Home   |   Donate   |   Industry   |   Print Page   |   Contact Us   |   Your Cart   |   Sign In   |   Join Now
Keyword Search
Off Therapy Ambassadors
Share |

Click on the More in this Section... menu above for Volunteer listings by category. 

 

 


 

 

The main goal of the Oley Ambassador is to heighten awareness of Oley resources whether it is in their geographic area, social networking community, clinical circles, etc. The “job” responsibilities can be flexible based on the Ambassador’s skills, available time, and interest. Please call (518) 262-5079 or e-mail metzgel@mail.amc.edu if you are interested in becoming an Oley Ambassador or learning more about what is involved. 

 

HEN = has experience with enteral (tube-fed) nutrition

HPN = has experience with parenteral (IV) nutrition

HPEN = has experience with IV & tube-fed nutrition

Parent = parent of HPN or HEN consumer

Spouse = spouse of HPN or HEN consumer

* = Has information on support group meetings

 

Please do not contact Ambassadors for solicitation, marketing, or research purposes.


Joan Medwar

                       

8 Roberta Rd.
Sharon, MA 02067
(781) 784-3341

joanmedwar@yahoo.com

 

 

Joan and her son, Michael, have had Crohn’s disease for over thirty years and have been Oley members, with Joan's husband, Eli, since the 1980s. In addition to Crohn’s, which left her with an ileostomy, Joan also has celiac disease. Joan's late son, Greg, who is profoundly mentally challenged and required total care. She managed to keep him home for eighteen years before he was placed in a group home facility for the mentally challenged.

 

Joan has dealt with the hospitalizations of both her sons, various treatments (physical therapy, homePEN, etc.), and outside help such as home health aides, therapists, and respite care. At the present time, both Joan and Michael are off HPN. Joan has a nursing background, but credits her personal experience with helping her understand how a chronic illness impacts one’s life--emotionally, physically, and financially.

 

Joan's hobbies, including crafts and gardening, help her cope with daily pressures. She also finds strength through her wonderfully supportive husband and family and friends. She considers it very important to seek aid through support groups, government services, and psychological counseling. With all of her experience, Joan hopes to provide some insight and emotional support to people with chronic illness.

 

Aliza Chana Zaleon

106 Spencer Ct.
Chapel Hill, NC 27614
(919) 537-9588

 

Aliza’s journey with HPEN has been a complicated one. She had gastric bypass surgery in December 2004 and at the end of March 2005, developed severe vitamin deficiencies that destroyed the nerves in her legs, leaving her unable to walk more than short distances and dependent on IV vitamins. After a septic event in December 2005, her IV regimen was expanded to partial PN. In mid-2006 she developed motility disorders--gastroparesis, chronic intestinal pseudo-obstruction, colonic inertia, and achalasia--and had a g-tube placed to start HEN. She had several line infections until she was weaned off her partial HPN in May 2009. She is currently on continuous g-tube feeds with an elemental formula. She has underlying lung diseases (bronchiectasis, cystic fibrosis, and asthma) which are complicated by her motility disorders, and has pseudo tumor cerebri and a VP shunt. She is heavily involved in G-PACT, a non-profit organization which supports patients and advocates for awareness of GI motility disorders, and runs a support group for motility disorders in Durham/Chapel Hill, NC.


Beverly Buchanan             

4902 61st Dr. NE
Marysville, WA 98270

Knitter63@gmail.com

 

Diagnosed with Crohn’s disease, Beverly Buchanan started HPN in 1982 due to short bowel syndrome, but is currently off nutrition support. She says that the LifelineLetter has been a great help on her journey with homePEN and would like to share her expertise with fellow consumers. In addition to her experience with HPN, Beverly has a background in nursing and many years of experience with public service and public speaking. She is married and has three children.

 



Updated 8/16/16

 

more Calendar

2/6/2017 » 2/10/2017
Feeding Tube Awareness Week

2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
Membership Management Software Powered by YourMembership  ::  Legal