Home   |   Donate   |   Industry   |   Print Page   |   Your Cart   |   Sign In   |   Join Now
Keyword Search
Mallory & Maisy Cyr
Share |

A Tale of Two Sisters

 

Mallory and Maisy Cyr are two sisters from the small town of Sabattus, Maine. Since they have both been on HPN the majority of their lives; their stories and accomplishments are anything but small.

 

Rare Disease Leads to HPN 

Mallory was diagnosed with a very rare digestive disorder called microvillous inclusion disease. This means that her microvilli are ingrown and the step of absorption in digestion is omitted. Because of this, Mallory had a central line placed and has been on home parenteral nutrition (HPN) over thirty years.


It took a little over a year for Mallory to be diagnosed because the only symptoms are diarrhea and vomiting. Because of the rarity of this disease, treatment when Mallory was a child was still quite experimental. She was deprived of certain essential nutrients and only grew to a height of 3’9”. Her family had been given a prognosis that she would not live past the age of two.


Mallory graduated from the University of Maine at Farmington in 2007 with a degree in creative writing. She was involved in almost every extracurricular activity available through her years at school, not to mention her very active social life. Since graduating, Mallory has become a national advocate for young adults living with disabilities and complex medical conditions.


In 2011, Mallory received a special invitation from President Obama to attend a Disability Policy Seminar at the White House. She has provided keynote presentations and technical assistance all over the country on the topics of transition to adulthood, meaningful youth engagement, and self-determination for young adults. In 2015, Mallory graduated with a master’s degree in public health from Boston University School of Public Health. She currently lives in Denver, Colorado, with her husband, Owen, and, in addition to her 9 to 5 job in health policy, is the author of the blog Curb Cuts and Cocktails (CurbCutsandCocktails.com)


To learn more about Mallory, you can visit her website, MalloryCyr.com

 

Walking in Familiar Footsteps 

Maisy Cyr is twenty-four years old and lives in Maine. She has been a consumer of TPN/HPN for her entire life. With the support of her family, she has never let this slow her down. Having finished college with a degree in sociology, Maisy now works in youth development, teaching STEM activities and helping young people develop life skills. She is also working towards a master’s degree in social work.
When she’s not hard at work, Maisy spends her free time either at the barn with her beloved pony, Rosie, or taking a dance class. She is also beginning to dabble in the world of modeling, despite having a central line.


Growing up, Maisy watched her older sister Mallory, who has the same disease, overcome obstacle after obstacle. Because of this, Maisy quickly learned that anything is possible, even if it may have to be done a different way or with a bit more planning. Maisy is particularly passionate about helping other people realize that regardless of the hand they were dealt, they are capable of anything they can imagine.

updated 4/13/2018

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
Membership Management Software Powered by YourMembership  ::  Legal