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Tube Talk: Adapting Backpacks
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            My name is Candace. My son, who has holoprosencephaly (HPE), is fed by a G-tube. I started adapting backpacks for him to use while being fed with his feeding pump because the clamp for the feeding pump was scarring up the frame to his wheelchair. Now I have an Etsy shop at www.etsy.com/shop/adaptedbackpacks4all, where people can order adapted backpacks.

            

Both the Joey and the Infinity pumps can fit inside a backpack along with the feeding bag, which hangs inside by Velcro. The tubing comes out the back or side of the backpack through an opening reinforced by a grommet. Different people like it different ways. I communicate with those who order to make sure it is the way they prefer.  There are different sizes of backpacks. Some people from other countries have feeding pumps where the feeding bag setup is different from the Joey and Infinity pumps. I have a way of adapting a backpack for them also.

           

 Prices range from $15.50–$ 18.50 plus shipping.

—Candace, candacelmobley@gmail.com

Other backpack ideas, including suggestions for modifying your own backpack, are available at http://www.oley.org/tubetalks.html (under "Helpful Products”). 

 

LifelineLetter, May/June 2015


more Calendar

5/6/2017
Oley Regional Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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