- Meet Consumers/Patients
|Newsletters: My Tubey: A Day in the Life of a Tube Fed Girl|
My Tubey: A Day in the Life of a Tube Fed Girl, by Rhiannon Merritt-Rubadue
Review by Nancy Sinkus
The picture book My Tubey: A Day in the Life of a Tube Fed Girl, by Rhiannon Merritt-Rubadue, portrays some very basic mechanics of feeding tubes, told as a young girl with a feeding tube goes through her day. Ms. Merritt-Rubadue wrote the book so her own daughter could see another child with a feeding tube like herself.
My son J. D. has had a “tubey” for nearly all of his eight-plus years of life due to swallowing difficulties. We’ve always tended to emphasize to J. D. that no one else he knows well has a feeding tube—that it’s not the norm—because we want him to increase his oral feeds. It took us by surprise to see how excited he was to see the girl illustrated in the book with what looks exactly like his low-profile feeding tube (or button). J. D. has definitely taken ownership of the book, continuing to be interested each time he picks it up, telling us the title, pointing out the tubey picture.
The book is great for kids for its very simple explanation of how a tube works. It would make a great show-and-tell for a tube-fed child in preschool or the primary grades. The same simple explanation, along with the glossary of feeding tube terms listed in the back, would also work as a great primer for the adults in J. D.’s life who were previously unfamiliar with feeding tubes. Well-meaning but uninformed family and friends would get a quick lesson in the basics, all while just doing a good deed by reading J. D. a book. He will happily sit through another reading of the book with the “tubey” girl just like him.
My Tubey: A Day in the Life of a Tube Fed Girl, My Tubey: A Day in the Life of a Tube Fed Boy, and There’s More Than One Way to Eat are available at www.mytubeybooks.com or by calling (253) 205-4281 ($12.99 each).
LifelineLetter, November/December 2012
2/6/2017 » 2/10/2017
Feeding Tube Awareness Week
2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week