- Meet Consumers/Patients
|Tell Others: HPN Awareness Week|
2016 HPN Awareness Week, August 7-13, 2016
HPN Awareness Week 2016
How did YOU celebrate HPN Awareness Week in August? Thank you to all of the Oley members who…
What HPN Means
Past HPN Awareness Weeks have raised discussions about the term "HPN" and what it means, both to you as individuals and in the broad sense. “HPN” stands for “home parenteral nutrition.” It is parenteral nutrition (a nutritional solution delivered intravenously, through the bloodstream) administered at home. Parenteral nutrition is also commonly known as “total parenteral nutrition,” “TPN,” and “hyperal” or “hyperalimentation.”
Why do we use “HPN” instead of “TPN”? We no longer refer to it as “total” parenteral nutrition because the solutions, although life sustaining, do not contain all of the nutrients that are present in our diets. Another reason we do not refer to it as “total” PN is that for many consumers it is not their sole source of nutrition. They may be taking some food by mouth or perhaps supplemental tube feeding.
Further, we want to acknowledge that the situations so many face when they have PN at home, vs. in the hospital, can be very different. We also hope to convey the very important message that people are living their lives at home on PN, and that if PN is a necessary part of your present and future, there are resources available to help you.
There are lots of ways to say it besides “HPN,” including “home PN” and “home TPN,” and we appreciate the insights and suggestions members have offered on the terms and how we use them. It’s an important and helpful dialogue.
On the Oley Facebook page, one mom wrote what “HPN” means to her: “To me HPN includes those who rely on IV nutrition for all their needs (TPN) and those who use IV nutrition to meet some of their nutritional needs, but may also eat or do tube feeds...it also implies that this is a way of life at HOME, which is huge for my daughter!”
What’s YOUR Alive with HPN story?
“At first I found it difficult to schedule my feedings around any kind of social activity, but now if I have something planned during my normal feeding cycle, I just put on my backpack and go. People hardly ever even notice it.... TPN has saved my life—made it possible to have a quality of life that I wouldn’t have had without it. I am happy to be ‘Alive with HPN.’”
—Candace, Oley-Inspire Forum
Updated November 20, 2016
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Feeding Tube Awareness Week
2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week