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Because Oley receives many inquiries from patients seeking specialized medical care, we have compiled a list of medical centers with expertise in short bowel syndrome, nutritional and/or surgical management of intestinal failure and/or intestinal transplantation. The centers are listed alphabetically by the state they are located in.  We realize there are many other capable clinicians/centers offering optimal care and could not begin to capture them all. This list reflects centers that work closely with the Oley Foundation. The Oley Foundation cannot endorse or refer members to individual physicians or medical centers, including those listed below. Questions, comments or additions can be sent to Joan Bishop.

Other organizations may be able to help you find other specialists in such areas as:

  • Ostomy skin care nurse or WOCN, (select “Patient Information” then “Find a Nurse in Your Area” on the Wound Ostomy Continence Nurse Society web page)
  • Mitochondrial Disease (secure form to complete from United Mitochondrial Disease Foundation)
  • Feeding programs for children who haven’t learned to eat by mouth

Certification Makes a Difference

Considerations When Choosing a Home Care Agency


Mayo Clinic
Scottsdale,
Arizona - (Brief Program Description)

HomePEN Management, Dietary Management, Adult Program

John DiBaise, MD (Gastroenterologist, PN and EN management)
Lori Roust, MD (Endocrinologist, PN management)
Kevin Ruff, MD (Gastroenterologist, EN management)
Lauri Rentz, RN, CGRN
Michelle Mannebach, RD
Sherry Tarleton, RD, CNSC

Phone: (480) 301-6990
E-mail: dibaise.john@mayo.edu 


Children’s Hospital of Los Angeles
Los Angeles, California

Pediatric HomePEN Management, Surgical Reconstruction & Intestinal Transplantation

Phone: (323) 660-2450

Intestinal Rehabilitation Program - (Brief Program Description)
Russell J. Merritt, MD, PhD · Medical Director, Nutrition Support Team and Intestinal Rehabilitation
Tracy Grikscheit, MD · Surgical Director, Intestinal Rehabilitation
Daniel W. Thomas, MD · Division Chief, Pediatric Gastroenterology and Nutrition Medical Director, Liver and Intestinal Transplant Program
Kim Rinauro, PNP
Claudia Cox, RN
Ginevra L. Bianchini RD, CSP
Manisha Parikh, MSW

Web Site: www.chla.org/site/c.ipINKTOAJsG/b.8125171/k.43F4/Intestinal_Rehabilitation_Program.htm

Liver and Intestinal Transplant Program
Nanda Kerkar ·Medical Director, Liver and Intestinal Transplant Program
Web Site: www.chla.org/site/c.ipINKTOAJsG/b.4331539/k.DA16/Liver__Intestinal_Transplant.htm

Motility Disorders Program
Jaya Punati, MD · Director of the Motility Program
Web Site: www.chla.org/site/c.ipINKTOAJsG/b.8331137/k.18A7/Gastrointestinal_Neuromuscular_and_Motility_Disorders_Program_at_Childrens_Hospital_Los_Angeles.htm


UCLA Medical Center
Home Parenteral Nutrition Program
Dupont Transplant Center

Los Angeles, California - (Brief Program Description)

HomePEN Management, Surgical Reconstruction & Intestinal Transplantation

Marvin Ament, MD · Director TPN Program
Laurie Reyen, RN · Clinical Nurse Specialist TPN Program
Douglas Farmer, MD, FACS · Director Intestinal Transplant Program, Co-Director Intestinal Failure Center
Sue McDiarmid, MD · Director Pediatric Liver Transplant
Sherily Gordon, MD
Joanna Colangelo, RN · Transplant Coordinator

Nutrition Program
Phone: (310) 825-4823
E-mail: nsler@mednet.ucla.edu

Transplant
Phone: (310) 794-6487
E-mail: jcolangelo@mednet.ucla.edu

Web Site: www.uclahealth.org/


British Columbia Home Parenteral and Enteral Nutrition Program
British Columbia and the YukonCanada - (Brief Program Description)

Scott Whittaker, MD · Medical Director – HPN & HEN
Sheila Sakich, RN · Nurse & Patient Educator – HPN
Andrée Richardson, RD, CNSC · Dietitian – HPN & HEN
Linda Jang, BSc Pharm · Pharmacist – HPN
Holly van Heukelom, RD, CNSD, MHA · Coordinator – HPN & HEN
Kiran Charitar · Program & Booking Clerk – HPN & HEN

BC HPEN Programs:
Phone: 1-877-806-9353 (604-806-8353)
E-mail: homePEN@vch.ca
Web Site: www.bchomenutrition.org

St Michael’s Hospital
Toronto, Ontario, Canada

HomePEN Management

Khursheed Jeejeebhoy, MD
E-mail: khushjeejeebhoy@compuserve.com


MedStar Georgetown University Hospital
The Center for Intestinal Care and Transplant, MedStar Georgetown Transplant Institute

Washington, D.C. - (Brief Program Description)

HomePEN Management, Surgical Reconstruction & Intestinal Transplantation (Pediatric & Adult)

Stuart S. Kaufman, MD · Medical Director, Pediatric Liver and Small Bowel Transplant Program
Transplant surgeons (in adult and pediatric programs):
Cal S. Matsumoto, MD
Thomas Fishbein, MD
Raffaele Girlanda, MD
Eddie Island, MD, FACS

Phone: (202) 444-6396
Web Site: www.georgetownuniversityhospital.org/body_dept_home.cfm?id=115


Mayo Clinic
Jacksonville, Florida

HomePEN Management                                                     
Nutrition Services phone: (904) 956-0039


University of Miami Miller School of Medicine
Jackson Memorial Transplant Center

Miami, Florida - (Brief Program Description)

Surgical Reconstruction & Intestinal Transplantation

Andreas Tzakis, MD, PhD · Professor of Surgery, Director, Division of Transplantation, Chief, Division of Liver and Gastrointestinal Surgery

Seigo Nishida, MD · Associate Director, Adult Liver/GI Transplant

Teresa Bueno, RN
E-mail: TBueno@um-jmh.org

Scott Koonce, RN
E-mail: SKoonce@um-jmh.org

Lesli H. Kravetz, RN
E-mail: LKravetz@med.miami.edu

Vivienne Maragh, RN
E-mail: VMaragh@um-jmh.org

Phone: (305) 355-5000


Children’s Healthcare of Atlanta at Egleston/ Emory Children’s Center
Atlanta, Georgia - (Brief Program Description)

Pediatric HomePEN

Conrad R. Cole, MD, M.P.H, MSc. · Surgical and Nutritional Management
Megan Durham, MD · Surgery
Addie Lofton-Hammid ,RN · Nurse Coordinator

Gastroenterology, Hepatology & Nutrition
Department of Pediatrics
Emory University School of Medicine

Phone: (404) 778-2400 / (404) 727-9990
Web Site: www.pediatrics.emory.edu/divisions/gastroenterology/resource.html


Ann & Robert H. Lurie Children’s Hospital of Chicago
Chicago, Illinois

HomePEN Management, Surgical Reconstruction & Intestinal Transplantation

Valerie Cochran, MD · Medical Director, Pediatric Intestinal Rehabilitation and Transplant Program

Riccardo Superina, MD · Division Chief, Transplant Surgery, Co-Director
Siragusa Transplantation Center

Anton Skaro, MD · Transplant Surgeon
Siragusa Transplantation Center

Juan Carlos Caicedo, MD · Transplant Surgeon
Siragusa Transplantation Center

Phone: (312) 227-4030
Web Site: luriechildrens.org/en-us/care-services/conditions-treatments/intestinal-rehabilitation-transplant-program/Pages/basics/basics.aspx


Northwestern Intestinal Rehabilitation and Transplant Center
Northwestern University Feinberg School of Medicine,
Northwestern Memorial Hospital
Chicago, Illinois

Surgical Reconstruction & Intestinal Transplantation

Jon Fryer, MD · Surgical Director, Adult Intestinal Rehabilitation and Transplant Program

Phone: (773) 880-6363
Web Site: www.ibdcenter.org (Adult)


Transplant/Indiana University Health
Indianapolis, Indiana - (Brief Program Description)

Provides Comprehensive Management, Surgical Treatment & Transplantation (Pediatric & Adult)

R. Shane Mangus, MD, MS, FACS
Phone: (800) 382-4602
E-mail: rmangus@iupui.edu

Updated 3/6/14


University of Louisville
Louisville, Kentucky

HomePEN Management

Steve McClave, MD
Phone: (502) 852-7963                                                          
E-mail: samcclave@louisville.edu


Boston Children’s Hospital
Boston, Massachusetts - (Brief Program Description)

Intestinal Reconstruction

Bram P. Raphael, MD · Director, Home Parenteral Nutrition Program
Phone: (617) 355-6439
E-mail: Bram.raphael@childrens.harvard.edu

Tom Jaksic, MD, PhD · Surgical Director
Phone: (617) 355-9600
E-mail: tom.jaksic@childrens.harvard.edu

Christopher Duggan, MD, MPH · Medical Director
Phone: (617) 355-7612
E-mail: christopher.duggan@childrens.harvard.edu 

Sharon Collier, RD · Dietitian
Kathleen Gura, PharmD, BCNSP · Pharmacist
Julie Iglesias, RN, MSN, CPNP · Nurse Practitioner · CAIR Coordinator
Daniel Kamin, MD · Medical Director · Intestinal Transplantation
Heung Bae Kim, MD · Surgical Director · Intestinal Transplantation
Clifford Lo, MD, PhD - Home Parenteral Nutrition Physician
Mark Pudder, MD · Surgeon
Biren Modi, MD · Surgeon
Casey Barrell - Nurse Practitioner · Home Parenteral Nutrition Program
Meghan K. Dalton - Nurse Practitioner · Home Parenteral Nutrition Program Coordinator


Henry Ford Hospital
Intestine and Multivisceral Transplant Program

Detroit, Michigan - (Brief Program Description)

Marwan Kazimi, MD · Surgical Director, Intestine and Multivisceral Transplant
Maria Segovia, MD · Medical Director, Intestine and Multivisceral Transplant
Nemie Beltran, RN · Nurse Coordinator, Intestine and Multivisceral Transplant

Phone: (313) 916-1826
Web Site: www.henryford.com/body.cfm?id=53670


Mayo Clinics
Rochester, Minnesota

HomePEN Management

HPN: (Brief Program Description)
Ryan Hurt
, MD, PhD · Associate Professor of Medicine                    
Phone: (507) 284-4824
E-mail: hurt.ryan@mayo.edu

Web Site: www.mayoclinic.org/  (*note that this Web site lists Mayo facilities in Arizona, Florida, and Minnesota; be sure to choose the appropriate location)

HEN: (Brief Program Description)
Manpreet S. Mundi, MD · Assistant Professor of Medicine
Adele Pattinson, RD, LD, CNSC · HEN Coordinator
Lisa Epp, RD, LD, CNSC · HEN Coordinator
Phone: (507) 284-0106                       
E-mail: MAYOHEN@mayo.edu

Updated 9/16/13


The Intestinal Rehabilitation Center
Children’s Mercy Hospital in Kansas City

Kansas City, Missouri - (Brief Program Description)

HomePEN Management, Surgical Reconstruction & Intestinal Transplantation

Joel Lim, MD · Medical Director
Richard Hendrickson, MD · Surgical Director

Phone: (800) 806-8544


University of Nebraska Medical Center Intestinal Rehabilitation Program
Omaha, Nebraska(Brief Program Description)

Surgical, Nutritional Management & Intestinal Transplantation

Surgeon
David F. Mercer, MD, PhD, FRCS(C) · Director, Intestinal Rehabilitation Program  
Stephen Raynor, MD
Jon Thompson, MD

Hepatologist
Fedja Rochling, MD ·Medical Director, Adult Intestinal Rehabilitation Program Transplant

Nurse Coordinator
Brandi K. Gerhardt, RN, BAN
Jenna Kopp, RN, BSN

Dietitian
Angie Iverson, RD
Brandy Sunderman, RD
Becky Weseman, RD, SNSD, LMNT

Feeding Therapy
Cathleen Piazza, PhD
Valerie Volkert, PhD, BCBA

Social Work
Jodi Gentleman

Administrative
Bridget Bauman

Phone: (402) 559-3382
E-mail: organ@unmc.edu

Web Site: www.nebraskamed.com/transplant/intestine/rehabilitation_program/


Memorial Sloan Kettering Cancer Center
New York, New York

HomePEN Management

Moshe Shike, MD
Phone: (212) 639-7230
E-mail: shikem@mskcc.org

Robin Mendelsohn, MD (GI, Nutrition)
Phone: (212) 639-8152

Mark Schattner, MD (GI, Nutrition)
Phone: (212) 639-3148

Updated 10/15/13


Mount Sinai School of Medicine
Recanati/Miller Transplantation Institute
Intestinal Rehabilitation and Transplantation Program

New York, New York - (Brief Program Description)

Surgical, Nutritional Management & Intestinal Transplantation

Kishore Iyer, MD · Director, Adult & Pediatric Intestinal Transplant
Phone: (212) 659-9300
E-mail: Kishore.Iyer@mountsinai.org

Christine Chamberlain, RN · Senior Coordinator, Intestinal Rehabilitation and Transplantation
Phone: (212) 659-9300
E-mail: Christine.chamberlain@mountsinai.org


Center for Human Nutrition
East Carolina University
Division of Gastroenterology, Hepatology and Nutrition
    
Greenville, North Carolina

HomePEN Management

Hossam Kandil , MD, PhD
Laura E. Matarese, PhD, RD, LDN, FADA, CNSC

Phone: (800) 722-3281
Web Site: www.ecu.edu/cs-dhs/im/Gastroenterology/CHN-Home.cfm


Cleveland Clinic Foundation
Intestinal Rehabilitation Program and Transplant Program

Cleveland, Ohio - (Brief Program Description)

Medical & Nutritional Management of Intestinal Failure, HomePEN Management, Intestinal Transplantation & Surgical Reconstruction

Donald Kirby, MD FACP, FACN, FACG, AGAF, CNSP, CPNS · Director, Nutrition Support; Medical Director, Intestinal Rehabilitation and Transplant
Ezra Steiger, MD, FACS, CNSP · Co-Director, Nutrition Support Team and Rehabilitation Program
E-mail: steigee@ccf.org
Le-Chu Su, MD,
PhD · Gastroenterologist, Digestive Disease Center
Cristiano Quintini, MD · Small Bowel Transplant Surgeon, Intestinal Rehabilitation and Transplantation Program
Neha Parekh, MS, RD, LD, CNSD · Nutrition Manager, Intestinal Rehabilitation
Emily Chhatriwalla, RD, LD, CNSD · Nutrition Coordinator, Intestinal Rehabilitation and Transplantation Program
Mary Jo Porter, RD, LD · Nutrition Coordinator, Intestinal Rehabilitation and Transplantation Program
Elizabeth Lennon, PA-C · Physician Assistant, Intestinal Rehabilitation and Transplantation Program
Christine Shay-Downer, RN · Transplant Coordinator, Intestinal Rehabilitation and Transplantation Program 
Jackie Lazzaro · Department Coordinator, Intestinal Rehabilitation and Transplantation Program

Intestinal Rehabilitation Program phone: (216) 445-2090
Intestinal Transplant phone: (216) 445-1748
Web Site: my.clevelandclinic.org/services/digestive_diseases


Nationwide Children’s Hospital
Columbus, Ohio - (Brief Program Description)

HomePEN Management Peds, GI

Jane Balint, MD
Molly Dienhart, MD
Steven Teich, MD
Sandra Jacobs, CNP
Patti Kegley, RN
Lia Headings, RN
Mary Kay Sharrett, RD
Steve Plogsted, PharmD
Lynn Gutches, MSW
Mindy Johnson, Administrative Assistant

For Appointments:
(614) 722-3485

Web Site: www.nationwidechildrens.org/intestinal-support-service


Cincinnati Children’s Hospital Medical Center Nutrition & Intestinal Care Center
Cincinnati, Ohio - (Brief Program Description)

HomePEN Management

Samuel Kocoshis, MD · Medical Director
E-mail: Samuel.kocoshis@cchmc.org 

Surgeons:
Maria Alonso, MD
Frederick Ryckman, MD
Gerry Hennies, RN
Kim Klotz, RN
Kathie Yeary, RN
Trayce Gardner, MEd, RD, CSP, LD
Susan Smith, RD, LD, CNSD
Renee Wieman, RD, CSP, LD, CNSD

Phone: (513) 636-4415
Web Site: www.cincinnatichildrens.org/service/c/intestinal-care/default/


Children’s Hospital of Pittsburgh
Intestinal Care Center

Pittsburgh, Pennsylvania

HomePEN Management, Surgical Reconstruction & Intestinal Transplantation

Jeffrey A. Rudolph, MD · Director, Intestinal Care and Rehabilitation Center
R. Cartland Burns, MD · Co-Director of Intestinal Care, Pediatric Surgeon
Robert Squires, Jr., MD · Clinical Director, Pediatric Gastroenterology
Feras Al-Issa, MD · Pediatric Gastroenterology
Sharon Strohm, MBA, RD · Manager, Clinical Nutrition
Jane Anne Yaworksi, MSN, RN · Clinical Nurse Specialist for Nutrition Support & Intestinal Care (outpatient)
Danielle Sebbens, DNT, CRNP · Intestinal Care Nurse Practioner (in-patient)
Jennifer Halper, LSW · Social Worker

Phone: (412) 692-6906
Web Site: www.chp.edu/CHP/icare


Malnutrition Clinic
Centre Medical Surgical Associates
Mount Nittany Medical Center
Pennsylvania State University

State College, Pennsylvania

HomePEN Management

Gordon L. Jensen, MD, PhD
Phone: (814) 234-8800
E-mail: GLJ1@psu.edu


University of Pittsburgh Medical Center
Thomas E. Starzl Transplantation Institute
Intestinal Rehabilitation and Transplant Center*

Pittsburgh, Pennsylvania - (Brief Program Description)

HomePEN Management, Surgical Reconstruction & Intestinal Transplantation

George Mazariegos, MD · Co-Director, Pediatric Transplant
Kareem Abu-Elmagd, MD, PhD, FACS · Director, Intestinal Rehabilitation and Transplantation Center
Stephen J.D. O’Keefe, MD, MSc, FRCP · Medical Director, Small Bowel Transplantation and Rehabilitation Unit

Phone: (412) 647-5800
E-mail: www.sti.upmc.edu

Web Site: www.upmc.com/services/transplant/abdominal-transplants/intestinal-rehabilitation-transplant/pages/default.aspx


Medical University of South Carolina
Charleston, South Carolina

HomePEN Management

Prabhakar Baliga, MD
Debra Bernardina RN, CCTC
Kara Cole RN, MSN
Stacy Sipple, RN
Christina Thompson, RN

Phone: (843) 792-0332         


The Children’s Intestinal Rehabilitation Center at LeBonheur (CIRCLe)
Memphis, Tennessee - (Brief Program Description)

CIRCLe team:
Medical Director, Linda Lazar, MD · Dept. of Pediatric Gastroenterology
Mark R. Corkins, MD, CNSC, FAAP · Division Chief, Dept. of Pediatric Gastroenterology
Surgical Director, Eunice Huang, MD · Dept. of Pediatric Surgery
Administrative Director, Cathy Crill, PharmD, BCNSP · Clinical Pharmacist
Elizabeth Hamilton, RD · Dietitian
CIRCLe Coordinator, Ila McDonald, RN · Nurse Coordinator

Contact Ila McDonald, (901) 287-6392                                                


Vanderbilt University Medical Center (VUMC)
Center for Human Nutrition
Nashville, Tennessee - (Brief Program Description)

HomePEN Management

Doug Seidner, MD, FACG, CNSP · Director, Center for Human Nutrition; Gastroenterologist
E-mail: douglas.seidner@vanderbilt.edu 

Vanessa J. Kumpf, PharmD, BCNSP · Intestinal Rehabilitation Pharmacist
Phone: (615) 936-1288
E-mail: vanessa.kumpf@vanderbilt.edu

Bryan Collier, DO, CNSP, FACS · Co-director, Center for Human Nutrition; Surgeon
Lawrence Gaines, PhD · Psychologist
Amy C. Lynch, MS, RD, CNSC, LDN · Intestinal Rehabilitation Dietitian
Kimberly Currier, RN, MSN, NP · Nurse Practitioner
Tanya Givens, RN · Research Nurse
Mary Smith, RN · Nutrition Support Nurse

Phone: (615) 936-1288
Facsimile: (615) 396-0006
Web Site: www.mc.vanderbilt.edu/vchn


Intermountain General Surgery & Trauma
Salt Lake City, Utah

HomePEN Management

Tom White, MD
Phone: (801) 507-2030
   


University of Virginia
Digestive Health Center of Excellence

Charlottesville, Virginia - (Brief Program Description)

HomePEN Management

Carol Rees Parrish MS, RD · Nutrition Support Specialist
E-mail: crp3a@virginia.edu

Phone: (434) 924-2286
Fax: (434) 982-3957

Robert Fitzgerald, Administrative Assistant
Phone: (434) 243-4749
E-mail: rf7r@virginia.edu

Web Site: www.ginutrition.virginia.edu


University of Washington, Seattle Children’s Hospital
Seattle, Washington

HomePEN Management Peds GI, Transplantation

Jorge Reyes, MD
Simon Horslen, MD


University of Wisconsin Shortgut/Intestinal Failure Clinic
Madison, Wisconsin

Pediatric Nutrition Support, Transplantation

Peter Nichol, MD · Director
E-mail: schmieden@surgery.wisc.edu
Phone: (608) 263-7697
Fax: (608) 265-5963
Web Site: www.uwhealthkids.org/pediatric-surgery/pediatric-short-gut/intestinal-failure-clinic/34376


On the Move!  We promise to keep the list current. We also invite you to contact us at any time for additional information, to brainstorm options, etc.

Thank you to Carol Parrish, RD, University of Virginia Health Care Systems, for publishing Centers with Short Bowel Expertise in Practical Gastroenterology which became the centerpiece for this effort.


Updated 9/26/14

more Calendar

5/6/2017
Oley Regional Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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