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Newsletters: Diagnosing Kourtney
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Diagnosing Kourtney, by Laura Najjar

Lisa Crosby Metzger

 

Kourtney was born in July 2002; in June 2009, she was listed for a multi-organ transplant. This book, written by Kourtney’s mom, is "the story of [their] journey” between these two points. Laura kept a daily record as Kourtney was diagnosed with neurogenic pseudo obstruction, osteopenia, and, finally, intestinal failure, and she shares her journals here "as a help to all parents of children with this condition, and for all families and children who face life threatening issues on a daily basis.” It is a journey many Oley families will recognize, full of ups and downs, strength and frustration, and love. You’ll fall for Kourtney from the moment you see her photo on the cover of the book. The book is available through www.bellissimapublishing.com or www.amazon.com ($25.00).


LifelineLetter, September/October 2012

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5/6/2017
Oley Regional Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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