Home   |   Donate   |   Industry   |   Print Page   |   Contact Us   |   Your Cart   |   Sign In   |   Join Now
Keyword Search
Tube Feeding Tips: Help with Reflux
Share |

G/J-Tube Helps with Reflux

My son, Abe, has a rare disease called Pelizaeus Merzbacher Disease (PMD). It is a form of leukodystrophy. He had a g-tube placed at the age of 5. He refluxed and ended up having pneumonia five times last winter. By chance they did an x-ray with dye and found he was aspirating every time he was fed.

Because he was so sick, they didn’t want to do any surgery. Instead they threaded the tube through his current g-tube site down into his jejunum. He now has a g-port, j-port and balloon port. The g-port is drained into a bag so he can’t reflux on anything, and the formula goes into the j-port. He has gained weight for the first time in several years and is very healthy. I wish I had known about this option years ago. I hope someone out there can benefit from his story.

—Carla Schauer
(208) 773-5115
carlaschauer@verizon.net

more Calendar

2/6/2017 » 2/10/2017
Feeding Tube Awareness Week

2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week

5/6/2017
Oley Regional Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
Membership Management Software Powered by YourMembership  ::  Legal