- Meet Consumers/Patients
|Tube Feeding Tips: Portable Syringe Holder|
Tube Stand Makes Feeding Easier
My father, “Buckwheat,” needed a PEG feeding tube because of ALS (amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease) bulbar onset. As ALS robbed him of the strength in his hands, he was unable to feed himself. After many online searches, I was frustrated that there wasn’t a product that fit his need, so I decided I would build him a one-off feeding tube holder. I came up with “The Buckwheat” that was a single-hand operation and he was able to keep his independence.
The Buckwheat keeps the syringe securely connected to the feeding tube [or extension set], so there are no leaks or hand cramps from holding them together. It comes in two sizes: to hold a 60 mL syringe or a 140 mL syringe.
Proceeds from the sale of every Buckwheat go to covering the overhead costs of running a charity bike ride (ALS Bike Trek MN) that I started after my father passed. Since I started the trek in 2010, we have raised over $640K for ALS research.
—Justin Rumley, email@example.com
The Buckwheat is available for $69.99 (includes shipping within the United States) from www.feedingtubeholder.com or (515) 201-5327.
LifelineLetter, March/April 2016
| David using the stand to feed.
Since being on a feeding tube for two years, I have found myself facing many challenges and always searching for easier ways to do things. I am bolus feeding using a PEG tube, and I use the gravity system through a 140 cc syringe. As you may know, when gravity feeding, you pour formula or blended food into a syringe and then hold the syringe in one hand while formula flows in through your tube. Eating like this can take a long time, and your arm can become very tired in this position.
This was very frustrating to me as I only had one hand left to do the things I wanted to do while feeding, such as use the computer, read the newspaper, etc. It’s so much easier to do these things with two hands.
After I had been on the tube for one year, I was searching the Internet one day and found a syringe holder and clamp. I was thrilled by this discovery and ordered one immediately. When it arrived, I was excited and amazed at how well it worked. Now, I don’t know how I lived without it!
It’s such a great tool to have. You can use various sizes of syringes (i.e., 60 cc, 70 cc, 140 cc, etc.), and it helps to alleviate spillage. It’s like having a third hand!
By the way, traveling with it is very easy. It’s very portable. The base will fit on any standard table and some chairs, and it has a flexible arm. I highly recommend this product to give you a more useful and comfortable way to feed. For more information go to www.jofas.net.
—David Rowland, firstname.lastname@example.org
LifelineLetter, September/October 2014