- Meet Consumers/Patients
|Tube Talk: Adapting Backpacks|
My name is Candace. My son, who has holoprosencephaly (HPE), is fed by a G-tube. I started adapting backpacks for him to use while being fed with his feeding pump because the clamp for the feeding pump was scarring up the frame to his wheelchair. Now I have an Etsy shop at www.etsy.com/shop/adaptedbackpacks4all, where people can order adapted backpacks.
Both the Joey and the Infinity pumps can fit inside a backpack along with the feeding bag, which hangs inside by Velcro. The tubing comes out the back or side of the backpack through an opening reinforced by a grommet. Different people like it different ways. I communicate with those who order to make sure it is the way they prefer. There are different sizes of backpacks. Some people from other countries have feeding pumps where the feeding bag setup is different from the Joey and Infinity pumps. I have a way of adapting a backpack for them also.
Prices range from $15.50–$ 18.50 plus shipping.
—Candace, email@example.comOther backpack ideas, including suggestions for modifying your own backpack, are available at http://www.oley.org/tubetalks.html (under "Helpful Products”).
LifelineLetter, May/June 2015
2/6/2017 » 2/10/2017
Feeding Tube Awareness Week
2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week