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|Newsletters: Children’s Medicaid Waivers: A New Online Resource|
Children’s Medicaid Waivers: A New Online Resource
Complex Child E-Magazine, a parent-written online magazine for families dealing with medical complexity, has created a new resource to help families obtain Medicaid waiver coverage for their children. A new Web site, www.KidsWaivers.org, will provide information on Medicaid waivers, including a comprehensive list of waiver programs available for children in each state.
Children who live at home but whose disability or medical condition would require them to otherwise live in an institution (including a hospital, nursing facility, or intermediate care facility) are eligible for Medicaid waivers. Most children on home parenteral nutrition (HPN), and some on home enteral nutrition (HEN), will qualify.
Children who receive HPN or HEN often have huge medical expenses and unmet needs. Even if they have insurance, their policies may not cover critical needs, such as HEN formula or private duty nursing. Medicaid waivers help provide children with more comprehensive coverage, including full primary or secondary Medicaid coverage, and in some cases, additional “Waiver Services” that vary by program. Most of these programs waive family income limits, allowing children of all incomes to access Medicaid.
Each state is allowed to create its own programs for children, typically following four different pathways, including 1915(c) Home and Community Based Waivers; TEFRA/Katie Beckett Waivers; 1115 Demonstration Waivers; and state-based programs. The eligibility requirements and benefits of each program vary considerably from state to state. Because each program is unique, it can be challenging to find information on many of them. We hope to simplify the process by compiling as much information about each program as possible onto one site.
We’ve completed Phase I of three intended phases for the site: creating a comprehensive list of programs in each state, including their target population, level of care, and number of spots. We’ve obtained this information from state and federal government Web sites. Phase II will involve creating individual pages for each state, with families and advocates providing inside information on each program. Phase III will include an advocacy component, connecting families to help preserve these critical programs.
“Medicaid Waiver programs help provide services to people who would otherwise be in a...nursing home or hospital to receive long-term care in the community.”
LifelineLetter, May/June 2014