- Meet Consumers/Patients
|Newsletters: Toilet Paper Flowers, A Story about Crohn’s Disease|
Toilet Paper Flowers, A Story about Crohn’s Disease, by Frank J. Sileo, PhD
(Health Press, www.healthpress.com, $14.95)
Toilet Paper Flowers is a short paperback picture book about Julia, a little girl with Crohn’s disease. When Julia’s new friend Nikki comes to Julia’s for a sleepover, Julia ends up telling her all about Crohn’s, what doctors’ visits are like, and some of her feelings about Crohn’s. They share stories and giggles, and, in the end, a hug. It is a sweet story of friendship, and of a strong little girl who happens to have Crohn’s. It could be a great resource to begin a discussion of what it might be like to live with Crohn’s.
The book includes an introduction by the author, a licensed psychologist who works with children with Crohn’s disease and their families. It also includes a glossary and instructions for making toilet paper flowers. It is, as Dr. Sileo says in the introduction, a story of “a child being hopeful despite adversity.”
LifelineLetter, November/December 2010