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|2016 Oley Award and Scholarship Winners|
2016 Oley Awards and Scholarship Winners
Sponsored by Nutrishare, Inc., Silver Circle Partner
This award is given annually to a person who has been a home parenteral nutrition (HPN) consumer for five years or longer, or his or her caregiver, who demonstrates courage, perseverance, a positive attitude in dealing with illness or caregiving, and exceptional generosity in helping others in their struggle with HPN.
Jana is an inspiration to all those around her. She was born with intestinal pseudo-obstruction and has been on home parenteral nutrition (HPN) since birth. Although Jana's life has included countless hospitalizations, surgeries, and procedures, she has never let these hold her back. As a child, jana attended and excelled in school. She went on to attend college and earn a degree in social work. She currently works for her church and organizes and facilitates social and bible study groups. She does not allow her illness to dictate her life. Despite her angry belly, she enjoys adventure and excitement. She has recently had the opportunity to hike in the Gila National Forrest in New Mexico. Jana says, "Gratitude is an intentional rhythm I try to live my life in tune to. It changes the way I see everything around me." Congratulations Jana!
Bettemarie Bond; Cheryl Burge; Marco Cappetta; Megan Gravenstein; Andrew Jablonski; Emma Tillman
This award is given annually to a person who has been a home enteral nutrition (HEN) consumer for five years or longer, or his or her caregiver, who demonstrates courage, perseverance, a positive attitude in dealing with illness or caregiving, and exceptional generosity in helping others in their struggle with HEN.
Joy has a dynamic personality and a true passion to work with others to ensure no one has to go through what she has. In 2010, Joy had an acute onset of symptoms that later was diagnosed as a post-viral gastroenteropathy causing gastroparesis, slow-transit constipation, and esophageal dysmotility. Initially, Joy was intravenously fed; she was transitioned to tube feeding when it was determined to be a more permanent solution. Before getting sick, Joy worked on public health for the Centers for Disease Control and Prevention. The role of Oley Ambassador has given Joy a chance to blend her background in public health with her own personal experiences of living with a feeding tube to advise and inspire others. Joy also finds time to volunteer at her local hospital, host charity events, and advocate for digestive disease and home parenteral and enteral nutrition issues on Capitol Hill. Joy embraces her passion to help others, and also finds happiness in spending time with family, including her husband, nieces and nephews and her rescue dog Buddy. Joy says, "My life improved when I began going with the flow of living with a chronic condition instead of resisting it. I choose 'joy' by leading from my center and not my circumstances." Joy sees her faith and yoga practice as the foundation in this journey. Congratulations Joy!
Kendall Hollinger; Janet Platt
Celebration of Life
In honor of Coram CVS/specialty infusion services, Gold Medallion Partner
Adult: Nat Collison
Nat celebrates life everyday. She exhibits a consistent strength and courage that she selflessly shares with others. She always looks on the bright side and for how she can help make someone else's life a little bit brighter. Diagnosed with an aggressive auto-immune disease and gastrointestinal paralysis, she was given a J-tube initially; for the last three years she has been home parenteral nutrition-dependent. Nat says,"Most people see my tube as a disability, but they are so wrong. My tubes have given me the energy I need to let my abilities shine." She is a bundle of energy and keeps busy with martial arts, juggling, unicycling, tap dancing, archery, caring for her pet pig, and crocheting. Nat's ability to crochet has connected her to Knots of Love, a non-profit organization that gives around 1,000 handmade hats each week to children and adults fighting cancer and other illnesses. Nat has made over 200 character and animal hats for children with life-threatening conditions! By sharing her story Nat has inspired numerous people, giving them hope and showing them that if they never give up they can inspire others too. Congratulations Nat!
Lucy Buggs; Jana Daigle; Brenda Gray; Kendall Hollinger; Kristi Patzman; Lauren Reimer; Melinda Sayers; Emma Tillman
In honor of Coram CVS/specialty infusion services, Gold Medallion Partner
Pediatric: Ruby Barrios
Ruby has proven herself a worthy role model for many children affected by illness. Ruby was diagnosed with gastroschisis prenatally. When she was two days old, she was taken to the ER and had a subtotal small bowel resection. She has been dependent on home parenteral nutrition her whole life, but it hasn't stopped her from achieving her goals. She takes theater, dance, choir, and drama. She has written and performed her own monologue. Last year, Ruby had starring roles in her high school plays, Inherit the Wind and You Can't Take It with You. Ruby is also active in the Desi Club, which teaches and allows her to perform traditional cultural dances from India. She brings enthusiasm with her every Saturday where she spends time at Inner City Arts, an organization that enriches the lives of children and bridges the cultural and economic divides between them through a total art program. As an employee she advocates for the program to take on more students like her. Her illness never stops her from chasing her dreams. She would love a career in performing arts. She maintains a 3.7 GPS along with her busy extracurricular activities. Every day Ruby continues to shoot for the stars. Way to go Ruby!
Zachary Lopez; Eric Nightingale; Sami Schlemmer; Maria Stamos; Janie Yoo; Anna Zeldin
In honor of ThriveRx, Gold Medallion Partner
The Oley Child of the Year Award is given annually to a youth (18 years of age or younger) who has been an HPEN consumer for one year or longer and who shows a positive attitude in dealing with illness and HPEN which encourages and inspires others.
Casey is a remarkable young man. He has been described as positive, happy, adventurous, a fighter, a devoted big brother, a champion bowler, and a rabid sports fan. Casey has demonstrated exceptional capacity to give and to advocate for others despite living with chronic pseudo-obstruction and being home parenteral nutrition-dependent. At six years old, Casey wanted to bring presents to all the kids that had to stay at the hospital. Thus "Casey's Toy Drive" was born. Over the last seven years it has grown into a program that engages Casey's whole community. Casey's toy drive not only donated thousands of toys to the Mattel Children's Hospital at UCLA but has served to raise awareness of the needs of hospitalized children. Casey didn't stop there. At ten years old he was a member of a delegation representing an association for children's hospitals that spoke to legislators in Washington, D.C., about the unique needs of children with chronic and catastrophic health care conditions. Casey is also a straight A student and enjoys fishing with his dad and being a doting brother to his four younger siblings. He truly inspires those around him to appreciate life and live it to the fullest. Congratulations Casey!
Ruby Barrios; Hope Knight; Zachary Lopez; Sean May; Theodore Pena; Albert Otero Rigau; Sami Schlemmer; Anna Zeldin
In honor of BioScrip, Inc., Silver Circle Partner
Presented for the first time in 2014, this award is given to an HPEN consumer or caregiver of any age who sets an example by promoting innovation in nutrition therapy or by advocating for themselves or someone in their care. Bette has been an Oley Foundation member for many years, and an Oley Ambassador volunteer since 1992. She also volunteers with the Oley Equipment and Supply Exchange Program. She devotes time each week to the program but still makes time to advocate and lobby for legislative change, especially regarding the Medicare Home Infusion Site of Care Act, which would help provide Medicare recipients with coverage for home infusion. Bette is constantly looking for ways to improve the quality of life for our Oley members and others. In her "spare" time, she re-purposes old sweaters into mittens to help the homeless stay warm. She is always looking to advocate for others in some way. Congratulations Bette!
Arlen bebensee; Nat Collison; Sanford Flach; Linda May; Brenda Gray; Kendall Hollinger; Andrew Jablonski; Heidi Martin-Coleman; Kevn McNamara; Terry Wimer
|Reid Nishikawa, ParmD, BCNSP, FCSHP|
Inspired by Judy Peterson, RN, MS
Reid Nishikawa, PharmD, BCNSP, FCSHP
The Nan Couts Award is presented annually to a clinician practicing in the HPEN or a related field who has shown a willingness to go “above and beyond” to educate, empower, and improve the life of HPEN consumers. Reid is highly respected among the top home nutrition support (HPN) clinicians in the country for his expertise, research, and dedication to all HPN consumers. He is always willing to answer e-mails, texts, and phone calls with questions and concerns from consumers, regardless of time of day or day of week. In 2014, he helped an ambitious consumer run the San Francisco Marathon, strategizing IV hydration plans and assisting along the way. Reid always makes himself available if needed. He recently helped lead the Nutrishare clinical team to receive the Clinical Nutrition Team of Distinction Award given by A.S.P.E.N. in 2016. He has assisted Oley by leading roundtable discussions at the annual conferences, and is always willing to put his patients first.
Kevn McNamara, PharmD, CNSC
Patricia "Tricia" Melland
The Oley Foundation is pleased to announce this year’s winner of the Kyle R. Noble Scholarship: Patricia "Tricia" Melland. This scholarship was established in memory of Kyle Noble to help further the educational goals of individuals relying on home parenteral and/or enteral nutrition (HPEN) for their primary nutritional needs and to recognize an HPEN consumer who embodies the qualities for which Kyle is remembered.
Tricia, now 17 years old, began life as a healthy child, active in the arts, sports, and school. Her unusual medical problems began after she underwent general anesthesia for surgery when she was in second grade. She has not been able to eat for the last five and a half years. She now carries a medical backpack twenty-two hours a day, infusing more than 5 liters of fluid, medication, and parenteral nutrition (PN).
Tricia continually advocates for herself and others, and she takes on adventures and challenges with determination and enthusiasm. She does not let her medical condition stand in the way of achieving her dream. Years of being in and out of hospitals and a diagnosis now of intestinal failure, pseudo-obstruction, and mitochondrial disease haven’t deterred her from consistently keeping academics top priority. As a result, she completed her high school career this past May. She is excited about starting the University of Nebraska honors program in the fall, pursuing a career in the medical field. We offer our sincere wishes for success in the future. Congratulations, Tricia!
We also want to congratulate all of the other scholarship applicants on their achievements and goals. We received many outstanding essays. Our only regret is that there can only be one winner. Please consider applying next year for the Kyle R. Noble Scholarship!