- Meet Consumers/Patients
|Drug Shortages Sample Letter|
Sample letter from you might look like….
Dear Senator or Congressman ____________,
[insert a short introduction of yourself as a nutrition support consumer] such as
I am writing to ask for your support in addressing an issue that is alarming to me! I do not absorb enough nutrition from the food I eat. I cannot sustain myself without intravenous nutrition solutions which are infused into my bloodstream via a permanently placed catheter. The fact that there might be an end to some of the products that I depend on to feed myself seems surreal. Imagine finding the shelves in your supermarket going bare and the subsequent thoughts you may have of not being able to nourish yourself and your family properly. These thoughts dance in my head daily!
The American Society of Health-System Pharmacists (ASHP) Drug Shortage Resource Center lists the drugs in short supply (http://www.ashp.org/menu/DrugShortages). Drugs on this list affect people like me. I am deeply concerned that the situation will worsen if action is not taken. What will I do?
I am urging you to cosponsor several bills that have been introduced:
U.S. Representatives John Carney (D-DE) and Larry Bucshon (R-IN) introduced the Drug Shortage Prevention Act (H.R. 3839) to address the scarcity of certain pharmaceutical drugs—and those specific to parenteral nutrition---in the marketplace.
S. 296 (or HR 2245) would provide the U.S. Food and Drug Administration (FDA) with tools to better manage—and hopefully prevent—shortages of life-saving medications. The legislation enables the FDA to work more effectively with the pharmaceutical supply chain to ensure drug availability, and enhances the agency’s ability to monitor drugs that are vulnerable to shortages in the future. The bill also enables FDA to work with drug manufacturers to establish contingency plans for manufacturing interruptions such as raw material shortages, adjustments to production capabilities, and product discontinuations.
Thank you in advance for supporting my life and the lives of others like me, many of whom are children. I am available to answer any questions. I urge you to visit A.S.P.E.N. (www.nutrioncare.org) to learn more about nutrition support therapy and the clinical ramifications of these shortages; and to visit the Oley Foundation (www.oley.org) to acquaint yourself with others who feed themselves similarly.
cc: Oley Foundation
2/6/2017 » 2/10/2017
Feeding Tube Awareness Week
2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week