- Meet Consumers/Patients
Diagnosed as a young teen with pseudo-obstruction and now mitochondrial disease, Malisa has been on HPN, and sometimes HEN, since 1993. Almost from the start she’s been involved at Oley. She was one of the first teenagers to volunteer as a Regional Coordinator, she’s helped with numerous conference youth activities, and she’s been a tremendous advocate for summer camp experiences for HomePEN youth. Watching her blossom into a capable, caring adult has been a pleasure.
Her choice to pursue a career in pediatric nursing comes as no surprise. Before a set back in her health which sharply reduced her energy levels, Malisa worked in a hospital, and volunteered for many health-related organizations like CHOP, and REACH. She also coordinated special experiences for chronically ill youth, like trips to Canyon Ranch and wellness days for friends in a local support group.
Over the years she has helped hundreds of Oley members. She is a great listener and always has something positive to say to the teens, the younger kids, and the parents who care for them. She goes above and beyond to stay in touch with a large network of consumers, writes many cheerful messages, and sends care packages.
She’s built a wonderful support network for herself as well, which has been especially critical in the past couple of years as her mitochondrial disorder has robbed her of her energy. True to her spirit, she is researching the disease, and adjusting to her lower energy level one day at a time. She and Dave are awaiting the birth of their first child through surrogacy in May 2009.
3/2/2017Riding the Tube
2/9/2017Mums team up for "tubie" support