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2016 Oley Award and Scholarship Winners
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2016 Oley Awards and Scholarship Winners

Please do not contact winners or nominees for solicitation, marketing, or research purposes.


LifelineLetter Award, HPN


Jana Daigle

Sponsored by Nutrishare, Inc., Silver Circle Partner

Jana Daigle


This award is given annually to a person who has been a home parenteral nutrition (HPN) consumer for five years or longer, or his or her caregiver, who demonstrates courage, perseverance, a positive attitude in dealing with illness or caregiving, and exceptional generosity in helping others in their struggle with HPN. 

 

Jana is an inspiration to all those around her. She was born with intestinal pseudo-obstruction and has been on HPN since birth. Although Jana’s life has included countless hospitalizations, surgeries, and procedures, she has never let these hold her back. As a child, Jana attended and excelled in school. She went on to attend college and earned a degree in social work.

 

 Jana currently works for her church and organizes and facilitates social and bible study groups. She does not allow her illness to dictate her life. Despite her angry belly, she enjoys adventure and excitement and has recently had the opportunity to hike in the Gila National Forrest in New Mexico. Jana says, “Gratitude is an intentional rhythm I try to live my life in tune to. It changes the way I see everything around me.”

 

Nominees:
Bettemarie Bond; Cheryl Burge; Marco Cappetta; Megan Gravenstein; Andrew Jablonski; Emma Tillman


LifelineLetter Award, HEN


Joy McVey-Hugick

Joy McVey Hugick

 

This award is given annually to a person who has been a home enteral nutrition (HEN) consumer for five years or longer, or his or her caregiver, who demonstrates courage, perseverance, a positive attitude in dealing with illness or caregiving, and exceptional generosity in helping others in their struggle with HEN.

                

Joy has a dynamic personality and a true passion for working with others to ensure no one has to go through what she has. In 2010, Joy had an acute onset of symptoms that later was diagnosed as a post-viral gastroenteropathy causing gastroparesis, slow-transit constipation, and esophageal dysmotility. Initially, Joy was intravenously fed; she was transitioned to tube feeding when it was determined to be a more permanent solution. Before getting sick, joy worked on public health for the Centers for Disease Control and Prevention.

 

In 2015, after attending the Oley Ambassador Workshop at the annual conference, Joy became an Oley Ambassador. She immediately found opportunities to share information about tube feeding and the Oley Foundation, and to help a friend and neighbor accept tube feeding to help him get the nutrition he needed at a critical time. The role of Oley Ambassador has given Joy a chance to blend her background in public health with her own personal experiences of living with a feeding tube to advise and inspire others. She has embraced the role enthusiastically and successfully.

 

Joy also finds time to volunteer at her local hospital, host charity events, and advocate for digestive disease and home parenteral and enteral nutrition (HPEN) issues on Capitol Hill. Joy embraces her passion to help others, and also finds happiness in spending time with family, including her husband, nieces and nephews, and her rescue dog Buddy.

 

Joy says, “My life improved when I began going with the flow of living with a chronic condition instead of resisting it. I choose ‘joy’ by leading from my center and not my circumstances.” Joy says her faith and yoga practice are the foundation in this journey.


Nominees:

Kendall Hollinger; Janet Platt


Celebration of Life


Nat Collison

In honor of Coram CVS/specialty infusion services, Gold Medallion Partner

Adult: Nat Collison 

 

The Oley Foundation Celebration of Life Award recognizes someone who has been on home parenteral and/or enteral nutrition (HPEN) for three years or longer and who lives life to the fullest. We offer two Celebration of Life Awards, one for adults and a second for youth under 18 years of age.

 

Nat celebrates life every day. She exhibits a consistent strength and courage that she selflessly shares with others. She always looks on the bright side of things, and for how she can help make someone else’s life a little bit brighter. Diagnosed with an aggressive auto-immune disease and gastrointestinal paralysis, she was given a J-tube initially; for the last three years she has been dependent on home parenteral nutrition (HPN).

 

Nat says, “Most people see my tubes as a disability, but they are so wrong. My tubes have given me the energy I need to let my abilities shine.” She is a bundle of energy and keeps busy with martial arts, juggling, unicycling, tap dancing, archery, caring for her pet pig, and crocheting. Nat’s ability to crochet has connected her to Knots of Love, a non-profit organization that gives around 1,000 handmade hats each week to children and adults fighting cancer and other illnesses. Nat has made over 200 character and animal hats for children with life-threatening conditions! By sharing her story Nat has inspired numerous people, giving them hope and showing them that if they never give up, they can inspire others too.


Nominees (adult):

Lucy Buggs; Jana Daigle; Brenda Gray; Kendall Hollinger; Kristi Patzman; Lauren Reimer; Melinda Sayers; Emma Tillman



Celebration of Life


Ruby Barrios
In honor of Coram CVS/specialty infusion services, Gold Medallion Partner

Pediatric: Ruby Barrios

 

The Oley Foundation Celebration of Life Award recognizes someone who has been on home parenteral and/or enteral nutrition (HPEN) for three years or longer and who lives life to the fullest. We offer two Celebration of Life Awards, one for adults and a second for youth under 18 years of age.

 

Ruby has proven herself a worthy role model for many children affected by their illness. Ruby was diagnosed with gastroschisis prenatally. When she was two days old, she was taken into the emergency room and had a subtotal small bowel resection. She has been dependent on home parenteral nutrition (HPN) her whole life. It hasn’t stopped her from overcoming obstacles and achieving her goals.

 

Ruby studies theater, dance, choir, and drama. She has written and performed her own monologue, and last year, had starring roles in her high school plays. She is also active in the Desi Club, which teaches and allows her to perform traditional cultural dances from India. Every Saturday she spends time at Inner City Arts, an organization that enriches the lives of children and bridges the cultural and economic divides between them through a total art program. As an employee, she advocates for the program to take on more students like her.

 

Ruby’s illness doesn’t stop her from chasing her dreams. She would love a career in performing arts, and she maintains a 3.7 GPA along with her busy extracurricular activities.

 

 When she received this award at the annual conference, Ruby said, “Facing and accepting to live with the harsh realities have molded me into the person standing here today, but [it] could not have been done without motivation, dedication, comfort from my family, and most importantly, courage.…Courage is confidently proving to yourself that you’re worthy in order to seek the satisfaction within yourself. Prove to yourself that you are worthy of overcoming the unexpected….”

 

Nominees (pediatric):

Zachary Lopez; Eric Nightingale; Sami Schlemmer; Maria Stamos; Janie Yoo; Anna Zeldin


Child of the Year Award

In honor of ThriveRx, Gold Medallion Partner

 
Casey Abrams

Casey Abrams

 

The Oley Child of the Year Award is given annually to a youth (18 years of age or younger) who has been a home parenteral and/or enteral nutrition (HPEN) consumer for one year or longer and who shows a positive attitude in dealing with illness and HPEN which encourages and inspires others.

 

Casey is a remarkable young man. He has been described as positive, happy, adventurous, a fighter, a devoted big brother, a champion bowler, and a rabid sports fan. Casey demonstrates exceptional capacity to give and to advocate for others despite living with chronic intestinal pseudo-obstruction and being dependent on home parenteral nutrition (HPN).

 

At six years old, Casey wanted to bring presents to all the kids that had to stay at the hospital. Thus “Casey’s Toy Drive” was born. Over the last seven years it has grown into a program that engages Casey’s whole community. Casey’s Toy Drive donated thousands of toys to the Mattel Children’s Hospital UCLA, Los Angeles, California, and has served to raise awareness of the needs of hospitalized children.

 

Casey didn’t stop there. At ten years old he joined a delegation of children’s hospitals speaking to legislators in Washington, D.C., about the unique needs of children with chronic and catastrophic health care conditions. Casey is also a straight A student and enjoys fishing with his dad and being a doting brother to his four younger siblings. He truly inspires those around him to appreciate life and live it to the fullest.

 

Nominees:
Ruby Barrios; Hope Knight; Zachary Lopez; Sean May; Theodore Pena; Albert Otero Rigau; Sami Schlemmer; Anna Zeldin

 


Innovator/Advocator Award



Bettemarie Bond

In honor of BioScrip, Inc., Silver Circle Partner

Bettemarie Bond


Presented for the first time in 2014, this award is given to a home parenteral or enteral nutrition (HPEN) consumer or caregiver of any age who sets an example by promoting innovation in nutrition therapy or by advocating for themselves or someone in their care.

 

One of Bette's passions has been to advocate and lobby for legislative change, especially regarding the Medicare Home Infusion Site of Care Act, which would help provide coverage for home infusion for Medicare recipients. She has lobbied on Capitol Hill in Washington and met with her legislators in her home state of Pennsylvania; gathered over 73,500 signatures on a petition urging legislators to support the Medicare Home Infusion Site of Care Act; been featured in a (Philadelphia) Inquirer article on the bill; and spoken at several meetings about the bill and on the topic of advocacy.

 

Bette and Kendall Van Pool, the National Home Infusion Association Vice President of Legislative Affairs, presented on the topic of advocacy at the 2016 Oley annual conference in Newport Beach, generating a lot of enthusiasm on the topic from the audience.

 

Bette has been an Oley Foundation member for many years, and an Oley Ambassador volunteer since 1992. She is constantly looking for ways to improve the quality of life for Oley members and others. Bette volunteers to help run the Oley Equipment and Supply Exchange Program, which is a tremendous help to those in need of supplies, those with supplies to donate, and to the Oley Foundation.

 

In her “spare” time, Bette re-purposes old sweaters into mittens to help the homeless stay warm. Bette advocates for others in so many ways.

 

Nominees:

Arlen bebensee; Nat Collison; Sanford Flach; Linda May; Brenda Gray; Kendall Hollinger; Andrew Jablonski; Heidi Martin-Coleman; Kevn McNamara; Terry Wimer

 


Nan Couts Award for the Ultimate Volunteer



Reid Nishikawa, PharmD, BCNSP, FCSHP

Inspired by Judy Peterson, RN, MS

Reid Nishikawa, PharmD, BCNSP, FCSHP


The Nan Couts Award is presented annually to a clinician practicing in the HPEN or a related field who has shown a willingness to go “above and beyond” to educate, empower, and improve the life of HPEN consumers.

 

Reid is highly respected among the country’s top authorities in home nutrition support for his expertise, research, and dedication to home parenteral nutrition (HPN) consumers. He has often led roundtable discussions at Oley annual conferences, as well as at annual meetings of the American Society of Parenteral and Enteral Nutrition (A.S.P.E.N.).

 

He is always willing to answer e-mails, texts, and phone calls with questions and concerns from consumers, regardless of time of day or day of week. He always makes himself available when he is needed.

 

In 2014, Reid helped an ambitious consumer run the San Francisco Marathon, strategizing IV hydration plans with the consumer and assisting along the way. He puts his patients first.

 

Reid’s clinical team at Nutrishare credits him with helping to lead the team to receive a 2016 A.S.P.E.N. Clinical Nutrition Team of Distinction Award.

 

Nominee:

Kevn McNamara, PharmD, CNSC

 


Kyle R. Noble Scholarship

Patricia "Tricia" Melland

 

 

Tricia Melland

This scholarship was established in memory of Kyle Noble to help further the educational goals of individuals relying on home parenteral and/or enteral nutrition (HPEN) for their primary nutritional needs and to recognize an HPEN consumer who embodies the qualities for which Kyle is remembered.

 

Now seventeen, Patricia (Tricia) Melland began life as a healthy child. She was active in the arts, sports, and school. Tricia’s unusual medical problems began after she underwent general anesthesia for surgery in second grade. She has not been able to eat for the last five and a half years. She carries a medical backpack twenty-two hours a day, infusing over five liters of fluid, medication, and parenteral nutrition (PN).

 

Years of being in and out of hospitals with a diagnosis now of intestinal failure, chronic intestinal pseudo-obstruction, and mitochondrial disease hasn’t deterred Tricia from consistently keeping academics as a top priority. As a result, she completed her high school career this past May. Not only has Tricia continued to be an advocate for herself and others, she takes on every adventure and challenge with determination and enthusiasm.

 

Tricia does not let her medical condition stand in her way as she pursues her dreams. She is excited about starting the University of Nebraska Honors program in the fall to pursue a career in the medical field. We offer our sincere wishes to her for success in the future.

 

We also want to acknowledge the other applicants who entered. We received many outstanding essays!    We encourage scholars to apply (or re-apply) for the scholarship in 2017. 

 

Updated 12/7/16

more Calendar

2/6/2017 » 2/10/2017
Feeding Tube Awareness Week

2/18/2017 » 2/21/2017
Oley exhibit at A.S.P.E.N.'s Clinical Nutrition Week

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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