Conference Headquarters & Housing Newport Beach Marriott Hotel & Spa

Conference Program

For reservations: https://resweb.passkey.com/go/OleyFoundation2016

Or call: (877) 622-3056 and mention the Oley meeting

The rate of $169/night for a single/double, $209 for a triple, or $229 for a quad, is open through June 17, and will be honored three days pre and post conference, based on availability. Reserve early if you are planning to extend your stay. The Marriott’s destination/resort fee is waived for Oley guests. There are refrigerators in all rooms. Discounted self-parking fee is $20/day.

 

Shipping HomePEN Supplies

Separate items that need refrigeration and mark these boxes accordingly. All deliveries should be labeled as shown below. The hotel has agreed to waive the charge for accepting boxes that have medical supplies. Storage is limited, so please arrange to have your supplies arrive no earlier than Friday, July 1.

               _____Your Name________, Guest

               Hold for Arrival on 7/___/16

               c/o Newport Beach Marriott Hotel & Spa

               900 Newport Center Dr.

               Newport Beach, CA 92660

               Re: Personal Medical Supplies, Oley Conference

               Needs Refrigeration (if applicable)

Medical Support—Keeping You Safe!

The local hospitals will be alerted. Let your homecare company know you are traveling. If your homecare company is not represented at the conference, Coram CVS/specialty infusion services will provide emergency infusion support (if you forget something, have a bag break, etc.) and telephonic nursing/pharmacy support during the conference.

 

Main Sessions, Breakout Sessions & Tube Feeding Workshop—Learning Opportunities Abound!

Presentations are coordinated to boost your understanding of the therapies that sustain you or your loved one. Formal morning sessions are followed by informal afternoon breakout sessions and the interactive Tube Feeding Workshop. See the program (next page) for a tentative list of topics to be covered.

 

Ambassador Workshop/Volunteer Info Session

Planned for “official” Oley volunteers, but open to anyone interested in serving Oley through outreach, social networking, etc. Learn how to share your time and talents to advance the Oley mission. For more information contact Lisa at metzgel@mail.amc.edu. RSVP when registering.

Child Care/Youth Activities/Jammin' Jammies

Complimentary child care will be available Wednesday and Thursday during the educational sessions. Chaperoned activities are planned for children ages 7+ on Wednesday and Thursday afternoons, as well as a pajama party on Thursday evening! Children/youth must be registered online by June 24 to participate in these activities. If you don’t have access to the Internet call to register your child/youth.

 

Walkathon Raises Funds, Awareness

Gather sponsors and join us for a short walk. Click here for a walkathon form that you can use to register for the walk and to collect pledges. 

 

Picnic

Join Oley for food, fun, and fellowship Friday afternoon.

 

No-Host Farewell Continental Breakfast

We’ll gather and exchange parting wishes. To be included in this group reservation, please indicate on the registration form the number of people in your party. Cost $25/person collected at Oley on-site registration.

 

Market Research

Share your experience with tube feeding and/or IV nutrition to help improve the next generation of products—and get compensated for your time! Indicate your interest on the registration form. Opportunities are limited and available to qualified participants on a first-come, first-served basis.

 

 

Why Should I Attend?

Proven Benefits to Patients in Contact with Oley

• Lowers the incidence of catheter-related sepsis¹

• Reduces reactive depression¹

• Significantly improves quality of life¹

• Gives members the tools and confidence they

• need to manage their therapy²

• Enables members to achieve normalcy in their lives²

More Reasons ...

• Learn to communicate your health care needs with more self-assurance

• Get access to the latest information on nutrition support

• Meet others on home tube feeding and/or IV nutrition

• Clinicians—learn and become better resources

Plus! Oley Provides a “Safe Harbor”

• Local emergency room information will be identified.

• Nursing/pharmacy backup support has been arranged.

• Hotel is aware of your supplies and shipping needs.

• Rooms have refrigerators.

¹ Home Parenteral Nutrition: Does Affiliation with a National Support and Education Organization Affect Outcomes? Smith, et. al., JPEN 2002;26(3):159-163.

² A Qualitative Study of the Perceived Value of Membership in The Oley Foundation by Home Parenteral and Enteral Nutrition Consumers. Chopy, et al. JPEN 2014; online 17 March 2014, DOI: 10.1177/0148607114527134.

 

Program-At-A-Glance (Tentative)

Tuesday, July 5

12:00 pm – 5:00 pm          Early Registration

1:00 pm – 6:00 pm            Ambassador Workshop/Volunteer Info Session

6:00 pm – 7:00 pm            First-Time Conference Attendee Orientation

7:00 pm – 9:00 pm            Welcome Reception/Awards Ceremony

 

Wednesday, July 6

8:00 am – 4:30 pm            Registration/Information

9:00 am – 12:00 pm          Main Session*

12:00 pm – 2:30 pm          Exhibits

2:45 pm – 5:00 pm            Tube Feeding Workshop*

2:45 pm – 3:45 pm & 4:00 pm – 5:00 pm

Breakout Sessions (attend two groups, see partial list below)*

7:30 pm – 9:00 pm            Oley Silent Auction

 

Thursday, July 7

8:30 am – 4:30 pm            Registration/Information

9:00 am – 11:45 am          Main Session*

11:45 am – 12:00 pm        In Loving Memory

12:00 pm – 2:30 pm          Exhibits Raffle Day

2:45 pm – 3:45 pm & 4:00 pm – 5:00 pm

Breakout Sessions (attend two groups, see partial list below)*

8:00 pm – 10:00 pm          Jammin’ Jammies

 

Friday, July 8

Times to be Determined   Oley Walkathon/Picnic

 

Saturday, July 9

10:00 am – 12:00 pm        No-Host Farewell Breakfast

 

*Main Session, Breakout Session & Tube Feeding Workshop Topics

...will include, but are not limited to the following. Stay tuned to for updates!

Effects of Ethanol Lock Therapy on Central Line Infections • Central Venous Catheter Life in Very Long-Term Home PN Patients • Central Line Infection Prevention • What’s in Your HPN Bag? • Me Stressed? (Coping for each: Consumers, Adult Caregivers, Parents) • Is Gattex for You? • Dating and Marriage on HPEN • Addressing Skin/Wound Care • Arranging the Best IEP’s • Managing Diarrhea and Maintaining Hydration • Tackling Reimbursement Issues • More on ENFit • Diet Considerations for Intestinal Failure • Disaster Management • Transitioning to Independence • When and Why: Palliative Care • Navigating through Transportation Security (TSA) • Plasma Aluminum Concentrations in Long-Term Pediatric HPN Patients • More on Mitochondrial Disorders • Surgical Interventions and Transplant Options for Intestinal Failure Patients • Patient Safety Initiatives • Medicare Home Infusion Site of Care Act and YOU • Building Your Support Community • More on Lipids • Keeping Your Resource Bottle Replenished • Vascular Recanalization • To Swim or Not to Swim • New Lipids, Drugs, Regenerative Medicine Research • The Role of Patients in Advocating for Legislation Changes • Using Social Media • Developing a Patient Clinician Partnership (Let’s Talk about Compliance) • Managing Motility Disorders • The Trend to Blend a Tube Feeding Diet

 

REGISTRATION FEES

Please pay your registration fees.

 HPEN consumers, friends, and family     FREE

Oley professional members        $50–1 day, $80–2 days

Company representatives            $100–2 days

               (First two reps are free for exhibitors)

➢ Please consider a donation to offset conference expenses.

➢ Pay online, onsite or make checks payable to “The Oley Foundation.”