Tissue-engineered Small Intestine: A Proposed Future Treatment for Short Bowel Syndrome Kathleen Holoyda, MD, and Tracy Grikscheit, MD Learn about crypts, villi, stem cells, and the inside of the small bowel; current therapies for short bowel syndrome (SBS); and how laboratories around the world are working on new long-term solutions for SBS, including tissue-engineered small intestine (TESI).
Beth Gore Beth and her husband have adopted six children. Their sixth child, Manny, is medically complex. "He spends a lot of time inpatient. Because of that," she says, "I've discovered a few things." Read Beth's ten suggestions on how to make the next hospital experience better.
Aluminum Accumulation in the Bones of Patients on Long-term PN Pamela C. Kruger, PhD; Patrick J. Parsons, PhD, FRSC; Aubrey L. Galusha; Michelle Morrissette; Robert R. Recker, MD; Lyn J. Howard, BM, FRCP Aluminum contamination of parenteral nutrition formulations is widespread and variable.
Sanford Flach Sanford was very reluctant to get a feeding tube. At sixty-seven, he was "way too young" to have to depend on a tube for his nutrition. But after he failed yet another swallowing test, he decided it was time. Read more about Sanford's story.
Mary T. Tessier, RN, Vascular Access Specialist There are several products available to help you keep your central line clean and secure, which is important for avoiding infection and preserving the lines. Learn why it is important to keep your line secure and what products can help.
Seven Oley Foundation awards were presented at the 2015 Annual Conference. The Oley award winners are selected for their courage, perseverance, generosity, and/or positive attitude for dealing with illness or caregiving. Read more about these inspiring Oley members.
Three HomePN Research Prizes were presented at the 2015 Annual Conference. The HomePN Research Prizes are rewarded for research relevant to home IV nutrition consumers. Read more about the research prize and the summaries.
Michaela Shelley "Being a teenager is difficult....Being a teenager with a feeding tube or IV nutrition and multiple medical challenges opens up uncharted territory...." Read about this remarkable young woman, her challenges, and her insights.
Craig Peterson, RD, CNSC D-lactic acidosis is a rare neurological syndrome that can occur in individuals with short bowel syndrome (SBS) or following jejuno-ileal bypass surgery. Neurological symptoms - which include altered mental status, slurred speech, confusion, disorientation, and more - may develop several months to years after initial diagnosis of a malabsorption disorder. Learn more about the symptoms, diagnosis, and treatment of D-lactic acidosis.
Joy McVey Hugick Advocacy can be defined generally as the act or process of supporting a cause or issue. It can occur on a local, state, or federal level. Learn why your voice matters, and how you can advocate effectively for issues that matter to you.
Jennifer Rath Jennifer writes, "BeforeI had children of my own, I used to work professionally with families who had children with severe dietary restrictions....It wasn't until I had my first child that I came to understand how challenging this task is, both logistically and emotionally." Jennifer's oldest child, Austin, has short bowel syndrome. In this article, Jennifer shares their experiences and some tips that have helped her family as they try to manage food restrictions with a minimum of stress.
Toni Bernhard, JD "Chronic health problems can take a toll on relationships any time of the year....But things can be especially difficult during the holidays, when people's expectations of one another are high and stress levels are likely to be off the chart for any number of reasons - health, financial, relationship issues." Toni Bernhard, who has written several books regarding chronic illness and coping methods, shares some ideas for minimizing holiday stress.
A question to the Oley offices prompted us to turn to the Oley Facebook page and Oley-Inspire forum for feedback from members. We asked how people with sensitive skin secured tubes or catheters. The response was overwhelming. Read on to see the list we compiled based on these suggestions. We have included a few of the comments, too, where we thought they might be helpful, as well as a link to an article with ideas for positioning the tape to avoid skin breakdown. Thanks to everyone who contributed!
Mark Klang, MS, RPh, BCNSP, PhD Medication delivery is always an issue for people on feeding tubes and their caregivers. It is commonly thought that liquid formulations of medications are the best option for administering through a feeding tube. However, just because a medication is in a liquid form doesn't mean it is ideal for a feeding tube. Read on to learn why, and what options are available.
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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
Updated in 2015 with a generous grant from Shire, Inc.
This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.