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Support Groups

The following Oley Ambassadors have information on support groups happening in their area. Contact the volunteer for details on the next meeting. These volunteers should not be contacted for solicitation, marketing or research purposes.

 

Click name to e-mail.

  

Bob & Mary Smithers

2843 SW 92nd Terr.
Gainesville, FL 32608
(352) 331-8490

 

Emily & Brian Hoopes

(Parents) HPEN
4213 Barker Rd.
Taylorsville, UT 84119
(801) 955-6526

Support Group for Parents of Short Gut children

Linda Stroshine, HPEN

2112 Ottawa River Rd.
Toledo, OH 43611
(419) 726-2833

More Information

Rosaline Ann Wu*, HPN

14339 Hix Rd.
Livonia, MI 48154
(734) 464-2709

Meet Rosaline Wu

Don Lacey, HPN Caregiver

428 Karen Ct.,
Oshawa, Ontario,
Canada L1H 7B4
(905) 579-4737

 

Laurie E. McBride, HPEN

837 Sayward Road
Victoria, BC
V8Y1R5
(250) 658-2915

Oley Members Share Experiences in Western Canada 

 

  • In addition, check out our online chat forum for peer support.
  • Watch this video to see the value of participating in support groups. 

Other Organizations  

Disease specific support groups are available through other organizations, such as:

  • Eosinophilic Disorders Support Group (Utah) Please contact UFAN’s Division of Eosinophilic Support for up-to-date meeting times and schedule. The group offers support, education, and advocacy to patients and families affected by eosinophilic disorders. Topics include tube feedings, elimination diets, school rights and laws and many other subjects. Tammy Zundel, Utah Food Allergy Network, Director of Eosinophilic Support

    does@utahfoodallergy.org.

  • Gastroparesis Patient Association for Cures & Treatments, Inc. (G-PACT)
    www.g-pact.org 1-888-URG-PACT

   


Updated 12/1/14


more Calendar

2/6/2017 » 2/10/2017
Feeding Tube Awareness Week

2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week

5/6/2017
Oley Regional Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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