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About Oley
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Our Mission 

Founded in 1983 by Lyn Howard, MD and her patient, Clarence “Oley” Oldenburg, the Oley Foundation is a national, independent, non-profit 501(c)(3) organization that strives to enrich the lives of patients dependent on home intravenous nutrition (parenteral) and tube feeding (enteral) through education, advocacy, and networking. The Foundation also serves as a resource for consumer’s families, clinicians and industry representatives, and other interested parties. Programs are directed by the staff and guidance is provided by a board of dedicated professionals and patients.


Learn more about Oley’s policies and financial statements, and how you can support Oley.

We need your help reaching out to consumers on home IV nutrition and tube feeding. Research proves connecting with Oley improves outcomes and members tell us that it can be life-altering.

 

About the Oley Foundation

     Founders Clarence Oley” Oldenburg 

and Lyn Howard, MD


A 2014 study by Chopy, et al. showed that the Oley Foundation gives members the tools and confidence they need to manage their complex therapy and enables them to achieve normalcy in their lives (A Qualitative Study of the Perceived Value of Membership in The Oley Foundation by Home Parenteral and Enteral Nutrition Consumers. Chopy, et al. JPEN 2014; online 17 March 2014, DOI: 10.1177/0148607114527134). In addition, a study by University of Kansas demonstrated that after connecting with the Oley Foundation, HPN patients had fewer infections, experienced less depression, and enjoyed an improved quality of life (Home Parenteral Nutrition: Does Affiliation with a National Support and Education Organization Affect Outcomes? Smith, et. al., JPEN 2002;26[3]: 159-163).


“The information and support I have received from Oley is so helpful.... It has definitely made my life easier, helped me be healthier, and to avoid complications!” –Tess H., HomePN consumer


“It is the ‘connections’ with those in the trenches that makes Oley such a wonderful support, and different from many organizations.” –Sue K., parent of a HomePEN consumer


Oley saved my son’s life!” –Linda M., parent of a HomePN consumer


Affiliation with the Oley Foundation Improves Patient Outcomes

A Qualitative Study of the Perceived Value of Membership in The Oley Foundation by Home Parenteral and Enteral Nutrition Consumers


  Click here to watch the Help Along the Way Video

 

Member Benefits


The Oley Foundation does not charge a fee for memberships, therefore you may join at no charge. Our many member benefits include: 

  • LifelineLetter: a bi-monthly newsletter with articles about medical advances and personal experiences, written for consumers. 
  • Oley Ambassador Network: a national grassroots network of 60+ volunteers — all consumers or caregivers — who run support groups and provide outreach and education at the local level.
  • National and Regional Conferences: opportunities for consumers, clinicians, providers and industry representatives to share support and information.
  • Equipment/Supply Exchange: a program that provides patients with free supplies and equipment donated by members who no longer need them.
  • If you would like to receive the newsletter and other timely updates from Oley, join today! It’s free of charge for patients and their families. It’s also free for clinicians and industry members who choose to receive the newsletter via email.

Start-up funds for the Oley Foundation were provided by the Oldenburg family. Ongoing support comes from home PEN families, friends, clinicians and corporations. Click here for information on how you can support Oley.

 

 

 

There is no charge to become a member of Oley! 

Click here to join now.

more Calendar

2/6/2017 » 2/10/2017
Feeding Tube Awareness Week

2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week

5/6/2017
Oley Regional Conference

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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