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Tasting Life, by Lee Koonin

Reviewed by Don Young


Readers who are familiar with Crohn’s disease will recognize the long and slow path to control over this disease in the 1950s and 60s that Lee describes in Tasting Life. Yet this is not just a story of one woman’s triumph over a disease and her use of parenteral nutrition. This is a modern-day love story of sacrifice and endurance.

 

For those of us who knew Lee, reading this story will be like having a conversation with her. It’s not often we get such an opportunity!

 

In addition to being among the first people to go home on parenteral nutrition, Lee Koonin co-founded (with her husband Marshall) the Lifeliner Foundation, and spent countless hours talking to the media, professional organizations, and other patients in an effort to educate them about parenteral nutrition. These efforts are recounted in the book, as is the history of the Lifeliner Foundation, which, when it became too much for the Marshalls, was merged into the Oley Foundation.

 

This book is available as a download from Amazon and Apple ($8.99) or in hardcover ($20). Order a copy of the hardcover edition by e-mail to tastinglifebyinaleekoonin@yahoo.com. If you send an e-mail directly to Marshall telling him you heard of the book through Oley, he will donate part of the purchase price to the foundation (e-mail Marshall at timber285@yahoo.com).


LifelineLetter, September/October 2013

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5/6/2017
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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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