- Meet Consumers/Patients
|Support Groups: Michigan Metro|
Michigan Metro TPN Support Group
April 27, 2014
Greetings everyone. My name is Rosaline Wu and I have been married to Bill for 45 years. I thought since you will hopefully be coming to our home on May 4 that I would introduce myself.
I have been on home parenteral nutrition (HPN) for 25 years due to Hirschsprung’s and pseudo obstruction disease. I was introduced to the Oley Foundation in 1992 and the following year we attended the Oley Summer Conference in Cleveland, Ohio. By that time, we were also members of the MICHIGAN METRO TPN SUPPORT GROUP, Offering Outreach and Support to Those on Home Parenteral and Enteral Nutrition Therapy.
For a long time I have dreamt we could have a group of people getting together monthly to learn how to make our lives the best that they can be.
What are some of your problems? What would you want to know about? We can have doctors visit, but also, what about lawyers explaining what we need to know, such as the differences between “living will” and “MI Durable Power of Attorney”? We all use different medications, and with medication comes problem of “dry mouth.” HeaIth and life insurance questions? Do you want to know what is taxable and what is not? Want to learn more about physical therapy and Rolfing therapy? (Do you know what Rolfing therapy is? I didn’t until I had it, and it worked for me!)
PLEASE COME AND JOIN US. WE CAN LEARN TOGETHER. LAUGH TOGETHER, AND MAKE OUR LIVES THE BEST THEY CAN BE.
Hope to see you.