- Meet Consumers/Patients
Carol & Jack Leibee
My wife, Carol, and I have been supporters of the Oley Foundation since we first learned about it in 2005. That was the year I was diagnosed with short bowel syndrome (SBS) as a result of a small bowel bypass. All we could do was follow the gastroenterologist’s directions for treating the symptoms. We decided to seek a second opinion, as we had a lot to understand and many decisions to make.
Because my wife and I wanted to make sure I was receiving the best treatment possible, we visited an out-of-town gastroenterologist who had more experience with SBS. His nurse told us about Oley and how they could possibly help us. After looking at their Web site and calling a couple of their patient volunteers, we knew that Oley could be a tremendous help. We weren’t looking for a different treatment regime; we just wanted to know how other people dealt with the myriad of choices one had with respect to type of catheter, diet, preventing line infections, clogged lines, travelling with infusion equipment and supplies, and lot of other decisions.
Carol attended the first conference in Tampa and came home excited about what she had learned and the people she had met. We asked lots of questions and sought advice from the volunteers and Oley staff. We were always looking for ways to minimize the impact of home parenteral nutrition (HPN) on my organs. We became very proactive in seeking adjustments to my treatment by asking the gastroenterologist about options when it came to the HPN formula, volume, and infusion rate. After five plus years of HPN, I finally got off of it. We believe this is partly due to the help we received from Oley and its family.
Having gotten so much help from Oley and seeing firsthand the benefit of attending its annual conference, Carol and I have been donors for the past five years and plan to continue. We give money directly to Oley for whatever use it sees fit. We also provide money for a travel grant to help a patient go to the annual conference. Because attending the conferences has been so beneficial, we want to provide the opportunity for other patients to take advantage of all it has to offer.
We encourage you to make a donation to Oley, regardless of the amount. Whether or not you, a loved one, or a friend has experienced an illness requiring parenteral or enteral feeding, please consider donating to Oley. Your donation will help make at least one person’s illness a little easier to endure and make their life better.
LifelineLetter, September/October 2012