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What do you do when you have one of the rarest diseases around?

Wednesday, February 17, 2016   (0 Comments)
Posted by: Andrea Guidi
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What do you do when you have one of the rarest diseases around?

 

By: Emily Mullin

Washington Post, February 15, 2016

 

For most of her 13-year life, Hannah Manning was a mystery to her doctors. At age 2, she had her first seizure. At 4, she was diagnosed with autism. She developed cognitive deficits, muscle weakness, exercise intolerance, swallowing difficulties, a speech impediment, balance and coordination problems and gastroparesis, a condition that slows the stomach’s ability to empty the food inside.

 

To read more about Hannah's story in the Washington Post, click here


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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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