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Battling an invisible illness

Wednesday, November 22, 2017   (0 Comments)
Posted by: Andrea Guidi
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By Kimberly LaRussa

The Buffalo News, 11/19/17

 

Every morning Diana Donnarumma of Buffalo wakes up and makes an effort – make-up, a nice outfit and a positive attitude to match. You’d never know that the 25-year-old was struggling with a severe autoimmune disorder.

"I was going to college in Miami and majoring in Spanish and marketing/PR when I found out I had been undiagnosed with Lyme disease for 12 years. That turned into a condition called Dysautonomia which causes malfunction of the Autonomic Nervous System," she said.

What that means is that automatic body functions that most of us take for granted do not work for Donnarumma. The muscles in her stomach don’t contract properly to push food down, so the only place for it to go is up. She spends several hours a day throwing up which leads to weakness and eventually unconsciousness. She can’t eat real food and she is surviving off artificial nutrition (TPN) to keep her alive. She is in desperate need of both a small and large intestine and she also needs to have half of her stomach removed.

 

Click here to read more about Diana's story.


This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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