good and bad times.
I am proud to say that I am now an Oley Ambassador, encouraging other patients on tube feeding to take care of their medical needs and to live life to the fullest.
LifelineLetter, March/April 2016