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Combine the Oley Conference with a Camp Experience

If you’ve considered sending your homePEN-dependent child to summer camp and you’re planning to join us in Saratoga Springs for the 25th annual Oley conference, you might want to think about combining the two. The Double H Ranch in Lake Luzerne (a Hole in the Wall camp) is situated approximately twenty-five miles from the conference site. It is reserving five slots for HPN kids in each of two camp sessions: June 25–30 and July 3–8. HEN kids are also welcome.

The Oley conference, June 28–July 2, will overlap the first session and finish just before the second session begins. With the two locations so convenient to one another — and plenty for a family to do in upstate New York, before or after the conference — this might be a wonderful opportunity for your child to attend camp.

To learn more about the camp or to request an application packet, visit www.doublehranch.org or call (518) 696-5676. To speak to other families who have experienced Double H hospitality, contact Joan Bishop at Oley, (800) 776-6539 or bishopj@mail.amc.edu. You can also click here to read about one camper’s and a mom’s impression of the camp.

 

Other Options

If you can’t make either of the sessions above, we’ve rounded up some other possibilities for you to consider. Several of the programs listed below are free, very inexpensive, or offer scholarships. Application deadlines vary; many are accepting applications now and will continue accepting them until camp opens or fills to capacity. Camps are listed alphabetically by state.

Crohn’s and Colitis Foundation of America (CCFA), Camp Oasis
For children with medically stable Crohn’s disease or ulcerative colitis
Various sites and dates; now accepting applications
www.ccfa.org/kidsteens/camp
Information: (888) 694-8872

Hole in the Wall Camps
For children facing serious illness
Various sites and dates
www.holeinthewallcamps.org

Association of Hole in the Wall Camps: (203) 562-1203
Hole in the Wall Gang Camps: (860) 429-3444

New! Metabolic/Mito Family Camp Weekend at The Hole in the Wall Gang Camp, Ashford, CT
April 23-25 For families with a child between the ages of 5 and 15 who has a metabolic or mitochondrial disease Submit applications ASAP. Click on the link above for more information or call (860) 429-3444

Center for Courageous Kids, Scottsville, KY
For the medically fragile child (7–15) and his/her family members; operates year round, offering twenty-two family weekend retreats and nine separate weeks of illness-specific summer camping sessions focused on the child.
w
ww.courageouskids.org
Medical center line: (270) 618-2912

Camp Mak-A-Dream, Gold Creek, MT
(camp is only offered to cancer patients and their families. They currently do not have programs for patients on IV or tube feedings)

For children, young adults, and families affected by cancer
Camps include: Kids Camp (ages 6–14), July 31–Aug. 7; Teen Camp (15–18), July 9–16; Siblings Camp (6–17), July 20–27; Young Adult Conference (18–40), June 16–23; and Young Adult Survivor Conference (18–40), June 8–13. Applications now being accepted. Kids, teens, and young adults can be in or out of treatment.
www.campdream.org
Information: (406) 549-5987

Youth Rally (sponsored by Youth Rally Committee, Inc.)
Xavier University, Cincinnati, OH, July 12–17
For adolescents (11–17) with ostomies, continent diversions and other bowel or bladder management issues, or who are preparing for surgery.
Application deadline: June 1
Scholarships available; also customizable fund-raising Web pages.
www.rally4youth.org
(856) 854-3737

Camp Chihopi, Children’s Hospital of Pittsburgh, Pittsburgh, PA
August 1215
For liver and/or intestine transplant recipients 7–15 years old
Campers arrive in Pittsburgh 8/12 and are transported by bus to the camp, about 100 miles south of Pittsburgh. They return to Pittsburgh 8/15.
Applications available in early March.

www.chp.edu/CHP/camp+chihopi (412) 692-6115 or Beverly.Kosmach@chp.edu 

The Painted Turtle (a Paul Neumann Hole in the Wall camp) in Lake Huges, California announces summer camp opportunities for HPEN dependent children ages 7-16. A total of 10 slots will be reserved at the June 12-16 session for children who sustain themselves via tube and/or intravenous feeding.
Campers must be relatively stable on their home nutrition support feeding regimens, have the stamina to tolerate one week of camp activity and have a cognitive development age above 6 years old. The deadline for submitting the application to be considered for this wonderful opportunity is April 1st! To learn more about the camp, the application process, etc. write rosalyns@thepaintedturtle.org or call (661) 724-1768 ext. 203.

NeedyMeds, List of Camps and Scholarships

more Calendar

2/6/2017 » 2/10/2017
Feeding Tube Awareness Week

2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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