- Meet Consumers/Patients
|Newsletters: A Little Data on HomePN Can Go a Long Way|
A Little Data on HomePN Can Go a Long Way
The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is a national patient registry for nutrition care—and we need your doctors, nurses, dietitians, and homecare companies to participate!
“The data will help organizations make better-informed treatment decisions, support the appropriate use of nutrition support therapy, and help translate results into improved outcomes for patient care,” says Marion Winkler, PhD, RD, LDN, CNSC., Surgical Nutrition Specialist at Rhode Island Hospital, Associate Professor of Surgery at Alpert Medical School of Brown University, co-chair of the Scientific Council of Sustain, and Oley Trustee.
Data on more than 900 consumers using HPN have been entered into Sustain to date and sixty large medical centers, hospitals, and home infusion agencies have enrolled in the registry, with thirty entering data. A.S.P.E.N. urges all U.S.-based clinicians who discharge, manage, or care for HPN consumers to participate in Sustain.
Clinicians enter the data through a secure, online portal; identifiable information is completely confidential and names are not entered into the registry. Sustain sites can benchmark their consumer data against the national aggregate, pose research questions, publish clinical research based on registry findings, and more.
“Sustain is the innovative data collection system that nutrition support providers seek,” Dr. Winkler continues. “This data will ultimately help HPN consumers realize better treatment outcomes. It’s a great opportunity for clinicians and consumers alike—and we encourage you to ask your doctors and healthcare professionals to get involved.”
LifelineLetter, March/April 2012, Updated 7/22/13