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|Newsletters: Running a Marathon: HPN Will Not Stop Me|
Running a Marathon: HPN Will Not Stop Me
Emma Tillman, PharmD, PhD, HPN Consumer
I ran my first marathon in Memphis, Tennessee, in December 2008. My friend and I had trained for the race together and after finishing, we couldn’t wait to run the next one. We decided it would be fun to run a marathon in each of the fifty states. In 2009 and 2010, we ran races in Alabama, Arkansas, Georgia, Missouri, and South Dakota.
In 2011, I got very sick. I vomited every time I ate or drank. I was diagnosed with idiopathic gastroparesis. Facing weight loss and malnutrition, I had to start IV hydration and then home parenteral nutrition (HPN). After taking some time off from running, I finally got back into it. Last year, I finished two half-marathons.
I have been apprehensive about whether I could maintain hydration and nutrition during a full marathon. After a lot of brainstorming and help from the pharmacists and nurses at my home infusion company, however, I have a plan, and I will be running the San Francisco Marathon July 27, 2014.
Running for Oley
I have decided to devote my marathon training and race to raise awareness for HPN and to raise money for the Oley Foundation. I would like to invite other HPN consumers, Oley members, or caregivers that are runners to join me for the race. It would be great to have an Oley team! If you are not much of a runner but live in the San Francisco area, it would be great if you could come out and cheer me (us!) on!
Emma has set up a fundraising page through the San Francisco Marathon Web site, to benefit the Oley Foundation. To donate, go to www.crowdrise.com/HPNawareness. You can also donate directly to the Oley Foundation (by phone, mail, or at www.oley.org). Please indicate that it’s in honor of Emma’s run.
LifelineLetter, January/February, 2014