- Meet Consumers/Patients
|Newsletters: Forty Years on HPN|
Forty Years on HPN
Don Young, of Porter Corners, New York, has been on home parenteral nutrition (homePN) since the spring of 1975. He has Crohn’s disease and short bowel syndrome. Don remembers clinic days, when all of Dr. Lyn Howard’s homePN patients at Albany Medical Center (Albany, New York) would meet and exchange experiences before and after their appointments—an opportunity that was especially important in those early days of homePN.
When Dr. Howard and her patient Clarence "Oley” Oldenburg founded the Oley Foundation in 1983, Don became active with the organization—even serving as President for eight years—and he has stayed active since. Through some of Don’s experiences, Dr. Howard and others learned about homePN, what worked and what didn’t, and how the therapy could be improved.
During his forty years on homePN, Don continued to work on his farm and be active in his community. Don has coached hundreds of young women in Porter Corners, and through this and his work with the Oley Foundation, Don has become an important part of many people’s lives. It has also contributed to a wealth of great stories! Don is happy to have been part of his kids’ lives as they hit important milestones—graduating from high school, getting married, having children of their own—and to be part of their lives today. Now he is watching his grandchildren hit some of these milestones.
Below, Don poses a few questions to get you thinking.
Forty Years of Progress?
Musings by Don Young
If wisdom comes with age, then maybe a few things I have to say will be worth hearing.
Why are they less user friendly than in years past and require more maintenance? I have used about fifteen pumps in my forty years on homePN, and the best one was the I-Med 960.
Simple used to be a virtue. Now these complex pumps do wonderful things when all the bells and whistles are working in harmony, but when they hiccup in the middle of the night, they can test one’s patience.
Your Doctor, Your Hospital?
Originally, hospitals invited doctors to admit their patients and use their facility to treat them. Now your doctor of many years is excluded from providing care unless such care is requested by the hospitalist. How’s that working out?
If the government announced tomorrow that it will start making these drugs to fill the need, and also make drugs with high profit margins, would the drug companies ramp up production and shortages disappear?
On March 18, the Oley Foundation celebrated Don’s fortieth anniversary with a reception in Albany, New York. Reporters from the AlbanyTimes Unionand two local TV stations joined us.
LifelineLetter, March/April 2015; updated March 19, 2015